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Fobbed off yet again by hospital

(86 Posts)
HAZBEEN Wed 26-Oct-22 11:20:59

Bit of background, I was diagnosed with a type of Blood Cancer in September 2020. Because of Covid I was given the news in a garbled phone call with no prior warning what to expect. Since then apart from 2 appointments at the infusion unit to have a blood check and receive my oral chemo prescription (back at the beginning) I only have 3 monthly phone consultations. After each of those (5minute) calls the consultant orders a new blood test before the next call and authorises my prescription which I pick up locally.
In July my consultant said she was leaving and I would get a new appointment in September/October from the new Doctor. Having heard nothing I rang the hospital and was told they didn't have a new consultant yet and the others in the department are refusing to take on any more patients.
So now I have no one looking after my case.
I emailed my GP (they dont take phone calls!) but no response after a week. Just rung PALS and they are chasing up the department but thats it.
I needed a rant about this, thanks for being there!

Maya1 Fri 28-Oct-22 13:49:17

Hazbeen this is shocking treatment, l hope that you are soon sorted out. I don't want to be negative about our NHS but l think it has become chaotic.
We use Addenbrookes on a regular basis as my DH has had a double transplant. He has been very poorly the past year and they are not able to find out what is wrong with him.
When he was admitted recently, we couldn't speak to a doctor as they were too busy, the nurses actual words. I don't blame them at all as they are all doing their best. Extreme staff shortages and stressed beyond belief.
I am just grateful that my son, dil and dgd have private health care so hopefully should be OK.
I don't think we will be.

Pammie1 Fri 28-Oct-22 13:28:49

If the lack of a consultant means that there is no-one to authorise either the blood tests or the treatment, then I think you need to escalate your enquiry through PALS to a complaint. And as others have suggested, make a lot of noise.

Saetana Fri 28-Oct-22 13:12:13

Ignore my last comment - just saw that PALS came through for you. Hope everything goes well for you flowers

Saetana Fri 28-Oct-22 13:10:51

Sorry to hear what you are going through. I would suggest contacting your local MP - this is exactly the sort of thing they are supposed to help their constituents with, and action from an MP usually gets results.

MissAdventure Fri 28-Oct-22 12:51:11

I saw a hepatologist (I think!) in February, and am still awaiting my follow up appoinment which should have been four months later.

I've left messages lots of times, but nobody ever gets back to me.

Kryptonite Fri 28-Oct-22 12:45:20

I find this outrageous and unacceptable. You can choose to have your cancer treatment at another hospital, so maybe that might ensure you can get the treatment you need. I would be very stressed to say the least in your situation and lacking confidence in the hospital. I have to wait 5 weeks for mammogram results (5 years post cancer, so this is a bit of a milestone). After 4 weeks' wait, I managed to get through to someone who said this is because of staff shortages and illness. Caused me much anxiety indeed. Haven't seen any doctors or consultants since beginning of Covid (all over the phone), except when I was in A&E, when I saw 5 doctors!

Annie29 Fri 28-Oct-22 12:44:04

How worrying for you,its just not acceptable. Have you thought about contacting your MP

crazyH Fri 28-Oct-22 12:34:35

HAZBEEN - hope everything works out fine for you.

Oh Miss A - that made laugh. I needed that, after all the household problems I’ve had - had to have a new garage door. but it’s so heavy, I sprained my shoulder trying to open it. My SKY magic eye, not working. So ordered new one . That didn’t work either. So called the engineer - he came- 15 minutes and £65 later, I’ve got Sky back on. Have a nice weekend everyone

icanhandthemback Fri 28-Oct-22 12:33:45

HAZBEEN

You ladies have given me such a laugh this morning when I caught up with this thread!
I now have to go into battle today to get my blood test before the appointment on Wednesday or there will not be any use speaking to the consultant! Seemingly there are no appointments at either the GP or the local hospital!

Back to PALs I would think! Honestly, when my Mother was in Mexico 35 years ago, the service was better than we are managing at the moment!

