Gransnet forums

Health

Horrible IBS flare up. Any suggestions, please?

(57 Posts)
LRavenscroft Wed 28-Jun-23 10:32:24

I wonder if any Gnetters could advise if they have had something similar and what they did, please. I had a horrible IBS flare up last Tuesday following a busy day and what I think may have been garlic/onion salad dressing. I had a similar attack yesterday and that was eating a veggie burger with garlic & onion. My attack started late evening and I was up all night but had with it the most horrible anxiety attack whereby every time I tried to go to sleep all sorts of scenes would come into my mind and my body went through the fight or flight feeling with ringing ears, dry mouth and aching upper right belly. I had my gallbladder out five years ago and have never been right since. It was quite frightening. I've started to keep a food diary and am going to see my GP next week (only appointment). The other thing that frightens me is that I just don't want to be near other people I usually socialise with. I just find it all too demanding so have cancelled my groups till I know what is really going on in my head and with my abdomen. No sinister symptoms at the moment. Thank you.

62Granny Wed 28-Jun-23 10:46:24

Glad you have an appointment with your GP, but I wonder if it is your Anxiety is causing your IBS, rather than food related. Hopefully you can get some answers when you are seen.

hollysteers Wed 28-Jun-23 10:56:03

I have IBS and a hiatus hernia. It’s horrible when you have an
attack I know. It has ruined days out and parts of trips abroad for me.
So hard to control, but stress can bring it on for me. Also too much fruit and vegetables. I take Omeprazole on prescription,plus senna for when I’m gummed up😨
Gaviscon by the bedside and Rennies to chew. Do you have acid reflux and bring up bile coughing?
I think possibly you may have had too much going on and this is the reaction. I’ve never had an anxiety attack with it, so that might be a separate issue.
Very big meals can bring it on and eating late at night.

I hope your appointment goes well and you get some relief.
.

MayBee70 Wed 28-Jun-23 11:07:27

You have my sympathy. I’m not sure if I actually have IBS but I do know that my bowel and my bladder don’t seem to like me and have both caused me problems throughout my life. However, as someone that struggles with sleeping when I’m worried can I suggest listening to Jason Stephensons Get Back to Sleep Fast on utube. I don’t understand why it works because I find his voice a bit irritating but it always gets me back to sleep.

sassysaysso Wed 28-Jun-23 11:14:37

I sympathise, onion, garlic and leeks are my kryptonite and are included on FODMAP list of foods to avoid. I used to be able to eat them fine but for about the last 10 years, when I've eaten them I wake up in an agitated state and feel drained the next day. So I avoid them. There is a good range of sauces available from Bays Kitchen which are tasty without onion or garlic. Expensive but to add variety and a bit of spice to my diet they're worth it. www.bayskitchen.com

I'm not convinced that stress is the cause of IBS although of course it is not unusual for periods of stress to affect our digestion. I know that if I avoid certain foods I avoid flareups. Equally, if I inadvertently eat certain foods I try to avoid (or am tempted to eat certain foods I should through experience avoid) I feel very under the weather and find it difficult to deal with any stress. I think stress causing IBS gets blamed a lot as, other than avoid certain foods, there doesn't seem to be a failsafe treatment for it. It's also interesting that a lot of women develop it later in life, at a time when they're retired when life is generally much less stressful but perhaps the digestive process has deteriorated through general aging.

Salti Wed 28-Jun-23 11:20:22

I was diagnosed with IBS over 30 years ago. It is always stress/anxiety that sets a bad attack off. I used to find that colpermin helped and the doctor prescribed omeprazole in the past. Touch wood when my life is relatively stress free I can eat and drink what I like these days. Try and get rid of your stress.

Grandyma Wed 28-Jun-23 11:25:29

I don’t have IBS but do have various gastrointestinal problems. My worst trigger for flare ups is anxiety. If I have any commitments either social or medical I go into panic mode in case I have a flare up and the panic causes the flare up. I take Lansoprazole every day & Gaviscon Advance also Cyclizine (all on prescription. It’s a bit of a vicious circle and I really do sympathise. My consultant told me that the stomach is like a second brain and anxiety & gastro problem’s are very common. Good luck with the Doctor’s appointment. 💐

DaisyAnneReturns Wed 28-Jun-23 11:57:35

I agree with with sassysaysso. Most people who use low fodmaps to control their IBS have both onions and garlic at the top of their list of problem foods. I cannot tolerate either of them and just would not go near them. Much as I love them it is not worth the pain, or the days of recovery. It may be worth having a look the research that has been done by Monash University, that brought the FODMAP diet about. If you're interested you could ask your doctor if you could see a dietitian. Help in the early stages is certainly worthwhile.

DaisyAnneReturns Wed 28-Jun-23 13:55:44

There are the two often quoted types of IBS, i.e., IBS-D and IBS-C. We need not go into detailswink. However, it does look as if there is more than one cause for what is called IBS.

