This is the key from the O/P
"Then 4 days ago, after a hectic few days, WHAM I am back where I started with the same symptoms exactly."
I have CFS, it has many similarities: I too hoped it meant resources would be drawn together but there aren't a lot of signs of this. (there are of course some physical leftovers from Covid that dont apply to ME/CFS).
I did get a specialist appointment and the key - easy to say, hard to do especially if you live alone and have to do everything - is pacing.
You have to limit activities both physical and mental and stop before you reach the critical tipping point. Its hard to find out what your individual tipping point is not necessarily "exhausted". The best way of describing that tipping point is where you start sort of carry on doing things on adrenaline and mechanically.
It needs life re-organising and involves family and friends understanding that you may have to stop chatting after an hour or that you have to disappear to bed, leave meetings, get a cleaner, and find resources like listening to music and chatting online instead of engaging so much.
Above all planning the calendar realistically ahead and making arrangements with the understanding that they might need to be changed.
Yes it is frustrating especially with things like seeing family and outings but has some of its own quiet rewards.
but is you had got quite a lot better before the 4 days and the WHAM you can get back to that place. x
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