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Pain

(30 Posts)
Luckygirl3 Mon 10-Jan-22 19:49:42

I seem to be in constant pain - problems with hip replacement, with severe sciatica, and my foot - just broken it for the second time.

My GP has found a pain killer that I can safely take with my other health problems and it takes the edge off the pain, but I top it up with paracetamol when it becomes intolerable and that does seem to help a bit.

I have the feeling that she is just trying to take the edge off the pain without trying to look at the root cause of it all. She has said that the NICE guidelines state that I have to wait 8 weeks since the sciatica started before a scan is considered. I am beginning to feel quite p****d off with this. My life is just on hold, and the older you get the less time you have to play with.

I have a holiday booked in May and don't know if I will be well enough - I will be going on my own for the first time; I was to be part of the village panto and have just had to back out of that; and my life seems to be closing in.

Are others resigned to just living with chronic pain? I wonder how you deal with this.

janeainsworth Mon 10-Jan-22 20:09:47

Could you ask for a referral to a pain management clinic Luckygirl?
They would possibly be able to help you more than your GP seems able to.

paddyann54 Mon 10-Jan-22 20:15:32

I recommended this on here a couple of days ago ,in case you didn't see it,try an Acti Patch my daughter had a good result with it when she had severe pain .Sadly in her case pain relief has a short life span so I thin it was around 4 months that it worked for .She has hyper joint mobility and fibromyalgia ,the other thing that really helped her was acupuncture ,but it was better with one practitioner than others .She's on about 17 pills a day now and praying for cannabis to be legalised for her conditions as she spends most of her life in bed .Not how a 40 something should be living .

Acti patch is availbale in chemists ad online ,I thinkk she got hers from amazon but they have their own website .Good luck ,I hope you find something that helps .

Riverwalk Mon 10-Jan-22 20:18:37

I'd take the Paracetamol regularly, not as and when, the maximum dose of 2 tablets 4 times a day; plus Ibuprofen if you're allowed that.

Marmite32 Mon 10-Jan-22 20:24:33

I've been pondering this question recently as i've got to the 8th week of shingles.
Pain seems to be on a scale from touch through tingle to itch to sore to pain to agony and unbearable.
I think there are "pain clinics" for those who are in the 'unbearable' group.
I find application of ice cancels out the worst pain.
So Luckygirl I see your point . But I think this discussion is going to lead to - there are some things that the medical profession has no answer for.

Nonogran Mon 10-Jan-22 20:54:50

I’m in pain every day. I am resigned to it. My mobility is restricted but I just tell myself it’s “mind over matter.” I take Paracetamol & Naproxin & use ice packs but like the OP my horizons have drawn in. There are exercises on the internet to help Sciatica so Google for them and do them. Also, how about seeing a private spinal practitioner? Chiropractor or similar?
Not much to say that’s helpful I’m afraid but GP is a good starting point for Pain Clinic referral. Push for it!

Hetty58 Mon 10-Jan-22 21:08:19

Luckygirl3, have you considered having a private MRI scan? I did that with the last major back pain incident, from pure desperation.

I then had the results for my physiotherapist (again, paid for) and my GP, who referred me to the consultant. I had severe, unbearable pain (not the usual, chronic kind) so I had to do something.

It was deemed 'just (???) wear and tear', bulging disks - but no operation needed - although I was offered steroid injections. When, eventually, NHS physio was available, I found it useless. A heat pad, Tens machine and regular painkillers helped. I still have a lifetime supply of Zapain and Tramadol!

Kamiso Mon 10-Jan-22 21:16:30

I was taking Palexia for nerve pain for about eight years then they stopped working. My GP told me that old people should expect to be in pain. She didn’t appreciate me suggesting that older people should be kept as pain free as possible so that they can keep busy and keep moving.

I now use lidocaine patches, paracetamol, Actipatch, ibugel and various other things on a sort of ad hoc basis depending upon what I am doing, or not doing, each day.

I also use relaxation or hypnotherapy videos from you tube that help with pain.

I’ve attended four different pain clinics and they say they’ll get back to me but never have done.

B9exchange Mon 10-Jan-22 21:20:54

I would caution against the regular use of maximum allowed dose of paracetamol every day, it really is not a nice drug. I have attended conferences where research has flagged up the dangers to the liver, and the Guardian picked this up over six years ago, yet it is still taken in huge quantities. See
www.theguardian.com/lifeandstyle/2015/may/25/does-paracetamol-do-you-more-harm-than-good

VioletSky Mon 10-Jan-22 21:22:27

I'm sorry you are struggling and I hope you get help soon.

I have chronic pain but it often doesn't bother me too much as its just always there.

The problem I have is I can't take anything more on top. A cold, a headache or an injury and I suddenly feel all of it.

I take amytriptyline at a low dose for nerve pain. I keep myself active because otherwise my joints stiffen and I'm starting to show signs of arthritis. I use an electric blanket and that's been an absolute life saver because sleep is so important.

Keep fighting for treatment

Sago Mon 10-Jan-22 21:23:18

I thought I had sciatica but a Physio diagnosed GTPS.
Once I started the exercises and rested the Naproxen worked and my recovery was about a month.

