Gransnet forums

Chat

Death Doula/Soul Midwife

(111 Posts)
kezia Fri 15-Feb-19 21:43:54

I was going to post this in the Bereavement forum but I think death and dying needs more open discussion.
So, please does anyone have any experience of using a Death Doula or a Soul Midwife, either through a hospice or hospital setting or privately? If you'd rather please contact me by pm.
I'm thinking about training in this area and I would really like to talk to anyone who has direct experience, either good or bad.

Gonegirl Sat 16-Feb-19 09:44:14

I would have thought hospice staff would be trained in all aspects of assisting a dying person.

"Soul Midwife" is a ridiculous name.

Luckygirl Sat 16-Feb-19 10:04:45

It just seems a bit on trend to me. Round here, MacMillan nurses (who do not just deal with cancer) and the hospice at home service fulfil those roles - and very splendidly too. I assume that the same exists in other parts of the country. There is no need to pay for it.

We were talking to the doc from the hospice the other day, when she came to visit us, and she was very reassuring indeed about this as OH was saying that in the event he starts to fail he wants to be kept at home as far as possible.

MissAdventure Sat 16-Feb-19 10:09:45

Macmillan were worse than useless for my daughter.
She came twice in ten years, and the second time was because my daughters' friend had contacted our mp.

Gonegirl Sat 16-Feb-19 10:32:40

Luckygirl flowers for you and DH.

Witzend Sat 16-Feb-19 10:35:10

A friend had a bad experience with Macmillan, too, but it was a doctor, not a nurse. She visited my friend when she was all alone, and told her - very briskly and efficiently - that she was dying, and did she want to die at home, in hospital or in a hospice?
My friend was the type who would not give up, and felt the need to fight to the very end. Evidently, though, that was not 'allowed'.
Friend said, 'They want me to be reduced to a weeping wreck, so that they can then be very kind and pamper me to death.'
It was years ago now, but I've never forgotten that.
I dare say my friend was very unlucky that the doctor was so brisk and insensitive, but it certainly put me off Macmillan.

Luckygirl Sat 16-Feb-19 11:32:40

That is sad - the Macmillans round here are absolute saints.

paddyann Sat 16-Feb-19 13:03:48

I didn't PLUCK it gonegirl I had a wee battery operated thingy that sort of combed it off .Anyway she wanted it taken off she was quite an image conscious woman ,even on her deathbed .

Lily65 Sat 16-Feb-19 13:13:22

Macmillan was abysmal with my relative. Its a sad state of affairs when, in something like a 100 year period structures have broken down, and we have to pay for help.

Gonegirl Sat 16-Feb-19 13:14:33

Sorry paddyann I'm sure you were only carrying out her wishes. flowers

Gonegirl Sat 16-Feb-19 13:15:37

My daughter is always trying to corner me to pluck out my chin hairs. Grrr.

Grandmashe43 Sat 16-Feb-19 13:18:27

Oh gone girl, you do me a world of good, thank you,

Gonegirl Sat 16-Feb-19 13:20:58

Why thank you Grandmashe43! That's very good to know. smile

paddyann Sat 16-Feb-19 13:55:08

gonegirl not a problem,she actually said she wanted to look nice for her "viewers" which caused a lot of hilarity with her and my sister ,that was also why she needed her nails done. If you'd known her you would know you didn't refuse what she wanted.Her GP said she wa sthe most carnaptious old bugger he knew ....lol

Gonegirl Sat 16-Feb-19 15:34:59

? Good for her paddyann.

eilyann Sat 16-Feb-19 15:48:36

I had a dear Aunt who also had an unfortunate experience with a Macmillan nurse. On the one occasion she visited when DA had terminal cancer, she advised her to take paracetamol for the pain!

lemongrove Sat 16-Feb-19 15:57:30

What a ghastly moniker ...death doula/soul midwife.
Another trendy idea dreamed up by ...who?

Jane10 Sat 16-Feb-19 16:01:23

Its the name that puts me off! Sounds such a pretentious name for a practical service. Surely end of life care is something to be shared by family, healthcare staff and with relevant church support.
I've known nurses to take on this role but they'd never call themselves 'death doulas'.

Mycatisahacker Sat 16-Feb-19 16:02:53

Gonegirl

God you have made me chuckle on here.

Op hope you found what you wanted and flowers to anyone going through sad times x

Anniebach Sat 16-Feb-19 16:03:10

I think both are ghastly

PECS Sat 16-Feb-19 16:10:17

Luckygirl I have heard positive things about MacMillan locally from different people. I have been given a contact for MacMillan for if/when I want to get in touch. I hope if I do feel the need for them they will turn up trumps.

tanith Sat 16-Feb-19 16:21:44

I found the Marie Curie nurses wonderful they helped us so much during OHs last weeks at home I couldn’t of done without them.
They did what I imagine a death doula might do.

Jalima1108 Sat 16-Feb-19 16:31:24

and getting rid of her "moustache"
Ooh yes, paddyann - I do want someone to do that for me, and any stray hairs on my chin. I've asked DIL, hope she remembers.

Jalima1108 Sat 16-Feb-19 16:33:25

If ever anyone tries to pluck out my facial hair when I am busy dying, I will come back and haunt them in the worst possible way
grin
but I don't people to come along and say 'Oh! I never knew she had a hairy face, she kept that well hidden!'.

Gonegirl Sat 16-Feb-19 16:35:49

How many people do you think's gonna look at you when you've popped your clogs?! shock confused

Farmor15 Sat 16-Feb-19 16:47:40

Depends where you die Gonegirl. In Ireland you might be seen by hundreds of people who call to house or funeral home where body is laid out. The come to pay their respects to deceased and sympathise with relatives and often comment on appearance of deceased? - not negatively- but in private I can imagine hairy faces might be noticed.
I’ve known a few cases where teenage grandchildren have done the nails of dead granny - might sound bizarre but they actually felt good about doing one last thing for her.