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Health

Still waiting

(63 Posts)
maddyone Mon 03-Feb-25 11:37:05

So here I am, at home, still in pain, and with no idea when I’m going in hospital for my surgery. It has been cancelled for the third time, leaving me feeling depressed and upset.

I’m due to have spinal surgery, a replacement disc at c5 c6 in my neck. It’s taken me a long time to get here. I had pain, slowly increasing for two years before I consulted my rather unsympathetic GP. If I’d known how long it would take to get here, or how serious my pain was, maybe I’d have gone sooner, but the pain wasn’t too bad, and I don’t like going to the doctor, so I ignored it until I could ignore it no longer. Then followed a further year of tests and meetings with various people in the NHS before a consultant said I should have a diagnostic MRI. Following that, I had my diagnosis.

I finally saw a spinal consultant a year ago. Initially he recommended a steroid injection into my neck, which did nothing. Then he said I need a disc replacement as the disc is crumbling and damaged (why bother with a steroid injection because that was never going to heal the disc) and it would be three to four months wait for the surgery. That was eight months ago. On Friday last week, my surgery was cancelled for the third time. My pain has increased considerably over the last few weeks, I’m in permanent pain, and I’m feeling extremely depressed and upset about it all. I understand that the hospital’s IT was taken down a week ago in the storms and so they’re rearranging some surgeries, but this is my third rearrangement. I have no idea when my next date for surgery will be, and I’m in considerable pain.

I’m just sad and fed up.

bathsalts Wed 05-Feb-25 12:04:45

So sorry to read this maddy. Are there any small things you can do to raise your spirits at all?

Furret Wed 05-Feb-25 12:33:38

I’m so, so sad reading this maddyone. I walked around for 6 months with my arm hanging useless after a 4-part proximal fracture of the humerus refused to heal. In pain.

In the end I threw a wobbler. Not on purpose but because, like you, I just couldn’t take any more. I was looking at the local river and thinking …….

If you can summon up the energy to make a huge fuss then do so. You have my sympathy

bathsalts Wed 05-Feb-25 12:38:38

Oh Furret, that's so sad. That's the irony, when you are low you can't think straight or make a fuss.

maddyone Wed 05-Feb-25 23:47:36

Thank you for your replies everyone. I have good news ; I was phoned today and given a new date, so my surgery is now scheduled for 19th February. That’s only a two week wait, which is a shorter wait than I imagined it would be. All being well, it won’t be cancelled again. I’m so relieved it should be happening at last.

Ferret your situation sounded dreadful. I’m assuming that after you made a fuss, you got the surgery you needed.

I’m so sorry about all the people on here who have posted that they are waiting, in pain, for treatment. I can only offer the same advice as was given to me; ring up at least weekly. I rang on Monday afternoon. I don’t know whether that made any difference, but it can’t have done any harm, since I’ve now got my date.
🤞it will be straightforward this time, with no more cancellations.

Grammaretto Thu 06-Feb-25 00:22:25

That's wonderful news maddyone!
Not too long to go now.
Wishing you all the best for a successful operation and the end of your painful wait.
🤞

Aveline Thu 06-Feb-25 07:17:50

So glad to hear this maddyone. Do let us know how it goes.

Katyj Thu 06-Feb-25 07:27:11

Thank goodness Maddy. It’s so good just to have a date. My friend decided to pay privately for her foot op, it was supposed to be today but has been cancelled as there wasn’t an anaesthetist available, hopefully next week now. Good luck.

NotSpaghetti Thu 06-Feb-25 07:58:49

Can I suggest you call your consultant's secretary and say you would be delighted to accept a last minute cancellation as you are in SO much pain.

They won't know if you don't tell them.
My husband was offered surgery after a long wait by having that noted.

SueDonim Thu 06-Feb-25 13:52:33

That great news, Maddy. 🤞 for 19th Feb!

escaped Thu 06-Feb-25 14:02:17

Goodnews. Onwards and upwards Maddyone.

Jaxjacky Thu 06-Feb-25 14:07:48

Good news maddy

NotSpaghetti Thu 06-Feb-25 16:08:17

Sorry Maddy - missed your post late last night!
Great news!