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Migraine misery

(91 Posts)
Grandyma Sat 18-Jun-22 21:25:07

I’ve been suffering from migraine’s for over 50years and get the flashing lights/zig zags, numbness in arms, hands & face, headache, difficulty finding my words. I’ve always had to wait it out and it can last for days. The problem is that over the past year the attacks are not only becoming more frequent but causing the most crippling sickness & diarrhoea. It’s getting so bad that I can’t make plans. Dr. has given me cyclizine for the sickness but it doesn’t help. Does anyone else suffer this awful sickness/nausea and has anything helped? I’m mid attack and feel absolutely awful.

Muffintop Fri 09-Sep-22 09:09:08

Has anyone taken Bisoprolol for migraines,. GP has increased the dosage I already take for arrhythmia ,he thinks the higher doze might help with the migraines. Had 7 last month. Any advice welcome. Can't take Topiramate because I have Glaucoma.

Esmay Thu 25-Aug-22 13:13:58

Correction :
National
Migraine Centre !

Esmay Thu 25-Aug-22 13:09:33

Grandma - every sympathy from me .

Your GP needs to refer you to a specialist to find out what's causing them and if you can have have some real help .

Keep an accurate diary to see if you can pinpoint the possible cause .

Eg:
I ate chocolate at 11.00
I slipped a meal
I'm feel depressed today
I had a sleepless night

Those over the counter migraine tablets might help , but aren't really solving the problem .

Best left to the experts .

One of my friends takes Amityptalline daily and has no more migraines .
Another is on beta blockers with success
I even know someone who has a bite guard as her nightly chomping was triggering them .
My daughter can't have anything icy nor monosodium glutamate - added to so many foods .

There is a charity called the London Migraine Centre -if you are near the capital .

And the best cure for nausea that I know of :
Grate about one inch plus of fresh ginger , measure out one cup if water add one teaspoonful brown sugar or honey -bring your the boil . Allow to infuse until it cools .
Sip slowly and burp for England !
It will pass .

Wishing you lots of luck in finding a successful treatment .

Muffintop Thu 25-Aug-22 11:02:51

Is it usual to get 5 attacks in a month,. I am terrified when I get the flashing lights etc. Even though they only last 15- 30 mins. Iam getting scared to go out. Have been having a lot of anxiety recently,. Could that be a factor.. just returned from tesco one started on the way back.

sandelf Wed 24-Aug-22 14:44:14

I had days long untreatable head pain (and all the other vile symptoms). Tried 'everything', eliminating various foods, different drugs etc. Someone suggested wheat intolerance. I cut it out - to prove them wrong. That was 15th Feb 2001 - have not had a headache of any sort since. You have to replace the calories with something - for me chocolate and oat based things. Not at all claiming 'this will work' - more when you tried everything else... It is apparently the commonest 'hidden' intolerance.

grandtanteJE65 Wed 24-Aug-22 12:58:21

If you are living alone mix up the following solution and keep it well sealed in a bottle in your fridge, so it is to hand when you need it. If you have a spouse than instruct him or her to make it up when your migraine starts.

How do you make saline solution for vomiting?
The "Simple Solution" - Home made Oral Rehydration Salts (ORS) Recipe
Six (6) level teaspoons of Sugar.
Half (1/2) level teaspoon of Salt.
One Litre of clean drinking or boiled water and then cooled - 5 cupfuls (each cup about 200 ml.)

This is not a remedy for migraine unfortunately, but by taking a teaspoonful at a time while you are vomiting or having diahorrea you should be able to remain hydrated and to lessen the vomiting and tummy upset. Vomiting or diahorrea cause dehydration and dehydration increases vomiting, diahorrea and headaches, so it is a vicious circle that must be stopped.

And if your GP hasn't told you this, he or she should be shot!

If you are able to keep a teaspoonful down, increase the amount you take slowly. If not keep on with the one teaspoonful at a time until things settle down.

If you have not already done this, while you are well keep a diary of absolutely everything you eat and drink. This way you may be able to rule out that a food allergy is triggering your attacks, or find out which foodstuffs are the trigger.

Perfumes and legal additives to washing powder, food etc. can also cause allergies that trigger migraines. For me white wine is a trigger, as is any cleaning agent or synthetic material, or sizing that contains formaldehyde.

I hope you manage to find out why your migraine attacks are increasing and reduce them again.

Worrying can be a trigger too.

The menopause could be a reason for the increase, if you are at that time of life, but you didn't mention your age.

So can stress, so unfortunately you have a fair amount of detective work ahead of you if you are to find the cause for the increase or the attacks at all.

When you feel well enough, demand a referral to a specialist - they do exist, and the average GP who never has had a migraine will only write a prescription that does no good at all.

