Thank you so much Doodle for the update. The emotional cruelty being meted out is mind blowing. If someone has lost or has almost lost their swallow reflex, why would they be given anything at all that might risk such a situation.
And how in God's name can an area not have a Hospice? Surely this must have been brought up endlessly by sufferers and families alike over the years. Families and loved ones should not have to suffer in this way and need to be with skilled and fully trained personnel who give their all to ensure that patients at the end of their lives are safe, pain-free, and cared for 24 hours a day; and that they are with those they love at all times if they choose.
Dear Mr P is not a prisoner and "what happens next" should always be the best possible continuing care. Panache should be able to be fully involved in all decisions on his behalf. Only she knows what he would want. Maybe in turning to Macmillan Nursing support she'd get the the best advice now, especially if she wants him at home. Having that kind of support and someone on hand to deal with the difficulties and ensure that he spends his final weeks at home without the stress and sadness that is being suffered by both of them could be the answer. Someone will at least be on hand to explain and answer all the questions. There's a helpline 7 days a week (8-8pm) and always someone to listen.
0808 808 00 00.
Worth a try speaking to an independent advisor with a wealth of experience? Give Panache my love, please.
soop I am really pleased. It will be worth so much to go to a more Specialist hospital and, if necessary, get the referral you need for possible treatment. Since your particular 'problem' and similar conditions are finally now being acknowledged as a national scandal and for so many, it appears that specialist centres have been created just to deal in up to the minute treatment procedures, which may just be the answer for you. I know you'll go for it. You owe yourself that - and don't forget we are ALL behind you. x (That's supposed to feel like a blessing, by the way ! 
Have a relaxing afternoon now. All you lovely Kitcheners too.
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, that it's pouring in London. Here it is overcast but dry, so far. When my new hose is delivered, it will, almost certainly, rain.
tonight? Maybe - from behind the sofa, with my eyes closed.? DS2 will text me and gloat if England win. His brother is more tactful. Both DSs were born in England, while I remain staunchly Scots, though exiled. Hopefully the Tartan Army will behave well!
for tomorrow.
scanning the pelvic floor dynamics. Something positive to hold on to. The surgeon has done all that she can perform in the local Oban hospital. We look forward to making further progress elsewhere.