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Let Your Voice Be Heard!

(58 Posts)
winterwhite Wed 19-Aug-20 09:36:56

Hospital care is excellent when you get it, it's the GP referrals, and waiting lists that are the problem, and of course after care.

Interesting piece in papers today about slowness of dementia research being due to unsuitable modelling of tests that don't sufficiently allow for participants' obvs inability to comprehend, fall out of the trial for that reason and so on. Sounds plausible to me, and a good e.g. of healthcare for older people being allowed to drift along.

sparklingsilver28 Tue 18-Aug-20 21:07:45

Thank you all for your response and pleased to hear there have been positives. Sadly, this is not reflected universally. When I learnt from "Panorama" and saw the distress of care workers left to watch very sick and dying residents in great pain, left without medical care, it was almost impossible to believe this had happened in England.

Dr Cathy Gardner, whose 88-year-old father Michael Gibson died on 3 April at the Cherwood House Care Centre in Oxfordshire, Herself a doctor, and Chair of East Devon District Council, wrote to the government asking them to accept responsibility for its failure to protect vulnerable people in care homes. The response, her action was a waste of government time, where upon she has proceeded to sue the government for its failing. I have supported her campaign since I believe the government did fail to act appropriately and is indeed responsible for the many deaths in care homes.

What concerns me further, and why I have become a member of Silver Voices (www.silvervoices.co.uk): the failure to act appropriately a clear warning, in respect of future action with regard to NHS services, and its disproportionate adverse effect likely to have on vulnerable groups including the elderly.

ayse Tue 18-Aug-20 17:45:54

Sparkling Silver, I too agree with all the points made in your post. The NHS is not alone in being shifted online. As usual, it affects the poorest in society and to my mind is creating an underclass that find it very difficult to access help and information.

NHS 111 gives very basic information as do many websites and it is increasingly difficult to talk to a person about health concerns, amongst other things.

Our local authority has to be contacted via the net. It makes me so cross, wasting huge amounts of time negotiating websites. For example, a drain cover had been removed and I spent an hour trying to report it. This particular part of the site did not work. Eventually I wrote to my local councillor and it was sorted within 2 days! Eduction is in a similar position!

Sorry to hijack this thread for the grumble! This is called ‘progress’. Do you want to talk to Alexa about your health. Who is listening?

It’s very 1984!

Gwyneth Tue 18-Aug-20 17:26:48

Sparkling silver
I was very interested in reading your very informative post and absolutely agree with everything you say about the NHS. It is now very difficult to see a GP face to face and this worries me greatly. You’re right in saying that the opposition parties are not challenging this and perhaps we should all make the effort to write to our MPs before it is too late.
My brother sadly died about 9 months before Covid but I noticed then that his GP and the primary care trust were trying to resolve problems by phone when they most certainly should have been seeing him face to face. As a result he suffered a lot of unnecessary pain and distress. Covid has exacerbated this change and we need to challenge it.

lemongrove Tue 18-Aug-20 16:58:56

I don’t know about this year ( with Covid) but certainly in the last couple of years, family members and friends ( aged 75 to 87) have had excellent care and outcomes for different cancers in the NHS.

EllanVannin Tue 18-Aug-20 16:46:38

I must admit that the handful of times I've had the misfortune of being admitted since 2006 ( never before that time ) I've had the greatest of care from everyone concerned. My last time was in December for about 7 hours in resus. Nobody could do enough and I'm ancient grin
Well done Arrowe Park.Wirral.

sparklingsilver28 Tue 18-Aug-20 16:27:28

BRING BACK THE REAL NHS!

The Coronavirus pandemic has not only saddled the NHS with an unprecedented backlog of tests and operations, but the crisis is being used to force through fundamental changes in the way our health service operates, particularly through increased privatisation at all levels and the moves towards remote diagnosis. The opposition parties need to call time on these insidious policy and political changes, otherwise our NHS in 2021 will be a quite different animal than that before the lockdown.