Aveline Mon 10-Jan-22 21:36:01

Sago I had to Google GTPS and am glad I did. It explained perfectly a horrible pain I've been experiencing. Not like the wear and tear pain I was used to before my other hip was replaced. I'm glad to say that it's much better now. I must have damaged the tendon in some way.
Also Kamiso I'm shocked at your GP saying old people should expect to be in pain angry
Luckygirl I'm so sorry you're having such a bad time. I hope things improve soon. Nag your GP? Cry while you're there?

Luckygirl3 Mon 10-Jan-22 21:52:00

paddyann54 - I am so sorry to hear about your poor DD - her life must be very difficult.

I am already on a small dose of an opiate in the form of a patch that needs changing every week. It takes the edge off a bit but that is all. I have bee topping up with paracetamol to avoid taking a bigger opiate dose. I try to keep the paracetamol to 3 2 doses a day.

My GP told me that old people should expect to be in pain. Hmm .......

I am trying to leave the idea of a pain clinic until all options have been tried for getting to the root of the pain and hopefully making it go away so I do not need a pain clinic - perhaps a bit optimistic.

Whiff Wed 12-Jan-22 12:50:23

Luckygirl3. I have been in constant pain with my left arm and left leg since I was 29. Next month will be 34 years since it started. It's linked to a neurological condition. I taken pain killers and Amitriptyline for nerve pain only 10mg twice a day. When I have what I call a pain flare I can take an extra one until the pain drops to it normal level. Then back down to normal dose. I tolerate the pain and I suppose over the years the pain has gotten worse but my body is used to pain.

My late husband was brilliant and said we would live our lives to what you can do. Our children were 4 years old and 6 months. So we could go out as family I used a wheelchair. Hated it but it was very important that our children had as normal a childhood as their friends. And they did. I couldn't do some things so my husband and my parents did those things I couldn't do with them. Things like walking them to school ,playing on the floor, going on fun fair rides. But I did everything else a mom does.

Pain can stop you doing some things but it doesn't have to control your life. Took me the first year to realise that.

I hope your pain can be if not cured, controlled . But you can have a good life even with constant pain you have to work out how to do things differently. I learnt the hard way pain will not stop me doing what I want. Unfortunately had to cope on my own for nearly 18 years as my darling husband died aged 47. But because of him I can cope.

Caleo Wed 12-Jan-22 12:56:02

I hesitate to butt in as I have no experience or special knowledge. I just wondered if regular acupuncture might help.

Luckygirl3 Wed 12-Jan-22 13:25:15

Whiff - I am so sorry that your life has been plagued with pain.

I suppose my concern is that there seems to be a bland acceptance that being older means that you will be in pain - maybe that is true. But I would like to feel that any possibility of dealing with the source of the pain might not be rejected just because age brings pain.

I realise and accept that I may just have to find ways of living with it - and I am grateful for the suggestions that people have made - but I would like the option of stopping it to be explored first!

paddyann54 Wed 12-Jan-22 13:28:54

Luckygirl3 the acti patch doesn't involve drugs its like a small tens machine patch thats worn 24/7 .
My lovely girl has seen pain clinics and she has also been told she just has to learn to live with it,difficult when you have a home a husband and children.So we keep looking for anything that might be useful even short term ,She has morphine at home when it gets unbearable .

NanTheWiser Wed 12-Jan-22 17:18:06

paddyann54, I have just ordered an Actipatch after reading about your daughter’s experience with it, and all the reviews, most of which are very favourable.
I suffer with hip pain, that extends to my legs, and it was particularly bad yesterday, prompting my purchase from Amazon. It should arrive in a day or two, and I’m hoping it will give some relief, so thank you for the recommendation.

Lilypops Sun 30-Jan-22 14:00:32

Sago

I thought I had sciatica but a Physio diagnosed GTPS.
Once I started the exercises and rested the Naproxen worked and my recovery was about a month.

Oh this post about pain has been so helpful Sago,it describes perfectly the pain in my hips that I think is GPTS. X-rays I had didn’t show up any arthritis or dodgy hips , my GP did mention Bursitis and gave me painkillers that just made me feel awful,
Now I know what it is I will do the exercises advised and hope it goes away so I can go for a walk without having to stop every few yards when the pain starts.

annodomini Sun 30-Jan-22 14:11:14

I had Bowen therapy for very acute piriformis syndrome - much the same as sciatica. This therapy uses quite gentle pressure on points throughout the body. I don't know how or why it works but for me it did. Within a couple of days, I was walking without a stick. If you Google Bowen Technique, you will find a list of therapists near you.

KateKateKate Sat 05-Feb-22 08:57:37

Message deleted by Gransnet for breaking our forum guidelines. Replies may also be deleted.

Pepper59 Sat 05-Feb-22 09:49:18

Im quite shocked by what Kamiso said regarding the GP, would this be said to a younger person? I think Id be changing my GP. No one should expect to be in pain all the time.

Pepper59 Sat 05-Feb-22 09:57:31

I read The Guardian article, obviously written by someone with no understanding of living with pain. I also note no alternative treatment offered, hot baths ( and there can be a difficulty getting in/out of baths for many) and stretching exercises don't cut it for people in agony.

Luckygirl3 Sat 05-Feb-22 09:59:30

Can't put my shoes and socks on this morning because of pain - supposed to be going to the theatre later. Hope painkillers will have kicked in before SIL comes to lick me up - otherwise he will finish up having to do it!

Luckygirl3 Sat 05-Feb-22 09:59:51

Not lick me up!!!!!! .....pick!