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Care & carers

she does need to move to care home.

(56 Posts)
michellejane1 Sat 01-Jun-13 14:44:48

hi everyone,
mum is 98, yes an amazing lady. she lives alone 55 miles away from me. my sister lives in nz.
has always, always said from about the age of 50, 'don't you ever put me in a care home'.
Now she has been diagnosed with dementia.

Well the time has come when we all think she would be happier, less lonely and safer in a care home. But how does one go about arranging this. she does not have enough money to be self funding.

has had an assessment from social services who decided in their wisdom that mum was quite capable to look after herself at home, without any help from s.s. to be fair, mum did manage to put on a very good show when the social worker came, but almost collapsed into her chair when they left.

I have just had to have her gas hob turned off as she was using the gas to heat her electric kettle. twice this happened, i reported it to social worker who said get her a microwave. but i had to throw mums microwave out as she did not understand how to use it. i.e. cook for 2 mins. on packet, mum would cook for 20 mins. resulting in black smoke filling her kitchen. very unsafe, but social worker did not register that. Mum is now just cooking ready meals in electric oven, but i feel before too long she will loose her ability to do that.

any ideas. do i just say to s.s. that i think my mum should move to a care home, or do i, as one social worker suggested to me, wait for a crisis to happen.

Mishap Sun 06-Jul-14 18:26:22

Galen - I am sorry that your recent experience has been so bad. We had a similar thing with Dad where we knew that they were ignoring Dad's bell - indeed they often just switched it off - it was a disgrace. But we got him out of there - it was a place that the health authority had chosen and paid for, not our choice. I made sure the HA knew what rubbish they were funding.

He went home for a short while with a huge package of care, but then went to a care home that we had chosen with care and he was very happy there.

NfkDumpling Sun 06-Jul-14 20:53:02

Reading all these posts brings back to me all the problems my parents and I had with Social Services when dad's cancer took control of his brain and mum couldn't cope. Promised care packages didn't materialise, visits and letters to/from GP didn't happen and my poor parents were put through hell. This was eight years ago. Then Age Concern were the greatest help.

The experience was so bad that when mum became really ill two years ago she refused any contact or involvement with Social Services and we managed without them. Support and advise from you GNetters was my lifeline (thanks Mishap) and helped salve the incredible feelings of guilt that I couldn't sort things out and make it better.

Part of the problem I think is that these days many of us are so much older when looking after ageing parents than our parents were. My mum was mid 40s when she was racing around after her parents and my father was fit. So many of us are caring for grandchildren and/or poorly partners and/or are not too fit ourselves. Social Services, GPs and the NHS don't seem to be able to take this on board. I do understand that most Social Workers are kind, caring people, but the pressure they are under and lack of resources means that if an offspring (especially a daughter) is on the scene they assume undivided help is readily at hand and it takes determination, anger and hysterics to get help.

Getting the GP on side is good, Age Concern are good for filling in forms and Norman Lamb MP is good too and likes to know of the problems being faced as it gives him an insight as to what's happening on the ground.

ZelmaMeyer Fri 08-Jul-16 12:08:49

Elegran Fri 08-Jul-16 12:42:22

New Jersey is rather a long way to send our aged family members, ZelmaMeyer - and in any case joining GN to advertise your business is against the rules.

Christinefrance Fri 08-Jul-16 13:32:27

Think I have mentioned this before but check if there are Admiral Nurses in your area. They specialise in the care of people with dementia and have dedicated staff to support carers.
Good luck and take care of yourselves too -that's for all the carers out there.