WAITING LISTS

The challenges are enormous. The obsession to “protect the NHS” and build new Nightingale hospitals, led to a complete halt of many normal NHS functions. Cancer screening programmes were suspended, leading to about 2 million people in the UK waiting for routine tests. It is hardly surprising that there was a drop in urgent cancer referrals of 21% between June 2019 and June 2020, 40,000 less people referred for urgent cancer treatment. There was a staggering 43% drop in urgent breast cancer referrals during the same period. Cancer Research UK also point out that 6000 less people have been receiving chemotherapy as booked sessions were widely cancelled. The death toll from the delays in diagnosing and treating cancer will be huge.

The waiting lists for elective surgery are now almost unbelievable (non-urgent operations like hip and knee replacements and removing cataracts, involving mostly older people). The waiting list stood at the record level of 4 million before the lockdown, it is now estimated to stand at 8 million and could reach 10 million during the winter months. These operations may be non-urgent, but the pain and suffering caused by delays running into years should not be underestimated.

Silver Voices believes that there should be an emergency action plan, and the necessary funding, to bring waiting times down to levels lower than those at the start of the pandemic. Why are the opposition parties not making this demand and publicising their own proposals?

PRIVATISATION

The Government is taking advantage of the crisis and emergency legislation to increase, significantly, the role of private companies in the NHS, often without a tendering process. Private companies were given lucrative contracts to set up and run virus testing centres and laboratories, build Nightingale hospitals and procure personal protective equipment. The expertise of local public health bodies was bypassed in setting up a centralised ‘track and trace’ system run by private companies. Every bed in private hospitals was block-booked by the NHS in case they were needed, providing a handy cushion of support for the private sector during the lockdown. The NHS is now discussing a ‘volume-based’ deal with the private sector to provide up to 2 million procedures a year to the NHS. Why are the Nightingale hospitals not being used instead to build up public sector capacity?

This drive to privatise as the preferred policy is also evident at local community health level, at least in England. In some areas services such as health visiting and district nursing are run by the likes of Virgin Care, patient transport is privatised, eye infections are treated under contract by Specsavers and other private opticians; and mental health therapy is run by independent operators. Some may argue that the private sector can provide a better service, but our argument is that these changes are being forced through without public debate. They just happen without consultation. And once privatised it will be much easier to start charging for specific services.

VIRTUAL NHS

The final reconfiguration of our NHS which concerns us most, as representatives of older people, is the rush towards a virtual or online health service. Under cover of the lockdown there is a real danger that doctor-patient physical consultation will become a rarity in the future. The Secretary of State, Matt Hancock recently stated: “all GP consultations should be remote by default”. We receive many reports of it becoming impossible now to book an appointment with a doctor, having to explain personal details to a receptionist and then being fobbed off with a phone call, perhaps with a nurse or pharmacist. Sometimes appointments have to be made online, with no clear alternatives available. The dangers of missed diagnoses, particularly with older people who may be reluctant to go into personal symptoms on the phone or by Zoom video link, are obvious.

Our view is that, for older people at least, there should be a right to a face to face appointment with a doctor. If people want to choose alternative communication methods that is fine, but the right to an appointment should be absolute and people should not be bullied into accepting a virtual or telephone option.

The policy positions above are in line with previous consultations with members. But as we have had such a large rise in membership, about 1000 in three months, we want to check that we are still in tune with the majority of our members. Because of our increase in income we have now afforded a contract with an independent survey company, SurveyMonkey, to conduct our future polls and surveys. This means that polls will be conducted anonymously, with only the overall totals being presented to Silver Voices, and it will make it much more efficient and democratic to involve our members in the development of our campaigns and policies.

sparklingsilver28 Tue 18-Aug-20 16:21:59

The concerns expressed by recent “Panorama” programmes and Silver Voices regarding NHS care for the elderly raises very serious issues. It has been quite clear best treatment and care is not being made available to older patients based on age alone. There is however an example before us of what can be achieved with the appropriate care. HM the Queen 94 and her husband 99, I am sure no GP or NHS service would ever measure their healthcare worth based on age. It really is time to fight for an NHS that serves the needs of all patients. Many senior citizens will have paid into a healthcare/social system throughout a working life, and many still contributing via taxation; and discrimination on age infringes human rights and is also illegal. Make your voice heard on there behalf.