Thank you to e veryone who expressed their views. I promise that this is not an inflammatory post - I was/am very cross and it showed.
I do not want to share details about my daughter because a lot of people I know do use Gransnet. One of the difficulties we face that along with learning problems my daughter has great mistrust of those asking questioning her health and problems. I have explained, at great length, that they are not being nosy and difficult. Details are needed to be kept for ongoing help and to make sure that the right help is given to the right people. However, on a difficult day she is hard to persuade! We are approaching various authorities and charities to ask advice.
When I have - I hope good news - about this problem I will post again because I understand very well that many people with health and mental problems have a harder time of it. There are many worse off than we, I imagine. Again, thank you all for your time.