I have a friend who has been fighting to be allowed to keep her mother in a good home close by to where the mother's house is, so that she can still have visits from her friends, as on a good day she still recognises them.
The friend has moved into her mother's house. Interestingly she found out several things -
Firstly, that if you have a child/dependent living in your house, they won't be forced to move. They will just try to make you think you have to, because they need the money to boost the funding so much. Another option is to have the money from the house released early, and the house only has to be sold on the actual death of the owner.
Secondly, it is so hard to find a space to move someone to from a good home to a cheaper one, that once all their savings have been spent, funds will most likely be found from somewhere to continue their stay at the better place. An interview is necessary for this in most cases, at which your case for their staying has to be put forward.
It has, however, cost her many hours in talks and negotiations that she would have found it hard to have, if she had been living hundreds of miles away.
Her mother was by no means poor, she had substantial savings but it hasn't taken very long to work her way through them. My friend had tried caring for her herself for a year, but after various escapes from the house and falls in the night despite stairgates etc., she just couldn't cope. Her mother became nocturnal, my friend, who has ME, a wreck.
And of course, this is what most of us would be having to cope with if no system existed at all. I have seen wives and husbands separate under the strain, husbands left at home with sulky teens while distraught mothers are sent off, having had to leave work, to care for elderly relatives. As I tried to care for my own father after a bad stroke when I was only in my 20s, with a small child, I know how very hard it is. Please God my own children are never put through that.
So I would like to see something sorted, an increase in NI contributions for a start, but would really like the subject of voluntary euthanasia brought up. It's bad enough when DNR is ignored (which has just happened to another friend's mother, and he is distraught as she is being force-fed by tube) but what happens when there is no-one in the person's family to fight their corner, to sort out the paperwork? To replace their old underwear and remind the staff that they have an allergy? We need care, but with dignity. As for leaving the children penniless - well, as long as they have incomes and rooves over their heads, they are fine for now. If they are living with us, they should be allowed to continue to do so. I bet they would rather not care for us, than be left money.