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Dementia diagnosis for Mum, now what?

(53 Posts)
Witzend Thu 25-May-23 17:02:21

I’m so sorry, SecondhandRose, I do know how hard this can be.

Having been through it all twice (mother and FiL) one thing I’d advise is joining the Alzheimer’s Society Talking Point forum, for carers of people with dementia.
For several years it was something of a lifeline for me.

Whatever you’re going through, someone will have been there. There aren’t always (or often) any easy answers, but you’ll get the benefit of other people’s experience - plus it’s a safe place to offload/let off steam to other people who know exactly what it’s like.

People who haven’t lived with dementia hardly ever do, but often think they do, and all too often like to tell you what you ought to be doing. 🤬. Ignore them!

You may well be aware of this already, but one thing we only learned by experience, is not to correct a person with dementia when they tell you something that you know isn’t true. To them it is, so unless it’s critically important, just go along with it - this can avoid a lot of unnecessary stress.
Good luck.

Hithere Thu 25-May-23 16:54:26

Sorry to hear the terrible diagnosis

At least it is confirmed and a social worker can help?

Start lining up a plan of care that is realistic and sustainable - do not fall in the trap of unsafe and dangerous demand from your mother

Your health also matters, as much as hers - stress, time demands, etc

SecondhandRose Thu 25-May-23 16:48:56

Been to a Geriatric appointment at the hospital for Mum. They did lots of tests. She has failed the cognitive test pretty badly. I know she is forgetting things but she didn't even know the year. They are referring her for a ct scan and to the falls clinic. She was very quiet on the drive home, didn't mention the tests. I feel knocked for six. Wasnt expecting it. Dementia is such a horrible word. What happens next please? I am part way through applying for Attendance Allowance which I can complete after we get the hospital letter.