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DH recently diognosed with Alzheimer's

(30 Posts)
Shelflife Fri 03-May-24 10:48:59

My DH was recently diognosed with Alzheimer's disease. I have been aware of problems for some years. These are early days and I am already stressed. He is hard of hearing and refuses to wear his aids , I am constantly repeating myself because he either can't hear or has forgotten what I said. There are occasions when he is irrational and unreasonable. I am scared for our future and devastated to be losing the love of my life. He is very muddled about dates and times and I find I am overseeing most aspects of his life - and this is just the beginning!! Today I am feeling rubbish and just feeling sorry for myself. Thank you for reading.

welbeck Sat 04-May-24 18:04:17

you can get a small whiteboard, about A5 size, with erasable pen, from PoundLand and similar stores.
look in the art/toy/stationery sections.
this i v useful when communicating with anyone hard of hearing.
i wish you both all the best.

AskAlice Sat 04-May-24 18:26:44

Shelflife, so sorry to hear this. My thoughts are with you.

My Mum died 4 years before my Dad but she was sharp as a tack in her late 80s and coped amazingly with Dad's dwindling capabilities. Unfortunately Dad had Alzheimers from a few years before she died and once she was no longer with us all it fell on my brothers, myself and my sister to do whatever we could, which involved moving him closer to us all so that we could visit between us every day and arrange carers. We did this willingly, so I am sure that your AC will help if needed as you have said you are a close and loving family. We never saw it as a burden, we loved my Dad. I do understand your reluctance to rely on them too much though. They have their lives to live and we were lucky that we all lived within 20 miles of each other and could together do what we hoped was for the best for Dad in the circumstances.

As I said before, I am sending you all my best wishes and hope that you will find the support you need.

SillyOma Sat 04-May-24 18:30:34

I am in exactly the same situation as yourself. Recent confirmed diagnosis but the signs have been there for a while. I know how you feel, it's like the life we knew has ended and we are now responsible for absolutely everything. I get very frustrated and really down at times but not much we can do. I need to get in touch with some organisations and see what is on offer but at the moment everything is just a challenge. We will get there, it just takes time adjusting to a different way of life and making the most of it.

silverlining48 Sat 04-May-24 18:55:03

Hello Oma if you havnt already contact Alzheimer’s who have a lot if infomation and support for people with Alzheimer’s and their carers. Take care of yourself, flowers