pen50
SueBooWoo
Good Morning all
every morning when I get up feel fine (other than the usual aches and pains) I have a cup of tea, take dog for a 45 min walk.
When I get home within 10/15 mins I get severe stomach ache and then end up having several 10/12 bouts of severe urgent Diarrhea.
I'm thinking it could be IBS but Buscopan doesn't seem to help.
I've recently had lots of tests at doctors and everything comes back clear (so nothing sinister).
I also changed from cows to soy milk a few months back in case it was that
Any thoughts / advice please
Sounds to me like you may have developed Bile Acid Diarrhoea (also known as Bile Acid Malabsorption or Bile Salt Diarrhoea - BAM/BAD/BSD). Excess bile salts get into your colon and cause irritation and hence vast amounts of uncontrollable diarrhoea. I have it, and if you do too, my condolences, it is a miserable condition.
Unfortunately, your GP almost certainly will not have heard of it (not a single doctor or nurse at my surgery had). They can do a test for it by prescribing one of the drugs used to control it, Colestyramine (a powder to mix with liquid, cheaper, less effective, and many people find it makes them gag) or Colesevelam (large pills, more expensive, more effective, but off-label as NICE hasn't actually approved it yet). These drugs bind with the excess salts before they get into the colon, reducing the inflammation. They work best in conjunction with a very low-fat, low-insoluble-fibre diet. They're pretty safe and shouldn't do much damage to the rest of you. If your diarrhoea dries up after taking them, you very probably have BAM/BAD/BSD.
Despite what will be written on your prescription, most people find that taking the drugs last thing at night on an empty stomach gives the best results.
Having checked what happens with the binders, you should be referred to your local gastrointestinal department, preferably to have a SeHCAT scan. Good luck with that. I personally have been waiting months for an appointment
. You will have to come off any drugs for a fortnight; one week before taking the isotope, one week after before the actual scan.
This is not IBS though it is usually misdiagnosed as such. So things like a low FODMAPS diet won't help, nor will Buscopan (but some sufferers find that giving up gluten and/or dairy does help). Loperamide (Imodium) will appear to help but often causes knock on problems; best to rely on the binders and save the Loperamide for days when they won't work or where you really can't afford to be glued to a loo.
There is a Facebook group which is, as far as I can see, the only real source of information for sufferers.
The condition is thought to affect one person in one hundred, mostly women (of course). It is grossly underdiagnosed. It can be caused by damage to the colon (type 1), gall bladder removal (type 3), or, as in my case, no apparent cause (type 2).
If it is type 2, it comes with the added joy of metabolic slowdown and hence, weight gain. Many doctors refuse to believe that someone who is piling on the pounds can also be producing litres and litres of diarrhoea. They're wrong.
Absolutely agree with Pen50. I too have it (had it for years, gall bladder out in 1998 and two bouts of campylobacter food poisoning about six years ago brought it on)
The Cholystyramine sachets have totally changed my life.
Hope you get sorted out!