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Care & carers

What constitutes a carer?

(9 Posts)
CarrotTop Mon 31-Aug-26 15:40:04

Hello, I'm new here. Hope you don't mind me asking, but what exactly is a "carer"? Am I one? My DH is able to do most things but, due to head injury, is unable to do anything that requires much thinking about - house maintenance, taking care of everyday emergencies, driving, banking, etc. I've always been a pretty capable type and have gladly taken over all the stuff he can't do. It feels weird being Her In Charge because we've always had an equal relationship. But now my health isn't what it was, I really need to call in outsiders for some things. But where do I find trustworthy people who'll help? And what happens if I conk out and he's left alone? He won't even know how to pay the bills (and he really isn't teachable at this stage of the game) and as for feeding himself, he has two recipes in his repertoire and one of those is toast & sandwich spread. Please don't recommend Age UK. In our area they're fine if you're looking for a social day out or a carer's assessment (believe me, we don't qualify). But they're hopeless if you ask them to point you in the direction of a plumber, or someone who'll call in once a week to check that we're still alive (did I mention we have no family and, due to an ill-advised house move, no friends who live nearby?). Sorry, this is a rather long post - but if you're in a similar position ('im an' me against the world - well, me mostly), where do you find help in an emergency, and how do you find someone who'll notice if you're not around for a while? I'm so desperate, I'm thinking of joining the local church - but for an atheist that's rather a naughty move! I don't mind paying for help, within reason. Thanks for your attention, I've been a lurker for a while and have been impressed at how helpful many of you are with cries for help.

NotSpaghetti Mon 31-Aug-26 15:51:04

You could go to the church coffee mornings though...
People there will at least help point to reputable workmen/women.

Thinking of you.

62Granny Mon 31-Aug-26 15:54:32

You need to get on to your local council Social Services team , they should be able to tell you what services are available in your area and what you qualify for. In my area we have care & repair who will do some work free of charge or for bigger jobs they have a list of approved people. Information should be on your local council website. It doesn't sound as if you need day to day care but more "just in case " type information. There is plenty of help out there but knowing were to find it is the problem.

ToriaJane Mon 31-Aug-26 15:58:46

I’m a first time poster! I’m a ‘carer’ for my husband who has Alzheimer’s. My surgery has been very helpful. If you ask your GP for a Social Prescriber to visit you at home they should put you in touch with the support you are looking for. Good luck it does sound like you are a Carer!

MT62 Mon 31-Aug-26 16:00:04

Do you need help cleaning?
What about a cleaner that will go the extra mile? Rather than carers that don’t do that much in that area, imo.
That would free up some time maybe.

Cossy Mon 31-Aug-26 16:05:12

I’m with the others, look for some practical help iro cleaners.

Also contact your local council and ask de social services older people.

Are you claiming anything financially like attendance allowance?

Are there any local support groups, either in person or online, for supporting families where one person has a brain injury?

Good luck and please do let us know how you get on flowers

Cossy Mon 31-Aug-26 16:06:53

Also local libraries often have groups and things which might be of some help to you.

Primrose53 Mon 31-Aug-26 16:30:42

You are a carer! If you are getting a State Pension you are not able to claim Carers Allowance. If you are younger, you can. Your husband is entitled to Attendance Allowance though.

The going rate round here for a care worker through an agency (as confirmed by an older friend in the village) is £42 an hour. she needs 2 visits a day and says her money is disappearing fast so she is going to have a local, experienced person who charges £20-£25 per hour.

Someone mentioned Social Prescribers earlier. I believe they are now cutting back on these which is a great shame because we had a lady who came to the house and helped us do the Attendance Allowance forms. She was brilliant but our GP surgery no longer has her.

In my opinion a Carers Assessment is not worth the paper it’s written on.

Regarding tradesmen I would look on local sites, shop windows and ask neighbours who they recommend. Personal recommendation is always best.

You might like to try Carers UK for advice and support (on line).

Fallingstar Mon 31-Aug-26 16:40:20

www.headway.org.uk/

Try this support site for help with brain injuries. I had a very helpful conversation with them when my DH had a stroke and has since suffered with cognitive impairment. They can point you in the right direction with regard to any help or support you might need.
I think that there is also a forum where you can chat to others. I have joined a forum with the Stroke Association. Is good to talk to others about what you are going through and things that might help.
There might be groups meeting up near you where you could go with your husband and hopefully make friends. Would google this, but again a site like Headway could help.
Make sure you are registered with your GP as your husband’s carer - which is what you are - and this will be helpful if you want to try to claim Attendance Allowance. There is a lower and higher rate of AA, my DH qualifies for the higher rate because he is physically and cognitively disabled and needs help both during the day and at night. You need to be brutally honest on this form, don’t gloss over anything, spell it out in detail, and if you have any medical records/paperwork pertaining to your DHs condition send copies.
I wish you all the very best 💐