In trials, they trained sniffer dogs. This was done in the way that they do for some types of cancer. Interestingly, the people picked out as positive for IBS by the dogs, where the people who responded best to a low FODMAP Diet. This seems to have led them to think that there is more than cause.

I have suffered quite badly from anxiety in the past although it seems under control at the moment. I have never been told that anxiety is a cause of IBS. It certainly seems to be a contributory factor though.

If you find you are getting a hangover type state after an IBS flare up, it is well worth looking into fodmaps. Food high in fodmaps is high in fermentable sugars. This does not mean you cannot eat any sugar, indeed, some sugar substitutes are high FODMAP. If you cannot digest these fermentable sugars, they ferment in your gut and ultimately lead to the cramps, pain and constipation or diarrhea individual guts use to try and get rid of the problem.

This fermentation leads to brain fog, hangover sensations and dehydration. Whatever the cause of your IBS water will not do you any harm. I would certainly recommend rehydrating yourself as a first port of call.

Unless your doctor is a specialist in this area I really would request seeing a dietitian. Not all of them have caught up with the Australian research but many of them have.

MayBee70 Wed 28-Jun-23 14:16:13

Grandyma

I don’t have IBS but do have various gastrointestinal problems. My worst trigger for flare ups is anxiety. If I have any commitments either social or medical I go into panic mode in case I have a flare up and the panic causes the flare up. I take Lansoprazole every day & Gaviscon Advance also Cyclizine (all on prescription. It’s a bit of a vicious circle and I really do sympathise. My consultant told me that the stomach is like a second brain and anxiety & gastro problem’s are very common. Good luck with the Doctor’s appointment. 💐

I will say to my digestive system ‘I’m fine’. And my bowel will reply ‘ no you’re not..’. Theatre or cinema trips are a nightmare. As for bus journeys, there have been many times when I’ve been waiting for a bus and, just as it’s about to arrive I have to rush home and then catch the next bus. A day out anywhere means changing what I eat and drink for a week beforehand.

Squiffy Wed 28-Jun-23 14:43:55

I was diagnosed with IBS in the late 90s, plus, I have also had my gallbladder removed (years ago).

I found that onions and I are not compatible!

Also, going gluten free has made a huge difference.

Grandyma Wed 28-Jun-23 14:49:02

MayBee70 I can relate to all of that. I’ve tried all sorts of relaxation techniques but even when I’m looking forward to something my stomach will tell me “oh no, you’d better not risk going there, much safer to stay home”!!

LRavenscroft Wed 28-Jun-23 15:01:53

Thank you so much for all your lovely replies. I really can identify with them and will look into suggestions. Very much appreciate you answering.

sandelf Wed 28-Jun-23 15:11:34

Couple of ideas - anxiety - when its been crippling I've used a YouTube binaural sounds track. Pick one you like, lie down shut eyes and just follow the sounds - 15 to 30 minutes is enough to steady you. Gastro symptoms (agree with the others who've said basically everything affects everything). You are aiming for a quiet predictable life until you are more comfortable. I avoid wheat - it gives me a hangover type of headache - it is a very common sensitivity. Read about L Glutamine - I take a teaspoon of Nature's Best LG powder each morning - keeps the tum happier. Really hope life gets easier soon!

DaisyAnneReturns Wed 28-Jun-23 16:32:16

Squiffy

I was diagnosed with IBS in the late 90s, plus, I have also had my gallbladder removed (years ago).

I found that onions and I are not compatible!

Also, going gluten free has made a huge difference.

Other than adding garlic to those, I would take a bet on many more than know it being lactose intolerant.

I eat gluten free, but it is because I am wheat intolerant not coeliac. Monash (the University that did the fodmap research) don't put it particularly high, but do recommend leaving it out for a period and then reintroducing it to find out if it is a culprit. This is because it is in so many foods, often for no reason other than as a filler, that the safe portion is "layered".

There are some really good Fodmap groups on Facebook by the way.

Fosha Thu 29-Jun-23 11:46:49

It may not be appropriate for you, and you'd have to consult with your doctor, but I have found that a daily 200mg dose of progesterone has made all the difference for me. (2 x Utrogestan 100). With one Utrogestan (or none) I have difficulty tolerating salads and fruit in any quantity, they just seem to go straight through me within an hour, but 2 slows my digestion nicely down to the right level.

HannahLoisLuke Thu 29-Jun-23 11:58:29

I’ve had IBS both D and C alternately. For the last six weeks however it’s changed to all D, needing to go several times a day and accompanied by vicious acid reflux at night in spite of being on daily Omeprazole. Managed to see GP who ordered blood and faecal sample tests ( sorry ladies) All came back clear except bowel cancer test very slightly raised so waiting to see if I have to have another horrible colonoscopy. Last two revealed polyps which had to be removed and sent for biopsy, all ok so don’t know what the problem is but I do sympathise. It governs every day if your life. Had my cataract op a few days ago and just dosed myself with Imodium for the day which isn’t the answer long term but worked for an important day.

