Gransnet forums

Chat

Hats off to GOSH!

(24 Posts)
Babs03 Fri 02-Aug-24 16:09:27

Our adorable 6 month old grandson was born with a rare problem which meant his skull plates healed too soon and so the head was misshaped and there was the fear of cranial pressure on the brain. He was referred to Great Ormond Street Hospital where parents and baby were treated extremely really well, no waiting around and plenty of staff and volunteers available to help.
The operation to cut through the skull and implant springs to allow the head to take on a more natural shape and hopefully guard against cranial pressure - though our grandson will need to go back regularly for checks until he is eight - took several very long hours, the after care was exemplary, as you can imagine the parents needed some tlc too.
3 weeks later he is at home and recovering well, his head shape changing already.
In 4 months the springs will be removed and all should be well though his speech might be delayed most babies born with this go on to lead full and active lives vets.
So hats off to GOSH, and the researchers there that pioneered this spring surgery in the UK.
Cannot thank them enough.

Babs03 Fri 02-Aug-24 16:10:36

Some typos in there - any chance of a edit facility 🙄

Aveline Fri 02-Aug-24 16:11:40

Gosh! What a worry for you all. Wonderful work by GOSH

AGAA4 Fri 02-Aug-24 16:14:28

Must have been very distressing for you. Glad he is on the mend.

Callistemon213 Fri 02-Aug-24 16:17:44

A wonderful achievement by GOSH.

I expect you're all very relieved and I wish him well.

Babs03 Fri 02-Aug-24 16:19:38

I think what was particularly sobering for the parents was that they saw so many sick babies and children there that it put things in perspective, at least their baby was getting an op that would make him better but not all there are that lucky 😞

tanith Fri 02-Aug-24 16:51:15

How wonderful they were able to help your GS I hope he continues to improve, GOSH certainly does some amazing work. My family have reason to thank GOSH for their input regarding my young GS also.

Chocolatelovinggran Fri 02-Aug-24 16:54:30

I love GOSH. It's one of my chosen charities. When I was a governor ar a school for children with severe and complex needs I heard many stories of their wonderful work with " our" children, and with their families.
So glad to hear of the good news about your grandson Babs03.
,

Cossy Fri 02-Aug-24 16:54:53

GOSH are amazing! My goddaughter trained as a nurse there. She then went onto work at another big London Hospital as a teenager oncology nurse.

We are so fortunate to have such great healthcare

Babs03 Fri 02-Aug-24 17:21:43

Thanx for all good wishes.
He really was such a brave little soul, smiling and chuckling whilst hooked up to all kinds of equipment, of course he is being spoiled rotten for now 🫣

sodapop Fri 02-Aug-24 17:32:11

So pleased your grandson is on the road to recovery Babs03 well done everyone at GOSH.

PamelaJ1 Fri 02-Aug-24 17:32:33

Cossy

GOSH are amazing! My goddaughter trained as a nurse there. She then went onto work at another big London Hospital as a teenager oncology nurse.

We are so fortunate to have such great healthcare

That rather depends doesn’t it?
We had fantastic care from our local hospital when my GS got meningitis. It seems that when the medical staff are faced with an emergency they are totally brilliant.
Our latest experience has been awful but I won’t bore you with the details. Suffice to say that although my DH’s sight will be impaired he will still be able to see.
I am so glad for you Babs- right place right staff.

nanaK54 Fri 02-Aug-24 17:59:20

Thank you for sharing such positive news and I send my very best wishes to your whole family going forward.

OldFrill Fri 02-Aug-24 18:11:13

GOSH gets a huge amount of charity funding. It would not be able to function as it does on its NHS funding.

Glad to hear your GS is doing so well Babs.

Babs03 Fri 02-Aug-24 19:10:26

Yes GOSH and Alderhey children’s hospital get a lot of funding from high profile events, ex patient’s families, and people’s wills.
Most medical research is the same, with the British Heart Foundation doing life saving research at Imperial University London, and cancer research I have no doubt is doing likewise.
Sad that our government hasn’t got the funds to plough into our healthcare in a similar way.
Attlee said from the cradle to the grace but am afraid that hasn’t been true for a very long time.

Whitewavemark2 Fri 02-Aug-24 19:14:35

What a lovely uplifting OP.

All the very best wishes to baby GS of babs03.

And gratitude and thanks to GOSH for their dedication and work

LauraNorderr Fri 02-Aug-24 19:21:51

Lovely post Babs we have much to be thankful for here in the U.K. and GOSH is up there.
All the very best to you and your little grandson.

silverlining48 Fri 02-Aug-24 19:29:30

My dd spent 14 very happy years working there. It’s a centre of excellence but has to rely on public / charity funding because of the specialist and extreme surgeries they do.
Very pleased your little gs is doing so well Babs.

pascal30 Fri 02-Aug-24 19:36:01

What an amazing device.. well done GOSH and best wishes to your precious little one

Luckygirl3 Fri 02-Aug-24 19:39:13

You must be very happy for your DGC.

Callistemon213 Fri 02-Aug-24 19:39:25

I've seen babies with cages on their heads because they had flattened skulls at the back but not heard of this procedure.

It's just amazing!

Babs03 Fri 02-Aug-24 19:50:02

Thanx again to all well wishers.
Now we are over the hump and my GS is recovering we have all sighed a collective sigh of relief. And of course whilst we were in the thick of it nothing else seemed important, all the stuff we would worry about on a daily basis just didn’t matter at all.
Makes you think about what really matters.

Patsy70 Fri 02-Aug-24 20:29:01

How lovely to hear this, Babs03. Wishing your little grandson continued good health. GOSH are incredible. I experienced their expertise over 50 years ago, when my best friend’s baby had so many congenital problems. 💐

Oldbat1 Fri 02-Aug-24 20:48:10

Such a wonderful hospital. Hope your gs continues to do well. GOSH certainly saved our premature twin daughters born with numerous congenital defects. Best wishes.