Neuralgia

Hello Haydnpat,
Never had neuralgia, but understand it is extremely painful. Your post was at 3.14 this morning so I can only assume you have had a very bad night . Just seen your post and wanted to make contact , I do hope you are a little better now ? The early hours of the morning are indeed very lonely when you are in physical and emotional distress. Had I seen your post at 3.14 I would have sent a message. I do hope you are receiving appropriate treatment for you condition, hopefully someone on GN will be able to offer you more help than I can . Thinking about you 💐💐

Thank you so much. Yes I've been awake for most of the night in pain. Nothing seemed to help. It has eased a little at the moment. May sleep the day away😁. I'm grateful for your thoughfulness.

have you a name for the rare type of neuralgia you have! several types I think.

I take a syndol tablet for my neck and side of head pain

Greater auricular.

Just googled it , sounds complex and painful! Do hope you are managing today and able to rest a little. Coping with pain is exhausting, hope you are having appropriate treatment/ care and have someone to talk to.

When I used to get awful bouts of very painful neuralgia I took tablets with codeine in. You have to be very careful not to take them for more than 3 days.

I found that eating triggered it each morning so you need to get in some healthy drinks and a straw and do not chew.

Now yours is in your neck and head which might need a different treatment.

If things get unbearable I think you can have the nerve causing it cut, but this you will have to discuss with your doctor.

Take things very quietly, rest up and I hope you will start to feel better soon.

My neuralgia came and went.

Finally if I noticed the start of the dreadful pain I stopped everything and rested.

Hope that helps.

Best of luck.

I have Occipital neuralgia, Electric shock like pain and
Sudden, sharp piercing and throbbing. on side of scalp

I have a horrible stabbing in 1 side of my face ... it monopolieses my whole mood... had it every single month for over 20 year .... lasting for 3 days so the practicability of it told me it was linked to my periods BUT i am now going through menopause and periods have stopped so !!!! Plus I have MS .... so is it hormonal? Is it the MS? I literally have no idea, so I'm pretty useless to advice you to try A B or C, all I CAN do is sympathise with you and hope upon hope that you manage to find a solution and remedy for this horrendous pain . X

Thank you, hope you feel better soon.

I have trigeminal neuralgia. It started about two years ago, just electric shock like pains when brushing teeth, but now much worse
. Last year I was mostly pain free but since January when it flared up again, it has increased in intensity so much that I can scarcely eat or talk, and brushing my teeth is almost impossible. The pain is there all the time and medication is having no effect.

I’m not sure if it’s neuralgia that I’ve had but about 2-3 occasions where I’ve had stabbing pains like a knife stabbing me, in different areas of head, latest being over the small bone around my ears.
It lasted about a week each time, and one occasion went to out of hours surgery over a bank holiday. Was prescribed Zapain, it certainly helped but was on these for about a week from start of pain to finish. Since this incident I’ve been told zapain is usually recommended for something else like bone pain, But it did help me. I was finally able to sleep, these tablets are very very strong for 2 days couldn’t do much else. Good luck in finding the suitable one

I used to have trigeminal neuralgia and, quite honestly, Iunderstand why people think of committing suicide when they have it. It was the worst pain ever. I never got it after I had children but did get migraines instead. I took tegretol but there must be better stuff available now.All you can do is lie down.

I had a spell of migrainous neuralgia, as it was called then, and it was horrendously painful!
They don't call them the suicide headaches for nothing!