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Coronavirus

Long Covid or just getting on a bit?

(55 Posts)
Shinamae Wed 13-Jan-21 11:41:24

Because of my job I had a Covid test back in April and it was positive, I was asymptomatic and felt quite lucky to be that way as several of my colleagues were very very ill with it. I now find that I have very bad aching legs in the morning and sometimes it’s the whole body and fingers and toes get pins and needles, I am loath to go to Dr Google but have spoken to my doctor and there is no way of proving what it is at this time. I am covid tested every week with two tests one being the lateral flow I’ve been negative ever since....

nadateturbe Sat 16-Jan-21 08:25:25

I'm sorry to hear how you are Merryweather. Especially with three young children. I was lucky that mine were adults when I developed both ME and Fibro. I, like thousands of others, have lived with it for fifteen years, with practically no help or even recognition for a long time.

Cp43 Sat 16-Jan-21 07:57:43

I think it’s covid related. I had Covid in March. The upside is you now have antibodies and like me you probably lost weight. (Now back on again with avengence). The test i had in May showed high % of antibodies which was reassuring but I wanted to know how it would wear off so had another test in November (I paid privately) to see what level it had fallen to; it was much lower but I still had antibodies but they will fade.
I imagine by now I’ll be back to square one but apparently your body has T cells that remember Covid so if we do get it again it won’t be as severe at first time. (I hope).
It has left me with shortness of breath and fatigue, Im now anxious and worried which I wasn’t before, , it doesn’t help being cooped up at home either. My husband is no help he is a bit of an Ostrich. You should find a couple of sympathetic friends to speak to, have nice food to eat and find a hobby I’ve started painting by numbers which is therapeutic. Good luck.

Cp43 Sat 16-Jan-21 07:41:18

Presumably you’ve been tested for Fibromyalgia/Lupus/Rhumatois arthritis.
My elderly friend developed it through stress but it did clear up after few weeks.

Lucyloo12 Fri 15-Jan-21 08:51:24

Hi all, I had Covid at the end of October, symptoms lasted 4 weeks. Now my anxiety and depression are back.... had been fine for over 2 years, but now worse than ever. Not sure if it is directly covid virus related or the life we need to lead to prevent it spreading.

Shinamae Thu 14-Jan-21 22:37:51

Thanks Win ?

win Thu 14-Jan-21 20:57:03

I thought this might help some of you

HOPE LONG COVID
Virtual HOPE Programme for People Living with
symptoms of Long Covid
Most people who had mild symptoms, such as a high temperature and cough, recovered quickly and were able to resume their normal lives after a few days. But for some, the effects of the virus can last for weeks or months. This has been labelled “Long Covid”. The lasting symptoms of coronavirus can include:
fatigue
breathlessness
anxiety and depression
palpitations
chest pains
joint or muscle pain
not being able to think straight or focus (‘brain fog’)
Due to some of the symptoms which may result in difficulty concentrating for a long period of time, we think it would be best to run this course over 10 weeks and each session will run on a Tuesday between 10:30-11:30am.
To attend this course you will need:
Access to the internet, access to Microsoft Teams, a Webcam and Microphone, a PC, Laptop, Tablet or Smartphone
Register your interest today!
To register or for more info, please call 01803 210493 or email [email protected] www.torbayandsouthdevon.nhs.uk/services/hope-programme

ElaineBK Thu 14-Jan-21 19:41:22

My daughter tested positive in October, only symptoms was a heavy cold. She has been experiencing pins and needles in her feet. Blood tests show she is low in b12 and protein in blood. More blood tests on Tuesday

Leolady73 Thu 14-Jan-21 18:42:45

As a retired nurse, my advise would be to talk to your doctor and hope he suggests a blood test. You could have a vitamin deficiency or something easily sorted. Best wishes

Shinamae Thu 14-Jan-21 17:34:29

l am still working just part time 24 hours a week in the care home. The residents have very recently all been vaccinated and so have the staff..... so fingers crossed ......

Mwdebbie Thu 14-Jan-21 17:09:54

I had C19 in October and was very poorly (at home) for two weeks. No breathing issues or cough but terrible gastrointestinal symptoms. I crawled around for the next couple of weeks and remained exhausted but started a few hours work a week at home. I kept trying to increase my activity as recommended by my GP and also on websites re chronic fatigue. However it is now known that this is not the right advice re C19. Rather it is to embrace ‘pacing’ and it took me another good few weeks of learning the hard way what this means. I had excellent and very direct advice from a physio and OT (both family members) who were clear that my symptoms were not ‘long covid’ but that I’d had a serious dose of a nasty viral illness and it would take time for my body to heal. I see C19 as a rotten virus with a long tail. I am fit, very active, don’t smoke or drink and was laid very low. I’ve never felt so ill or for so long, in my life. 3 months to the day since I first fell ill, I started to feel ‘myself’. I did my first Zumba Gold class this week, a great milestone, reduced the energy I put into it by about 50% and felt good afterwards. That’s the key with pacing, to stop before you have to, keep some reserve in your tank. I’ve set aside targets like building up to 10,000 steps a day in 1,000 step increments, am relaxing, taking care of myself, recognising what a brute of a year I’ve had, and enjoying as much gentle self care as I can. I hope you feel better soon, and if you’re currently working, I salute you! I’m writing up some research and can do that a few hours a day, but that’s it x

Frogsinmygarden Thu 14-Jan-21 16:34:33

I too suspect that I have had Covid at the beginning of December. Since been tested negative. I also have symptoms of 'long Civid' such as pins and needles in my hands, chronic hives and various other problems. I'm not sure if I still have antibodies or not. I already have chronic health issues so I'm feeling sorry for myself but I'm grateful to be alive.

