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Care home have asked Mum to leave

(93 Posts)
Nana3 Sat 05-Mar-16 14:25:37

Mum went into a residential care home in October, first for respite then permanently. They knew she had Alzheimer's. In November Dad died, grief caused mum to stop speaking, eating and she lost her mobility. She was prescribed an antidepressant and is now very slightly better. Last week the manager told me that they could no longer meet her needs because of her lack of cooperation and the need to hoist her. She has been reassessed but doesn't need nursing care. I have been to see a few homes today and they are also not able to take people with mobility problems although I was told as their residents deteriorate they don't ask them to leave. Mum is 92. I am struggling, I feel out of control of the situation, not sleeping, worrying. Social services say they will help me find a place which is something.
I feel mum is having a very shabby deal, what do you think?

Babyboomer Fri 11-Mar-16 18:08:49

I'm still planning it (googling brings up various templates) but thought of stipulating not being resuscitated, and not having surgery or other invasive treatment. I think I read somewhere that a directive requesting no food and drink has no legal force - and it sounds a miserable way to go, too, doesn't it? I also think you can request sedation if your behaviour becomes aggressive or abusive to others. Further research needed - hopefully I won't need it just yet.

Nana3 Thu 17-Mar-16 17:38:30

I've been visiting Mum every other day at lunch time to help her to eat, I have 2 friends that go to help her once a week too. Since my dad died in November she has not spoken and stopped walking and now she has stopped eating and drinking more or less.
After today's visit I feel so sad and awful, my poor Mum, to be so unhappy and I can't get through to her or help.
She was assessed, without my presence, as not requiring nursing care and on the list of her problems is Parkinson's, does anyone know if this qualifies as an illness that needs nursing care? Years ago her GP said that by her gait he could tell she had Parkinson's but it's never been mentioned again.

Nana3 Thu 17-Mar-16 18:20:54

I've just read about a helpful GP on another thread. I am thinking that it would be a very good idea to ring my Mum's GP, she must be able to help and intervene on Mum's behalf.

jogginggirl Thu 17-Mar-16 18:33:40

Oh Nana3 - I'm so sad to read this thread ? My DM has dementia and is still at home - we are getting good care/support from SS at the moment. But, my saving grace is her GP who is wonderful with her - It might be a good idea to speak to your DM's GP - if nothing else, maybe she can give you some comfort. I wish you well in the coming days/weeks .... ❤️

Nana3 Thu 17-Mar-16 22:19:06

Thank you jg. I will let you know how I get on.

Nana3 Fri 18-Mar-16 22:55:51

GP had no time to speak to me today and will call me next Wednesday, she works part time so I can't do anything but wait.
Also managed to speak to the District Nurse who did the assessment of mum's needs and she has offered to do it again in two weeks with me present. She agreed with me that the Parkinson's needs more investigation because there is medication for it.
A little progress but no real solutions yet.

jogginggirl Sat 19-Mar-16 08:02:07

Good progress Nana3 - gathering knowledge and support improves our confidence and spurs us on.
I have been very pleasantly surprised and extremely grateful to have met some lovely people in my quest to help my DM. I hope your chat with the GP is a success. I always find it useful to have my questions written down and in front of me - it's easy to get flustered and forgetful when we know time is limited.
It sounds like you have the DN on your side too smile
Try to do something nice for yourself this weekend flowers cupcake

Nana3 Sat 19-Mar-16 08:17:06

Thank you so much, I will jg, you too flowers

Witzend Fri 01-Apr-16 21:49:22

We had an aunt in an 'ordinary' residential home where they asked us to move her when her behaviour started to bother the non-dementia residents. To be fair they had made it clear from the outset that this could be the case, but she was all right for the first couple of years.
She had begun to be a bit aggressive or overly 'in your face' with non dementia residents, who were mostly by definition frail and vulnerable, plus she was going into other people's rooms and helping herself to things - entirely to be expected with dementia, but of course the people without dementia couldn't be expected to put up with it.
We thought that moving her would be a nightmare, but the new home was lovely and in fact she settled there very quickly.
My mother went straight into a specialist dementia home, but then she was pretty bad by then - short term memory non existent and could no longer even make herself a cup of tea, so an ordinary residential,home would never have been an option.