Grantanow Fri 28-Oct-22 12:30:37

PALS managed this for you (and deserve a word of thanks) but the problem reflects the general situation in the NHS - not enough doctors etc., overwork, inadequate buildings, bed blocking, ambulance delays and much more. I doubt the government will do much about it other than making a lot of noise and looking busy.

MissAdventure Fri 28-Oct-22 12:17:38

Me too. smile
(Sorry for hijacking the thread a bit, but glad it made you smile)

Theoddbird Fri 28-Oct-22 12:15:46

Glad you got it sorted Hazbeen. Hope everything goes well for you flowers

Callistemon21 Thu 27-Oct-22 10:49:47

HAZBEEN, hope you got an appointment.

Sometimes negotiating the system is so difficult!

Callistemon21 Thu 27-Oct-22 10:47:07

HAZBEEN

You ladies have given me such a laugh this morning when I caught up with this thread!
I now have to go into battle today to get my blood test before the appointment on Wednesday or there will not be any use speaking to the consultant! Seemingly there are no appointments at either the GP or the local hospital!

I was told by the Consultant that if I couldn't get an appointment with the nurse at the surgery or a visiting phlobetomist, there was a "drop-in" clinic at one of the large hospitals.
The trouble is that "drop-in" for me means a 36 mile round trip ?

Whiff Thu 27-Oct-22 09:53:14

HAZBEEN are there any walk in clinics or pharmacies near you that do blood tests? Have a look on NHS site or phone 111 and they may be able to help you.

I spoke to my GP Monday and as I was having my Covid jab yesterday at 10.20 at the pharmacy opposite the surgery she arranged for me to have my blood test at the surgery at 10. Both my surgery and pharmacy are both very busy and have large volume of patients.

It seems to depend where you live in the country what health care you get. Where I live GPs and hospitals see a very large number of people . I think it must be down to funding by the various health authorities what care you get.

I have better health here than I got where I used to live.

Hope you can get your blood test done before you see your consultant. But if not surely he will arrange it after talking to you on Wednesday and then arrange another appointment.

HAZBEEN Thu 27-Oct-22 09:13:28

You ladies have given me such a laugh this morning when I caught up with this thread!
I now have to go into battle today to get my blood test before the appointment on Wednesday or there will not be any use speaking to the consultant! Seemingly there are no appointments at either the GP or the local hospital!

Callistemon21 Wed 26-Oct-22 23:59:17

I thought home would be safer than hospital at the time.

MissAdventure Wed 26-Oct-22 23:48:51

I discharged myself last time I was in.
I'd been outside in an ambulance for so long, I started to feel better.

Callistemon21 Wed 26-Oct-22 23:46:06

I did threaten to discharge myself once (it's a long story, I won't bore you) but I did tell the poor overworked one nurse on the ward first.

MissAdventure Wed 26-Oct-22 23:34:06

My mum was bed bound, though.

My daughter 'done a bunk' when she was in.

SueDonim Wed 26-Oct-22 23:31:05

Callistemon21

I've heard of lost property but not lost patients.

My medic dd says they ‘lose’ patients all the time. They disappear off or discharge themselves or even have their mates come and ‘spring’ them, like they’re in jail! Problem is that they have to be accounted for so if they don’t turn up, security and police have to be involved.

Dd spent most of one night coordinating the search for a patient. He’d gone home but his family weren’t very pleased to see him and brought him back first thing next morning. grin

Hazbeen I’m glad you’ve managed to get sorted. flowers

MissAdventure Wed 26-Oct-22 23:30:49

I worry I won't be able to communicate at all at some point.

I was supposed to be having a memory test but I xant remember what they said. smile

welbeck Wed 26-Oct-22 23:30:20

yes, OP, hope you get some better attention soon from the medics.
all the best.

welbeck Wed 26-Oct-22 23:28:52

having to wrestle with textual criticism, all those years ago, has borne some fruit ! maybe.

Callistemon21 Wed 26-Oct-22 23:28:14

Apologies to HAZBEENwe seem to have derailed the thread blush

Sorry, I do understand the difficulties you are facing and it really is frustrating.