Whatdayisit Thu 14-Jan-21 16:03:51

Thankyou FannyCornforth. I have had blood tests and xrays all clear for everything. The nurse was very sceptical that anything was wrong with me.
Symptoms are easing now 9 months on or because of the pill! Take care.

Nvella Thu 14-Jan-21 14:33:54

My younger son had what seemed to be Covid in March with all the standard symptoms and he has been left with a weird thing - he is now completely allergic to beer - gets a terrible headache and feels very sick after a very small amount. He is ok with wine or spirits! I thought he was imagining it but then a friend’s daughter in law has the same symptoms but with all alcohol

Rubred1515 Thu 14-Jan-21 14:14:45

I had it well suspected but I had symptoms at the time not yet announced so I knew I was imaging it but the long term effects left me so tired and now being treated for angina . It’s definitely a horrid thing Covid 19 & long covid

GoldenAge Thu 14-Jan-21 14:10:18

Shinamae - Long Covid clinics have been set up since as long ago as last May and the symptoms that people are reporting and living with are incredibly varied. Speak with your GP and ask where your nearest clinic is. Several people I know (including my husband) had aching legs as their first symptom of Covid before even the cough we are all told to look out for. One thing's for sure, you need a full blood test.

Shinamae Thu 14-Jan-21 13:50:32

Really? My doctor never mentioned that......

Helenlouise3 Thu 14-Jan-21 13:44:50

I believe that you need to have a blood test to be diagnosed with long covid

Destin Thu 14-Jan-21 13:41:19

In October 2019 I came back from a couple of weeks in Italy with a sore throat and feeling ‘weary’. It developed over a period of a week into what I now realize was Covid ....the symptoms were the same. My doctor said it was viral and that antibiotics probably wouldn’t help, just stay in bed! This was before Covid has been identified by the WHO. After about two weeks the worse of the symptoms eased off - enough to get back to ‘normal ‘ living, but I still felt tired and my body ached. Three months later I still didn’t feel fully recovered ...tired, muscle aches, headaches and another strange symptom, itchy scratchy sore eyes. So I know from experience there is a condition known as ‘long covid’ and I know it didn’t finally leave my system until 6 months after I fell ill.

blondenana Thu 14-Jan-21 13:06:38

I am sure i had Covid last February, i felt exhausted, and could hardly lift my legs, I had an appointment and I really thought I might collapse on the way, ,[don't drive]
I always had lots of energy and suddenly had none,
I did have a cough, but not persistent, and only just feeling better these last 2 weeks, but I do feel sometimes as if I can't breathe deeply, and then feel worse because I go into a panic
I also had aching arms couldn't understand why suddenly,
Although I did have test because of breathlessness and I came back negative, [this was last July]
A local councillor had a test recently and It came back saying he had antibodies,which i guess must mean he has had Covid at some point,so if i had it in February, surely my test would come back in July as having antibodies
Very confusing as they keep adding more symptoms, which really could be anything, and now another new strain from Brazil it seems was found in Japan from air passengers landing there

grandtanteJE65 Thu 14-Jan-21 12:37:31

Get hold of your doctor again, and ask what he suggests you do about these symptoms.

They may not be Covid-related, but obviously something has changed, so make an appointment and have a check-up.

earnshaw Thu 14-Jan-21 12:33:22

a lady i know had covid way back March/ April quite poorly but not hospitalised, she has still not fully recovered, very very lethargic, very unlike her also with vague aches and pains and depression, after different tests etc it was decided that it was due to covid, my son in law had it , the only symptom he had was an extremely sore throat, he was tested positive and has left with continuous smell of smoke, strange,

Plunger Thu 14-Jan-21 12:15:41

Polymialger?.

Merryweather Thu 14-Jan-21 12:07:59

I forgot about the wonderful neurological symptoms - fax up thread details those very well. It's exhausting, there's no end. It will never be ’better’. I'm not sure how many more years of this I can endure.

Merryweather Thu 14-Jan-21 12:04:11

Post viral symptoms are horrid. I developed it after pneumonia over 10 years ago. I'm still not well. It's left me with ME and fibromyalgia. I have to nap every few hours that's if I can get up. The pain is unrelenting. It feels like my bones and being grated with a crease grater, my joints being pulled apart, loss of sensation and hypersensitivity- it's quite marvellous ?. I have three young children too. I can not do so many things with them I would love to.

I hope for your sake it's not, I wouldn't wish it on my worst enemy.

Shinamae Thu 14-Jan-21 11:35:10

Fantastic response from you all thank you again so much ??????