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My daughter died ten days ago

(501 Posts)
AlieOxon Fri 15-May-15 15:04:21

Of acute pulmonary oedema, we have just heard.
She hadn't seen her consultant for four years for her kidney condition
She probably wasn't taking her potassium pills.
We didn't know she was risking her life. She probably didn't.
.....and I am really angry.

There is a black hole in the middle of our family.

But what I really want to say is that although the condition she had is very rare (Gitelman's Syndrome, if you want to look it up) that I have found there is a similar risk in people with heart conditions who are taking some diuretics.

We should have known that she was at risk. From what I find, this is only recently realised by the medical profession about GS patients - there may be only 1500 in Britain. I don't know if heart patients are warned.
I feel this should be better known.

Jomarie Sat 20-Jun-15 15:57:04

Goodness Alie that's great news - fingers crossed all goes well. Don't expect too much from a first meet up though. flowers

AlieOxon Sat 20-Jun-15 15:58:32

So do I. I do have some misgivings....

Friend M says 'You will need to take it slowly and use your ears.' Yes.

dustyangel Sat 20-Jun-15 17:24:02

Alie We had a similar situation with DS after about 10 years or more out of touch. What can you do apart from being the loving Mum that you know you are. I totally agree with your friend M but am sorry that you have to cope with this as well as everything else. Take care of yourself. flowers

AshTree Sat 20-Jun-15 18:33:41

It sounds promising Alie - it was she who made the move, so I really hope this goes well for you. It's time something did. Good luck x

AlieOxon Sat 20-Jun-15 18:59:06

Well, we shall see next week. I have to check as I thought Sunday and I have put Saturday on my calendar, but i have her number now so...

I hope this is not upsetting others who have not head from their children.
Believe me it does not feel like all roses!

loopylou Sat 20-Jun-15 20:01:26

Something made me suspect that Alie, I hope it works out ok x

Anya Sat 20-Jun-15 22:34:50

Your friend M sounds like a wise woman.

AlieOxon Sun 21-Jun-15 10:19:39

She is.
She helped me write the tribute to Jayne which I read at the funeral.

Today I am finding it difficult to get up any enthusiasm to do anything.
Woke up depressed and have stayed that way.
I suppose I ought to get dressed.

loopylou Sun 21-Jun-15 10:22:47

I'm not in the slightest bit surprised you're feeling flat today Alie
Life's dealt you a real bummer and perhaps it's your body's way of telling you to give yourself a break today.
No need to get dressed, have a duvet day x

harrigran Sun 21-Jun-15 12:17:16

Spend the day being kind to yourself Alie, you deserve it flowers

AlieOxon Sun 21-Jun-15 13:06:05

I am up now....have to go and get rid of stuff from the car to a charity shop which I have seen is open today....in case we have to take the baby to the solicitor's in the morning...hope not though!

It may do me good to get out.
Anyway I need cat food and milk......

I will have to get up much too early to get to Oxford on time.

whitewave Sun 21-Jun-15 13:13:30

What is the weather like with you today alie at least if you get out it is hopefully nice, and it will help to cheer you up.

petallus Sun 21-Jun-15 20:13:35

Goodness you are having to deal with so much at the moment. Your friend M seems to be a tower of strength. I suppose it's a case of one day at a time. Good luck with your DD.

AlieOxon Mon 22-Jun-15 07:21:35

Well I am up and in my right mind, I think, so off to Oxford.

NfkDumpling Mon 22-Jun-15 08:11:34

I sit here, finger poised, trying to write something to support you... But no words seem quite right. So if I don't post anything it's not that I don't care, just my inadequacies. I hope things go smoothly for you today.

kittylester Mon 22-Jun-15 09:59:31

I feel the same as NFK but wanted to say something! Hope it goes well today Alie, but you know we are here if you need to rant later!

AlieOxon Mon 22-Jun-15 14:55:23

It seems that K could have a good case for a Residency Order to say that the 14-year-old would-have-been-stepson should stay there.
But a lot of court stuff to go through first................

Just back, very tired, need to mull things over and wait for forwarded stuff from solicitor's....
Will go and have a rest.

loopylou Mon 22-Jun-15 16:50:23

It must seem like being on a treadmill at times Alie, I'm not surprised you're tired.
((Hugs)) x

Iam64 Mon 22-Jun-15 18:30:16

It sounds as though the meeting with the solicitor was reassuring Allie. It is shocking imo that legal aid is now only available, even in family/housing matters, in "exceptional circumstances". I'm not up to date enough with Judgements or Case Law to know whether your older grandson's situation qualified as "exceptional" in law. I do hope so.

AlieOxon Mon 22-Jun-15 19:45:05

Yes it was reassuring. And it could also be considered as urgent, so K would not have to go through 'mediation' first. (Can't go into detail in public here.)
I did bring up the idea that KN (the boy) might be able to get some legal aid and solicitor will look into it.

M has just rung me, she is still away but keeping in touch.

Thanks for all your support everyone even if you can't think what to say...
this keeps happening face-to-face too...........

AlieOxon Tue 23-Jun-15 10:57:36

I'm beginning to think that K's depression is contagious.........I go up and down according to whether he seems to be coping....

HildaW Tue 23-Jun-15 11:56:00

I'd agree with you on that AlieOxon, You need to keep up contact with those who make you feel more 'Up'. Or find something that takes you away from all the worry...a bit of gentle yoga, some lovely music or a gentle walk somewhere green and leafy.

AlieOxon Tue 23-Jun-15 12:10:59

Now I have a text from S asking when/where on Saturday.....

I have arranged to speak to a doctor tomorrow re colitis

I am getting out to shop and think. This is getting on top of me.

loopylou Tue 23-Jun-15 17:30:51

Apart from keep posting Alie I can only say you're very much in my thoughts, if only there was more we GNs could do x

FarNorth Tue 23-Jun-15 18:02:03

You are coping so well with everything that is happening to you, Alie.
There is so much to deal with, it's no wonder your feelings are all over the place. Keep being kind to yourself and don't try too hard to be "up".