Yes I was diagnosed about 13 years back. I don't know whether you have just been diagnosed but in some ways it does get easier to live with as you learn how to listen to your body. I used to never mention it to those but my closest friends but since I have decided to be more open about it I have bee surprised as to how many people either have it or have a close family member with it.
First diagnosed 30 years ago with CFS and fibro. I agree with redrobbin, it does get easier to manage with experience. Initially no one had heard of it, now it seems well known as a condition. It is important to listen to your body, some days the head says yes and the body says don’t you dare. Please PM if I can help at all lucky.
Sadly yes. I’ve had it for a very long time. I was diagnosed around 9 years ago. It’s horrid, the constant pain just drains you. I think the most important thing is to take care of mental health because you need your wits about you to deal with it. Do you have it lg3?
I don't l know, but I am at a loss to understand why I feel so consistently rubbish and in pain so am seeing doc on Tuesday. My limbs are painful, and worse at night, and I feel as if everything I do is a massive effort, feeling tired and out of breath. It has all been much worse since I had flu and covid jabs (no obvious reaction/temperature) and also a denosumab injection (for osteoporosis) in quick succession. So I do not now what is going on - but it is all a blessed nuisance.
I am already in pain with failed hip replacement and previous back surgery, so this is the last thing I need.
I'm sorry to read what you're going through Luckygirl3. I have had all those symptoms for 34 years with M.E. and have now been diagnosed with Fibro as well. M.E. and Fibro often go together, and maybe I've had Fibro a very long time too.
The answer is to pace oneself which is hard to do and took me years because I was used to pushing myself when I was well.