Muffintop Tue 23-Aug-22 16:45:42

Hi Purple poppies,. Can I ask what meds you are taking,. I feel so miserable. Doctors just seem to stick to the book,. Try this, try that,. I've got fed up . Getting one every week. Feeling like IAM being FOBBED off. Makes it worse having glaucoma. Lots of tablets done interact very well. Thanks for replying.

SuzieHi Tue 23-Aug-22 09:22:21

A dr told me to take 3 aspirins and a strong coffee at the first sign of migraine. It works for me, better than other drugs.

Purplepoppies Tue 23-Aug-22 07:33:57

Oh I feel for you.
Yes atmospheric migraines are awful and the only ones not really controlled by drugs for me unfortunately. I suffer vestibular migraines usually. They have been so bad I have passed out whilst being sick.
I was referred to neurology. I now take a preventative every day. Please pm me for details. Don't suffer anymore, you really don't have to!!

Grannmarie Tue 23-Aug-22 07:20:00

In the last month or so I have developed visual migraine, usually one episode a week, I have never had any kind of migraine before. I have colourful zigzags like ripples in a pond which appear in my peripheral vision and last about half an hour, even if I close my eyes.

I was diagnosed with HBP last year and I am on Amlodipine and Propranolol. I've had a lot of stress / anxiety recently and I wonder if this has triggered the visual migraine? Thankfully I don't have headache/ nausea, so I am sorry to hear that you are so unwell OP, I hope you can find an effective remedy before your family holiday.
Lots of good advice on here, thank you.

jeanie99 Tue 23-Aug-22 00:48:22

He was given medication and he took it for sometime however it made it very difficult for him to think clearly and this is a major problem when trying to work. He had to stop taking the medication. He's consulted privately a number specialists for a solution without sucess. It's always there some days better than others. Some days he wears something on his head above his eyes, not sure what it is. It started when he was in his early 30s.

Gala Sun 21-Aug-22 08:33:02

Daily dose of beta blockers (propanalol) as a prophylactic sorts me out. If a migraine sneaks (rarely) through an imigran tablet deals with that, coffee & a piece of toast stops the nausea (no idea why but it works for me).

Muffintop Sun 21-Aug-22 08:13:59

Thanks Jeanie ,.does he take any meds. ?

jeanie99 Fri 19-Aug-22 22:26:50

My son suffers from migraines with vertigo and aura, he suffers most of the time. I do not no how he manages to work, some days he is so bad. He's seen many specialists in this field but the medication he's given makes it difficult to think straight. He's tried so many ways to alter different things in his life but nothing seems to help. He cannot exercise and any quick movement of his head starts it off, it's a nightmare for him.

Muffintop Thu 18-Aug-22 20:31:17

Just been prescribed Topiramate for migraines. ,Anyone taking these,. Or any comments please. I am dithering about taking them ,worried about side effects ,. Don 't want to be worse. Really got myself into a state this time lots of meds I cannot take because of glaucoma.

lixy Wed 06-Jul-22 13:45:27

vskdvbskx reported - seems to be rather 'off topic' to put it mildly!

vskdvbskx Wed 06-Jul-22 13:36:23

Message deleted by Gransnet. Here's a link to our Talk guidelines.

MissAdventure Fri 24-Jun-22 09:42:33

A quarter of a teaspoon, that is.
(I think; I've forgotten already and I just watched it!)

MissAdventure Fri 24-Jun-22 09:39:09

It's just a quarter (or thereabouts) of ginger powder from your stock cupboard in a glass of water, M0nica.
Have to say I have never heard of it as a remedy for headaches or migraine before, but the comments section after the video is packed full of people saying it worked for them!

It would be interesting to test it out - that's all the woman in the vid says; just for people to try it and let her know.

M0nica Fri 24-Jun-22 09:19:52

how do you consume it MissAdventure? powder from a supermarket, pills form a Herbalist?

I am sure it works for some, but I think if it was useful in most cases, it would be more widely known.

I used to eat ginger biscuits on my way to work when I ws pregnant to over come morning sickness, and, yes, it is good for nausea, but migraine?

MissAdventure Thu 23-Jun-22 22:08:44

Apparently the ginger can stop a migraine in its tracks, though I'm sceptical about that.
Still, easy enough to try.

Suki70 Thu 23-Jun-22 22:02:23

Ginger is known to lessen nausea.
A neurologist who works at an NHS headache centre at a London hospital advised me to take magnesium for migraine.

MissAdventure Thu 23-Jun-22 21:30:12

Hmmm, over 1k comments!

MissAdventure Thu 23-Jun-22 21:29:11

youtu.be/gmdTGR6v9iY

MissAdventure Thu 23-Jun-22 21:28:43

I just had this recommended by YouTube.
The video has 7.1k thumbs up, so may be worth a try. smile
Lots of positive comments about it, too. smile