debbie15 Fri 01-Apr-16 22:01:14

Hi I am sorry the way your mum has been treated.I have worked in a care home for dementia and a home where residents need nursing care and I must say the ones I worked in the staff where great and hoists used and dementia residents unfortunately do lose mobility as do some eldery residents.but seriously to ask you to find another place for your mum is totally unacceptable. Surely all care home staff should be trained to use hoist and have a hoist available .I personally would ask why staff not trained and why no hoist?? I hope this helps at such a difficult time surely we should look after the elderly not cause stressx

Nana3 Sun 03-Apr-16 10:34:20

Thank you for your replies witzend and Debbie
We seem to have turned a corner, mum can transfer to the wheelchair without the hoist now. Also she has started to speak and sometimes eat independently.
Nothing from care home manager to say they have changed their minds though.
I suppose it's because they still have to hoist her to the toilet and into bed.

Nana3 Wed 04-May-16 09:45:02

Hello again, I just wanted to let everyone know that my Mum is much more aware now. It's lovely that she speaks to me and enjoys having visitors. She is very much in the present though and the care home manager is still insisting that I find another care home for her. She told me yesterday that Mum's dementia is worse because she asks to go home and the ethos of the care home is that residents should be company for each other. There is no chance of her being at home on her own again it would be a backward step for me, it doesn't stop me feeing guilty though.
I have been taking my time with my search but will I will have to try a bit harder. I have no confidence in her present care home anymore.

CarlyJ12 Wed 11-May-16 15:03:46

Message deleted by Gransnet for breaking our forum guidelines. Replies may also be deleted.

Alea Wed 11-May-16 15:05:21

hmm?

Nana3 Wed 11-May-16 15:27:30

Carly thanks for trying to help. I read the essay, so many of us have similar stories. The carers links are not right for us. Good luck to your friend.

rachelmi Wed 11-May-16 15:32:01

Same scenario with my mother in law. She was 90 years old with and began to get 'difficult' with people in the home. One poor chap was unhappy as she thought that she was married to him!! But she hardly knew him. We did find a great new home to her, with wonderful staff, and although was not like a hotel, (as the initial home was) she was very comfortable and spent her last months in a much more appropriate and caring place. With hindsight we were so glad she was asked to leave the first home. My advise is to keep searching and trust your gut instincts.

Nana3 Wed 11-May-16 15:41:29

Thank you rachelmi. That's very reassuring. I'm glad that it worked out for your MiL, also my condolences.

CarlyJ12 Thu 12-May-16 11:59:05

Hi. Good luck finding the right place for your mum. It's so hard when people are in this situation to know where to turn and it seems to be a common problem. Not sure why the comment was deleted? But anyway glad you saw it x

durhamjen Fri 20-May-16 11:48:28

theconversation.com/heres-what-people-in-their-90s-really-think-about-death-58053

This is an interesting article I have just been reading.
How often are those in care homes, or even in their own homes, asked what they think about their situation?