Maya1 Thu 29-Jun-23 12:04:52

I'm the same with onions, garlic, salads and apples. The thing that has helped the most is changing to lactose free milk. It was a game changer for me, it tastes the same as normal but what a difference. My bloating disappeared after 10 days or so and the gastric symptoms are a thing of the past.

Quaver22 Thu 29-Jun-23 12:12:01

I was diagnosed with IBS 40 years ago. I manage the symptoms by avoiding onions, garlic, peppers and any spices. I am used to it now but is causes problems when eating in restaurants. I also try to prepare meals with fresh ingredients and I don’t eat ready meals or processed foods.

pen50 Thu 29-Jun-23 12:12:15

I'm under investigatory treatment for Bile Acid Malabsorption. I've not been having a fun time either.

AliBeeee Thu 29-Jun-23 12:39:11

I was diagnosed with IBS about 30 years ago, but can trace flare ups back to my late teens (I am now 64). My symptoms got worse as I got older as did the frequency of flare ups to several days per week with a big impact on my life.
I tried eliminating various foods, with varying levels of success, but invariably the symptoms would return after a period.

Last summer it had got so bad that I paid for food sensitivity testing. This showed me to be lactose intolerant. I immediately removed all lactose products from my diet and within a couple of weeks there was a very marked improvement. It is now 9 months and it has been life changing for me. The only attacks I have had were when I attempted to reintroduce lactose products into my diet, following a reintroduction process I was given at the time of testing.
The only downside is that I can no longer have any diary without an IBS attack 2-3 days later (apparently it takes up to 4 days for food to fully pass through and for me it seems to be 2-3 days). This isn’t much to tolerate given the huge improvement to my quality of life. Non dairy products are available in all supermarkets these days and a lot of mainstream food is actually dairy free, e.g. Flora, McVities digestives and hobnobs. It does mean having to read the back of every packet and having limited options eating out, but, for me, even with the lack of cheese, it’s absolutely worth it.

I have to take calcium supplements now as I haven’t been able to successfully reintroduce any dairy.

Wyllow3 Thu 29-Jun-23 13:15:22

Definitely look into the FODMAP stuff. it doesn't make it go away but my goodness it has helped reduce symptoms. Watch out for too MUCH fibre.
FODMAP is all a bit bewildering at first but is you google a food and FODMAP it will tell you if its low or high.

Also definitely trying low lactose and low gluten over time.

Yes stress is a major trigger for many but not all. I've had 3 tummy ops that doesn't help tho. like a wide zip running down from tummy button to groin.

There is a drug so far not mentioned that has helped me a great deal. I can recommend it very strongly. it's GP prescribed. Its called mebeverine here is the NHS page

www.nhs.uk/medicines/mebeverine/
Good for bloating and bowel spasms.

LRavenscroft if you can mange to find 10 mins and this is within your capabilities (remember its just doing what you can not the perfect pose) then its worth trying this

www.youtube.com/watch?v=kKq-cyumhcc

very easy peasy yoga - she's doing it on her bed!

DaisyAnneReturns Thu 29-Jun-23 13:24:00

Maya1

I'm the same with onions, garlic, salads and apples. The thing that has helped the most is changing to lactose free milk. It was a game changer for me, it tastes the same as normal but what a difference. My bloating disappeared after 10 days or so and the gastric symptoms are a thing of the past.

Mayal, all those foods are high in frementable sugars. Would it be worth asking your doctor if you can see a dietician?

Doctors vary in what they can/will do but you can do it by yourself and GN friends are really good at forming self-help groups. Monash University has a lot on line about how to start an elimination diet and then how to add back the things (or not) that you may find you can't tolerate so you "test" the foods and decide what to exclude or eat in very small amounts, of your personal intolerances.

DaisyAnneReturns Thu 29-Jun-23 13:31:02

Wyllow have you found a low in fodmaps diet has helped you loose weight? I felt like someone had blown me up with a bicycle pump. When I went on the diet, I slowly lost two stone. I find I now have no trouble in keeping it off although I still blow up like a balloon if I mistakenly eat something high fodmap.

MadeInYorkshire Thu 29-Jun-23 13:31:56

My mum is having similar issues - it seems to be dried fruit and berries (especially strawberries) that seem to be the culprits, along with stress and anxiety. She uses Loperamide if gong out, but that can also cause a bit of constipation on occasion.

I've been doing a bit f reading around it and it seems probiotics can help, but also a dietary supplement called Ashwagandha (Indian Ginseng) Have a google, think we may try it ..