Gransnet forums

Health

My daughter died ten days ago

(501 Posts)
AlieOxon Fri 15-May-15 15:04:21

Of acute pulmonary oedema, we have just heard.
She hadn't seen her consultant for four years for her kidney condition
She probably wasn't taking her potassium pills.
We didn't know she was risking her life. She probably didn't.
.....and I am really angry.

There is a black hole in the middle of our family.

But what I really want to say is that although the condition she had is very rare (Gitelman's Syndrome, if you want to look it up) that I have found there is a similar risk in people with heart conditions who are taking some diuretics.

We should have known that she was at risk. From what I find, this is only recently realised by the medical profession about GS patients - there may be only 1500 in Britain. I don't know if heart patients are warned.
I feel this should be better known.

kittylester Thu 11-Jun-15 06:52:25

And me Alie - I think about you a lot of the time. I can't imagine how you are coping with this. flowers

NfkDumpling Thu 11-Jun-15 06:56:59

flowers

MiniMouse Thu 11-Jun-15 07:02:41

flowers for all of you Alie

Grannyknot Thu 11-Jun-15 07:09:55

Thinking of you too.

I read a deeply moving piece the other day written by Sheryl Sandberg about the loss of her husband last month at the age of 47. He was the founder of Survey Monkey and died in an accident at gym. It has been widely circulated partly because she is CE of facebook, but mainly because it has resonated with so many people.

flowers for you alie

absent Thu 11-Jun-15 07:18:53

One day at a time. How are you today? Tomorrow will be different and so will the next and the next. The funeral will be hard but it will also be good if all of those who loved your daughter share their memories of how special she was. I cannot get your sorrow and loss out of my mind and think about you every day. I hope you soon find peace and some comfort.

AshTree Thu 11-Jun-15 08:30:18

Like absent, I cannot get your terrible loss out of my mind Alie. My DS told me recently of an old schoolfriend who had died suddenly, very suddenly with no warning, of a brain haemorrhage. She was only 42. Like your daughter, far too young. I think of her mother, and of you and I am overwhelmed by the sorrow you must be feeling.
You are in my thoughts so much, and will be especially tomorrow. Sending you (((hugs))) and the strength and courage to get through the day, and the days, weeks and months ahead. flowers

petallus Thu 11-Jun-15 09:09:36

I think of you too and shall be especially tomorrow.

Mishap Thu 11-Jun-15 10:04:03

Sending kind thoughts for tomorrow. flowers

whenim64 Thu 11-Jun-15 10:12:38

I hope tomorrow will be a fine day for you and your family, Alie. Distressing and comforting in equal measure, when you see tributes on flowers and hear the lovely memories they will be sharing with you flowers

Lona Thu 11-Jun-15 10:36:05

My thoughts are with you too Alie, tomorrow will be so hard for all of you. Don't try to be too strong, all that sorrow needs to come out.
(((hugs))) xxx

rubysong Thu 11-Jun-15 11:20:55

Love to you for tomorrow Alie XX

AlieOxon Thu 11-Jun-15 11:40:03

Thank you everybody for your good wishes.
I will manage to speak, and I will speak first, but have had to record a song for her - 'Turn Around'. I'm told it sounds ok in the church.

We are trying for a church funeral without too much God in it, mostly us and music we have chosen. The vicar is a little uncompromising, but we hope God may be mentioned and not Jesus.....most of the mourners will
be Christian but we have at least one Muslim couple.

Jayne knew a great many people in Oxford.
Me, I would have wished something much quieter and probably Humanist.
We've arranged a small quiet meet afterwards for some who feel like this...

AlieOxon Thu 11-Jun-15 11:41:06

I am going off now to get my hair cut!

janeainsworth Thu 11-Jun-15 12:23:19

Alie I hope the service is as you want it to be. I feel for you in your grief and will be thinking of you and your family tomorrow.

Bellasnana Thu 11-Jun-15 12:50:15

Dear Alie, I'm sorry I haven't been on here for a while. Been dealing with a lot of bureaucracy surrounding death of DH.

However, just want you to know you are on my mind and I hope everything goes according to plan on Friday. You will be very much in my thoughts. flowers

Riverwalk Thu 11-Jun-15 13:53:39

Alie I'll be thinking of you tomorrow flowers

And don't worry about the Muslims and the service - they also love Jesus!

AlieOxon Thu 11-Jun-15 14:18:56

Yes, but only as a prophet!

Riverwalk Thu 11-Jun-15 14:32:15

If they've accepted an invitation to a service in a church I'm sure they'll be fine smile

AlieOxon Thu 11-Jun-15 16:17:57

They have met the vicar anyway....they are sorting the music!

Just hoping 'Jesus son of God' doesn't get slipped in.......

AlieOxon Thu 11-Jun-15 16:20:40

.....we are not having any hymns.

harrigran Thu 11-Jun-15 16:31:25

You will be in my thoughts Alie, may you find the strength to help you through the day flowers

Lona Thu 11-Jun-15 16:41:43

Alie, the funeral isn't about the guests whatever their religion. It's about your daughter.
I'm sure no one would be so crass as to be offended.

AlieOxon Thu 11-Jun-15 17:24:38

I think we've sorted it out ok.
Just have to finish getting ready!

kittylester Thu 11-Jun-15 17:47:54

You know that we would be there with you if we could Alie but we will be there in spirit (note the small s smile)

annodomini Thu 11-Jun-15 17:53:22

I wish I could be there with you*Alie*. It is going to be a trial for you but I am sure it will go as you want it to, although not quite to your taste. It does sound like a good compromise. It will take courage for you to speak and I will be thinking of you a lot tomorrow. flowers