NoStrayGrey Sat 21-May-16 05:46:01

Hi,
I am new to this site, so firstly I should introduce myself, and say I hope to be of use on this subject.
I have lots of experience in this particular field of work, having been a senior care worker, and qualified in the care of Alzheimer's Residents, before I became too ill to work.
It is very expensive to train and keep staff who are willing and able to care for people with this condition. Some require a lot of monitoring, and are indeed prone to violence for no apparent reason, and finding the cause for the outbursts can take a lot of detective work. This is not to say your Mum has these problems, and is not intended to cause offence to you. Quite the contrary, I am trying to throw some light onto this subject.
Unless staff are trained, people with this condition can appear very tricky customer's, and many staff will refuse to assist, if they feel unsure or fearful. Sometimes, the more mild-mannered, gentle folks can be difficult to communicate with, and can present a lot of problems for the untrained. However, this condition does affect the majority of elderly people, in some degree or another. The matter of using a hoist is also something which staff must be trained to do, before they begin to work with people, and that knowledge and experience can take some people a while to learn fully. All staff must be trained mandatorilly in the moving and handling of people in their care. This training is annually renewed and refreshed, to keep abreast of updated rules and regulations. When applied to a person with Dementia, sometimes it can take a good knowledge of both the condition and the person, and the applied rules for moving and handling, which needs continuous re-assessment.
I am definitely not defending the actions of the Manager where your Mum is residing. On the contrary, this was handled badly.
Where I worked, this would not have happened, due to the degree of illness we were fully trained to deal with. Unco-operative residents were the norm, and violent outbursts were a daily feature of our work, along with some other very challenging behaviours.
I trust you can appreciate the many issues faced, which need to be handled in a dignified and courteous manner, while protecting the resident and staff.
You could ask for further explanation from Registered Nurses, or again, speak to the Manager for clarification on their reasons. Perhaps there are risks which cannot be catered for at the Home, besides your Mum's mobility problems. Often, it can be a matter of lack of equipment, which can prove costly to a Home. Or a staffing issue, or something else which the Home cannot meet. It might not be a matter of your Mum's needs, but those of the Home. They would have a duty of care towards your Mum, and everyone else, but if they cannot meet those needs, it may be necessary to do risk assessments, to find where staff are struggling. If they cannot reach resolution, then it could be an important factor to the way your Mum is cared for. You would not wish Mum to come to any harm, and maybe the Home are fearful of this happening. Often it is the relatives who are the last to know, of the difficulties staff might face when dealing with a particular aspect of a person's care. It may be a matter of loud crying, that disturbs other residents. It might be that Mum keeps trying to get up, and keeps falling over. There are so many things which you might be completely unaware of, as they are things which do not necessarily require you being informed, and that could be they're concerned it could upset you.
Please don't give up, or get upset, just push for the answers if that would help YOU. I have not written this to cause you any distress, and have only done it, to show there could be a million and one reasons. It hasn't been handled well, and the Manager is not really dealing with it in a professional manner. If you need more information, then you can insist on knowing. But, please be aware, the answers could be distressing to you. Contact the CQC if you aren't happy. Be Strong. Take Care.

Jane10 Sat 21-May-16 07:13:58

Helpful response giving a view from the 'other side'. All very sad for families though.

Nana3 Mon 30-May-16 01:27:08

Thanks for your post NoStrayGrey it is kind of you to explain what may be happening. I know Mum has fallen a couple of times, she could really do with some physiotherapy to help her regain some strength. A person from social services has been to check safety issues and give advice.
I am so far down the line with this now that I have been aware of your points but only from observation not from any practical experience. I can see how skilled the carers are and I am full of admiration for most of them.
Mum is so much better now, it was the shock of moving and my father's death that caused her to withdraw from the world. She knows she's mixed up, as she puts it, but she is looking happy and is chatting to other residents. She can transfer now, eats well, and enjoys any activities on offer. I have her name down on two specialist dementia ( I've come to dislike that word) care homes as they still want her to leave.
Thanks again, sorry for late reply, I had a lovely few days in Kent with old friends.

Nana3 Mon 30-May-16 01:39:39

I read the article durhamjen thanks. There's a lot of sense and wisdom in it. It takes a brave DD or DS to raise the subject of death with a parent, I don't know if I could do it now that Mum is 92 and confused, I could have a few years ago.
I could speak to my own DDs about myself though, that's something to think about.

durhamjen Mon 30-May-16 17:16:53

I know what you mean, Nana3. My mother in law has dementia. At 94 she is about to be moved into her 4th home in two years. She was okay when she first went into one. In fact, she went in for respite as 100% fee paying because she was frightened of falling over again when she was on her own. She has no idea where she is, or who anyone is. She said last year she had had enough of life, but deteriorated quite quickly and has been in and out of hospital three times since then. She does not have any end-of-life plan written down.

Christinefrance Mon 30-May-16 21:20:43

Do you have Admiral Nurses in your area. They specialise in helping people with dementia also have nurses specifically to help carers.

Good luck