Gransnet forums

Health

Ostomy life

(64 Posts)
baubles Mon 18-Jul-22 15:44:08

I’m wondering if anyone with experience of living with an ileostomy bag can give me some advice.

It’s eight weeks since I had emergency life saving surgery and woke up a couple of days later to discover that I have a permanent ileostomy.

The hospital dietitian gave me information on what I could and couldn’t eat ie absolutely nothing with skin or pips, no mushrooms of any kind and no raw vegetables. Now that the sun is shining I’m craving a big bowl of salad filled with lovely onions, peppers, tomatoes and cucumber.

I’m getting a little bit tired of well cooked veg!

Anyone with any experience?

Dickens Wed 20-Jul-22 19:53:12

baubles

Thanks for the replies and PMs, I’m truly grateful.

How interesting Franbern, I think I’ll have to start experimenting.
I did think I had a blockage a couple of weeks ago and spent a few days in back hospital, however it turned out that adhesions were the culprit and not anything I’d eaten.

Ah the wind Smileless grin. Yes I’ve discovered that broccoli makes my bag fill with gas alarmingly quickly, it resembles a zeppelin straining to escape its tethers.

Thank you all for your good wishes.

If you have adhesions, then you definitely need to keep to a low-residue diet.

I was offered an appointment with a dietician at my hospital, and she gave me a list of foods to eat and those to go careful with - plus those to avoid.

It might be useful for you.

One thing I do though - in the winter - is make loads of slow-cooker recipes, beef, chicken, lamb (lamb tagine in particular), adding root vegetables, green beans, broccoli and onions... all goes down well (and I have tons of adhesions) because all the ingredients are so well-cooked... melt-in-the-mouth cooked, and the taste is dense and excellent.

... but I'd give my right arm for a salad right now. Skinning and de-seeding a tomato is a PITA. Some people can eat lettuce (but not the stalky bit).

Try for an appointment.

,,, and a refreshing snack on a hot day - cottage cheese mixed with (1) mango chutney (no bits), or (2) mixed with a very small dollop of mint sauce, and as another option (3) mixed with celery salt and, finally, (4) mixed with peeled and skinned cucumber chopped into small bits... all garnished with mini bread-sticks.

CarrieAnn Wed 20-Jul-22 20:24:35

I to had an emergency operation to save my life,and have a permanent colostomy.I followed the diet sheet religiously for some time,but at one time I ate a mango and that put me back in hospital with a blockage.I find now 10 years on that I can eat a lot of things that were forbidden at the start.I have had problems in this appalling heat,it feels very uncomfortable but hopefully it will settle down when it gets cooler.As the nurse in intensive care said at the time,"it's better to live with a bag than be in a box". All best wishes for your recovery,it takes a while,but you will get there.

Franbern Thu 21-Jul-22 09:26:17

StarDreamer

Franbern wrote Anything that involves 'dissolving in the stomach' is not for you.

Why is that please?

Because the organ which dissolves those things has been removed from our bodies!!!

StarDreamer Thu 21-Jul-22 10:47:53

Franbern

StarDreamer

Franbern wrote Anything that involves 'dissolving in the stomach' is not for you.

Why is that please?

Because the organ which dissolves those things has been removed from our bodies!!!

Can you clarify please?

I am thinking that for an ileostomy to be in use it is the large intestine that has been taken out of the digestive flow (whether removed in whole or part, but if not totally removed, disconnected).

Are you saying that the stomach is removed?

Franbern Thu 21-Jul-22 11:05:47

Much of that water retrieval takes place in the last intestine, not in the stomach. I do not now have this organ. Completely taken out during that operation 32 years ago.

Blossoming Thu 21-Jul-22 11:57:06

StarDreamer from the NHS website.

^Medication

Many medicines are designed to dissolve slowly in your digestive system.

This means some medications may not be as effective if you have an ileostomy as they could come straight out into your bag.

Let your GP or pharmacist know about your stoma so they can recommend an alternative type of medicine, such as an uncoated pill, powder or liquid.^

StarDreamer Thu 21-Jul-22 12:12:29

Blossoming

StarDreamer from the NHS website.

^Medication

Many medicines are designed to dissolve slowly in your digestive system.

This means some medications may not be as effective if you have an ileostomy as they could come straight out into your bag.

Let your GP or pharmacist know about your stoma so they can recommend an alternative type of medicine, such as an uncoated pill, powder or liquid.^

Thank you.

I was wondering how that relates to

> Anything that involves 'dissolving in the stomach' is not for you.

StarDreamer Thu 21-Jul-22 12:15:28

Was the word 'stomach' being used in a more general sense to mean digestive system rather than the actual stomach itself?

BlueBalou Thu 21-Jul-22 12:31:38

I can assure you that having a straight forward ileostomy or colostomy does not involve removing your stomach!
The reason you should be cautious with soluble or liquid medication is, I image, because they are absorbed in the small intestine so if that’s removed or shortened (for ileostomy) then you possibly won’t achieve the benefit of that medication.

InternaTionallyjsu Thu 21-Jul-22 16:05:53

Message deleted by Gransnet. Here's a link to our Talk guidelines.

InternaTionallyjsu Thu 21-Jul-22 16:07:02

Message deleted by Gransnet. Here's a link to our Talk guidelines.

Franbern Sat 23-Jul-22 08:44:32

Blossoming thanks for posting that NHS information. Was amazed at a comment by me to a new ostomist was so picked up and nitpicked.
I really would strongly recommend that anyone having an Ileostomy should join the Ileostomy Association. The quarterly magazine they produce and distribute to all members is always so full of this sort of information and advice and keeps us all really updated regarding new appliances, etc.

StarDreamer Sat 23-Jul-22 10:43:49

Bluecat wrote I don't eat ... leafy green vegetables.

The following is listed as "Baby & Toddler Food", but listing it under "Food for elderly people with ..." would not quite look so ... um ... yes. smile

LINK > Tesco Green Veggies