Is it always a good thing to be diagnosed with something?

Baggs

Dyslexia, dyspraxia, ADHD and other expressions are an improvement on slow, lazy, clumsy, stupid.

The 'labels' can also result in getting the labelled person more help.

What's not to like?

I agree Baggs.

Hand trembled. Through how to do wash her face clean her teeth but it was important that she did these things. The dementia killed my mom long before before her body died.

I hoped every morning my mom had died in her sleep. She would have hated what she became . Neither of my parents every smacked me . For all dementia destroyed my mom she insisted on wearing a pad but it was like a thick tens lady but Sainsbury's out. But my mom never wet or soiled herself. She always told me when she needed the commode which was by her bed. That's the one thing she had control over when everything else had been destroyed.

I looked after my mom myself . Had equipment to help and proud of the fact my mom never had a sore on her body . I made sure to look after her skin and moved her often.

I know I have deviated from the OP . But I wanted you to know what could happen. The Wednesday of mom's last week she said mom can we have a cuddle and I will sing you the songs dad taught me. So we sat on the side of the bed and cuddled while mom sang for over a hour. It was lovely . I hold on to that memory as after mom had a nap she attacked me worse than before. But I think mom knew she hadn't got long to live and was trying to hold on to life.

On the Friday mom's breathing got worse when the GP came at 1pm I said mom's dieing isn't she. Her breathing had gotten worse from 5am after using the commode she sleep at 12 she shouted my dad's name and went back to sleep. She always said she wanted to be with my dad who had died 10 years before. I kept telling her dad was waiting for her. I couldn't stay with her all the time like I did with my husband. So went into every 10 mins . She died between 12.10 and 12. 20am Saturday morning.

I grieved for my mom when she was alive .

Having a diagnosis is better than living like I did from 1958 until 2022 when I finally had it. I was born disabled but not having a diagnosis didn't stop me living my life but it would have made it easier as I could have talked to others with HPX and know I am normal for HPX not weird.

Ignorance is not bliss it's just ignorance.

So never stop fighting to get a diagnosis either for yourself or a loved one . No matter what the diagnosis is it's easier to face it than blunder in the dark like I did . My husband and I read that many books on various neurological conditions we could have past an exam. HPX has parts which are like lot of neurological condition but nothing fit me exactly .

Having my diagnosis means I know now why my life has been like it has. And talking to others has helped me I am no longer alone.

I know this is a ramble but I can't put it into words to shorten it. It's how my mind works . And before anyone things I am thick. I am not I am clever and that's also a factor in why I was bullied so badly at high school.

Whiff I think you have suffered and survived through far more than I have and my admiration for you is immense.

To have undergone what you have undergone and then -finally - to get a diagnosis, must have brought you such relief.

You put your finger on the key to it all. The relief of knowing that you were not alone and that there are others around like you, suffering from the same problems. This is indeed one of the greatest reliefs of finally being able to put a name to one's problems.