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Frustrated with mum refusing help.

(135 Posts)
Washerwoman Sat 10-Feb-18 09:37:04

Firstly to say compared to situations many of you are coping or struggling with I'm in relative clover so far.But I'm becoming increasingly frustrated with my 95 year old mum.She still lives alone, and has managed remarkably ,especially since our dad died several years ago.She had a really tough time caring for him in the last few years,and refused all help -to the point of stupidity my siblings and I felt.But that was her choice, and she's a fiercely independant ,and intelligent- or so I thought !- woman.But it wore her out physically and emotionally.She thought she was doing us all a favour, and her favourite mantra is 'you don't have to worry about me 'Easier said than done mum!
Fortunately we all live locally and so one of us ,sometimes all of us pop in most days if not everyday.If I can't I ring .Realistically it's either me or one brother,our older brother is retired and very often away on holiday,or helping his with grandchildren out of town.That in itself has been frustrating ,because lovely and good as he is despite repeatedly asking him to let me know if he is not around,or more helpfully if he is going to mums he never does.I still work,and a quick text,or I've suggested a WhatsApp group between us has fallen on deaf ears.It would be so good just to know he was planning to visit as I still work,and often call in between clients or on my way home often when I'm cold,wet and tired.He stays as longer ,as he doesn't go as often,is very kind and actually more patient than me and other brother.But as other brother says that's because he doesn't see her as often!
Anyway,The upshot is her mobility is worsening and her sight is deteriorating.She has macula degeneration and only has one functioning eye anyway.Her hearing is also failing. No big surprise at her age.But the state of her home,and her clothes is worsening.I did bring her washing home to dry as she has no drier and I have a really good one.And when I collected it we changed her bed.But she's even shoving me away from doing that now.We persuaded her to have a cleaner last year.She grudgingly agreed to an hour a week but pointing out no cleaner would come for just one hour,she finally agree to two. All well and good to start with.Then it turned out she was either asking the cleaner to take her to the shops.We do that regularly. Or following her everywhere and preventing her from actually getting on.She then found a reason to fall out with her and we reluctantly told the cleaner to come no more.
Things have deteriorated again.Her fridge is frequently in a terrible state.And I'm bracing myself to go round next week and do some cleaning,but tbh feel pretty resentful as she has enough money to pay for a few hours help.Even 2/3 hours a week would keep on top of things,and she could still potter with a duster.
Any ideas ?She wants to stay in her own home,we accept that,but just want her to work with us to make that possible.Her other favourite saying is 'oh well you won't have to worry about me much longer .I won't be here.Really mum?I know she hates the idea but she could live to be 100+.I've pointed out DHs aunt happily has some help.As do my friends elderly parents.To no avail.So frustrating,and instead of being a caring DD she makes me feel like a bossy control freak.My bother lost his temper the other day when he fixed her vac because it wasn't connected, and instead of saying thank you told him off for interfering. I must add so far she's shown no obvious signs of dementia,but we are aware she could be developing something,if only small ischaemic changes.Also to add she's been 'fighting ' the idea of getting old for absolutely years.I call it 'competitive ageing' as she has taken great pride in comparing herself with poor old Mrs so and so,how stooped/wrinkled/dependant etc she is -and she's 10 years younger than me you know!Not always very charitable and empathetic, and generally lovely as she can be not a trait I admire.She is terrified of being labelled old.I get that.But at 95 it's time for some common sense to prevail .Thanks if you've read this Rambling post.Just needed to vent !

newgran2019 Fri 01-Feb-19 09:38:54

Sadly she hates Scrabble and all games, even making disparaging comments about the 'old biddies' who do play. She likes crosswords, but of course does them alone.

Many kind people have advised me to set boundaries, but I just don't know how to do it; we started off accompanying Mum to social events in her building in the (forlorn) hope that she would get to know people and then start going on her own, but it hasn't worked out like that. We did go with a volunteer who told her about all the things available locally for seniors, and were accused of bullying.

My mum has a sharp, critical tongue and a way of turning everything back on the person she feels is attacking her, so trying to reason with her doesn't really work. We thus don't know how to go about setting any ground rules, as there really aren't many others around to help her (my brother is only 25 miles away but already overstretched by work and family pressures). We have dug ourselves into a huge hole and I don't see any way of getting out now.

Washerwoman Fri 01-Feb-19 09:50:35

A quick hello to fellow frustrated GNetters !Things pretty stable with my mum and sticking to the routine I mentioned in my last post,and not feeling guilty (trying!) if I don't call in.My brother who was away a lot is around more and has got the hang of a quick text to say if he's been ,and is doing her shopping when here.
DecoDiva -like you I've learned to look at it more objectively.And if mum chooses not to have outside help,and wants to stay in her home so be it.The reality is she sees a lot of people compared to many lonely elderly people.I've not had a breakdown ,but know a couple of friends who have as a result of family demands.Sandwich generation causing a lot of tiredness and stress.
Congratulations Newnan.DH and I both still work and help with DGD and another baby is on the way.That in itself has proved stressful at times.DGD is an absolute delight but her mum our DD can be very moody and I tread on eggshells a lot.Another story on Relationships and ,largely down to her relationship with her partner.She had been a lot better,but this last week has reduced me to tears again.But little ones are so funny and a light relief when elderly care feels onerous.

