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How are others coping with the gradual loss of independence.

(29 Posts)
Allalongagatha Fri 20-Dec-24 21:25:39

I have been quite unwell for the last 18 months. Thankfully with really good support from the NHS and my GP I have the right meds and feel quite well.

My illness has meant loss of balance and I now use a stick. One thing I love is riding upstairs on buses. It made me quite sad to think that won’t happen any more. Yesterday I went to do a bit of Christmas shopping. When I came out of the station I lost my balance and smacked my face on the pavement. Fortunately no real damage was done except for extensive bruising and cuts.

A passer by called the Ambulance Service and as I was sitting on the cold pavement I was insisting that I did not need one. I understand the amount of blood was alarming. I managed to speak to the service and convince them. I phoned DH who came and got me. This is the third time in 4 months that he has to scrape me up. So we agreed, no more going out without him.

I am so grateful for the health I do have, but losing my independence is a lot to cope with. I am sure this has happened to many of you . I admit the rapid onset of this has shocked me.

Any tips on how to cope

Truffle43 Tue 24-Dec-24 20:22:07

I have severe balance problems and it took me time to come to terms with the idea of using a stick. I did this but after a while I started looking at a walker. I have bought an all terrain one and what a difference it has made to my life. I can walk at a better pace get shopping and feel secure while out and about. The one I have is a little bulky on the bus it takes up about the same space as a wheelchair,but you can buy smaller it has a seat nd room for shopping. The wheels adjust for town and country and I’ve used it in both situations and I feel good being a bit more independent. I was a keen cyclist and miss it so much I still shed a tear occasionally when one whizzes past me. But onwards and upwards my walker is my new bike. Accept whatever help you need to get you through this.

teabagwoman Tue 24-Dec-24 20:42:45

I have poor sight, poor hearing and reduced mobility. It seems to me that the key to independence is to be ready to constantly adapt. Sometimes a number of very small changes can make life easier and give you the energy to tackle the bigger problems. As an example I got fed up trying to find kitchen tools in the drawer, they all had black handles. Now I have tools with different colour handles and smaller items are kept in pots on my windowsill where I can see them easily. Cooking is quicker and less frustrating leaving me with more energy to tackle other things.

sodapop Tue 24-Dec-24 21:31:17

A heart problem means I have to rest more often and cannot manage to walk uphill etc. Its frustrating but I try to work round it. Does mean I have more time to read so that's a positive.