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Anyone experienced this?

(34 Posts)
NemosMum Wed 05-Apr-23 12:59:39

Really sorry to hear you're feeling so rotten! If it persists, can you ring your Medical Oncologist's secretary and arrange a telephone chat with her/him and perhaps a review? I was lucky that my oncologist always invited me to "Give Sam a buzz if there's anything bothering you." I only had to do it twice, but I did stop one chemo regime after cycle 2 because of various unpleasant things happening. I was concerned because I had a "nasty" cancer with a low 5 year survival. Oncologist told me he had a "cunning plan" - changed to another regime which was more tolerable. I gathered from the nurses at the Maggie Centre that this often happens. Everybody reacts differently to chemo drugs, but they won't know unless you tell them. Hope you are feeling better soon. flowers

HeavenLeigh Wed 05-Apr-23 12:57:26

Didn’t want to read and run Sunnysideup hope you are feeling better very soon

NotTooOld Tue 04-Apr-23 17:51:05

Sorry to hear you are having such a bad time. Hope you soon feel better. x

Gillycats Tue 04-Apr-23 15:36:48

So sorry to hear you’re so unwell Sunnysideup. Are you taking anti sickness medication for the chemo. When my DS had testicular cancer (aged 34yrs) he was really unwell but it turned out to be the anti sickness tablets not the chemo. He felt better once he stopped them. Hope you feel much better soon x

Auntieflo Tue 04-Apr-23 15:32:38

Sunneysideup, here's hoping that you soon feel better. I have been having chemo tablets for over two years, and they do make me very tired. Sometimes it just feels as though a plug has been pulled out, and all my energy drained. I have a rest and then recover a bit, but try to keep going.

Oldbat1 Tue 04-Apr-23 13:05:13

DH has colon cancer. He is having chemo for the 3rd time and is on cycle 16. He feels dreadful. Chemo side effects are cumulative. Oncologist made him feel worse when she said “I have patients who continue to work full-time”. It is very hard. I’m sorry you too are suffering.

SueDonim Tue 04-Apr-23 12:38:35

A family member is being treated for bowel cancer, Sunnysideup and is experiencing very similar symptoms to you. Sometimes it’s an effort to even hold their head up.

The good news is that it eases off really quite quickly and suddenly so within another couple of days they’re back to normal. I hope it’s the same for you. flowers

mumofmadboys Tue 04-Apr-23 12:06:37

Sorry to hear you are having such a bad time Sunny. I have no personal experience but just wanted to say I hope you soon feel a bit better. Hope you have family looking after you x

Sunnysideup Tue 04-Apr-23 11:54:34

I’m on day six of my first 2 week cycle of chemotherapy for secondary appendix cancer and experiencing extreme fatigue to the stage where I can hardly get out of bed let alone walk around. This is the third day of this and although I had chemo before I don’t remember it being quite as bad. I haven’t got a temperature and that’s all they’re concerned about really although I did have a chat to one of the chemo nurses this morning and he felt there was nothing to worry about. I’m really hoping that I’ll pick up again soon. Anyone else been floored by chemo? There isn’t a specific one for appendix cancer and I believe they use the chemo drug for colorectal cancer.