Lazigirl Fri 01-Feb-19 14:29:39

It's not easy newgran as mothers know how to pull your strings - mine does anyway, and can be quite nasty and bad tempered at times, but since she has started with dementia she is easier...........mostly. You can start off setting boundaries in small ways. I don't know how often you visit, but let her know that you will not be available on a certain day/days. You need some space to regain your equilibrium. If I hadn't done this I would have collapsed emotionally.

Pollyanna2 Fri 05-Jul-19 17:11:41

Washerwoman I'm totally with you. Just trying to get my mum to drink and eat is becoming a nightmare - she's deteriorating before my very eyes (she's recovering from shingles). But I have to respect her decisions while she still has the capacity to make them. It's so hard sometimes to accept this - She just tells me off for nagging her when I'm trying my best just to be helpful...

Hetty58 Sun 14-Jul-19 08:19:43

Reading this really made me think. At what age (or state of disability) do we just lose the right to live in the way we choose?

My neighbour put her Mum in a home and said 'They keep her very neat and clean. They feed her well'.

We visited, the (depressing) 'lounge' full of old people dozing in chairs. When my neighbour went to the loo, her Mum stared intently into my eyes and said 'It's a prison. Different people come in to wash and feed me, when they have time, must be quick, not when I'm ready. They wake me up if I'm asleep. I have to come here and sit in this chair!'

It's us next, our generation. I will fight tooth and nail to avoid it. Leave me in my home (however dusty/grimy it becomes) and let me risk an accidental, solitary death. I'd rather that than years of a neat and tidy living death thank you!

Washerwoman Wed 17-Jul-19 18:30:38

Hetty .It's not that straightforward though is it ?I won't recap all my previous points but it's not just a question of wanting my mum in some pristine house or trying to take over.It's very difficult to visit and be told on the one hand how sore and difficult she is finding things,how her eyesight has deteriorated, to open the fridge and find rancid food etc and not try to offer a practical solution.To be told repeatedly don't worry about me you have enough to do.Then to go and have her sighing,pulling faces and saying I didn't see a soul all day yesterday.Wanting a little help for mum wasn't being controlling or expecting impossibly high standards, or abdicating my need to go - or my brothers.
It was always as much about a little extra company as much as the cleaning.And before you say that's your idea of hell my mum always was a very sociable woman .Much more so than me.Often when I arrive she has staggered to the door and is looking for a neighbour or someone passing to chat to.That's why it was so frustrating she had this block on the idea of just a little help.I knew instinctively the right person would probably be good for her morale.In hindsight the previous person just never clicked with her.
Anyway the update is we found a lovely young woman who has experience as a home help.All of a sudden mum was receptive to meeting her, and instantly liked her.She wouldn't admit it but was struggling even more.She now goes 2 hours a week and understands that having a coffee and a chat with mum is just as important as cleaning.Fortunately she's great at both.The fridge stays clean.The bathroom is tip top.Mum does her own dusting and potters around still, and several weeks on really looks forward to her weekly visits.I do her shopping and change her bed and towels weekly.Other than that mum lives independently and we all feel a sense of relief tbh .

CanadianGran Wed 17-Jul-19 19:28:36

Washerwoman, I'm so glad you have found someone to come in for cleaning as well as companionship. My own MIL is 89 and now in 'assisted living' which here in Canada means her own apartment, but choice of meals at the dining room or not. She has a very limited kitchen with no burner, just a microwave and fridge.

She resisted a little bit at first, but after a fall realized she could no longer be on her own. Thank goodness for that self-awareness! We have 4 family members locally that take turns visiting and can advocate for her. It takes a team!

Good luch going forward.

Washerwoman Wed 17-Jul-19 19:43:48

Thanks Canadiangran.Isn't it hard to find a balance between caring and seeming controlling !The aim with mum has always been to enable her to safely stay in her own home,because that's what she wants.It's only at the ripe old age of 97 any if us even offered any suggestions.So I think on balance she -and us - have done very well !

MaiBea Thu 18-Jul-19 15:28:43

I really could have written your story myself! Almost the same story with my mum who is very against any outside interference. Brother has taken early retirement and is very busy doing all the things he didn’t have time for when he was running a business. I work full time, still have one young adult at home and do admin work for my husbands business. I really struggle as my Mum has a different ailment or problem every day, we have had every medical test available and her gp who has known her for many years is happy she is physically very fit for her age. I will read the replies you have received to see if I can pick up any useful tips. At least we know we are not alone hey ?