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Fibromyalgia ....

(6 Posts)
Luckygirl3 Thu 16-Nov-23 18:50:51

....... anyone got this?

Redrobin51 Thu 16-Nov-23 21:21:43

Yes I was diagnosed about 13 years back. I don't know whether you have just been diagnosed but in some ways it does get easier to live with as you learn how to listen to your body. I used to never mention it to those but my closest friends but since I have decided to be more open about it I have bee surprised as to how many people either have it or have a close family member with it.

cornergran Thu 16-Nov-23 21:36:11

First diagnosed 30 years ago with CFS and fibro. I agree with redrobbin, it does get easier to manage with experience. Initially no one had heard of it, now it seems well known as a condition. It is important to listen to your body, some days the head says yes and the body says don’t you dare. Please PM if I can help at all lucky.

Gillycats Thu 16-Nov-23 23:28:49

Sadly yes. I’ve had it for a very long time. I was diagnosed around 9 years ago. It’s horrid, the constant pain just drains you. I think the most important thing is to take care of mental health because you need your wits about you to deal with it.
Do you have it lg3?

Luckygirl3 Fri 17-Nov-23 09:23:33

I don't l know, but I am at a loss to understand why I feel so consistently rubbish and in pain so am seeing doc on Tuesday. My limbs are painful, and worse at night, and I feel as if everything I do is a massive effort, feeling tired and out of breath. It has all been much worse since I had flu and covid jabs (no obvious reaction/temperature) and also a denosumab injection (for osteoporosis) in quick succession. So I do not now what is going on - but it is all a blessed nuisance.

I am already in pain with failed hip replacement and previous back surgery, so this is the last thing I need.

Sparklefizz Fri 17-Nov-23 09:28:44

I'm sorry to read what you're going through Luckygirl3. I have had all those symptoms for 34 years with M.E. and have now been diagnosed with Fibro as well. M.E. and Fibro often go together, and maybe I've had Fibro a very long time too.

The answer is to pace oneself which is hard to do and took me years because I was used to pushing myself when I was well.

I wish you all the very best. flowers