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My daughter died ten days ago

(501 Posts)
AlieOxon Fri 15-May-15 15:04:21

Of acute pulmonary oedema, we have just heard.
She hadn't seen her consultant for four years for her kidney condition
She probably wasn't taking her potassium pills.
We didn't know she was risking her life. She probably didn't.
.....and I am really angry.

There is a black hole in the middle of our family.

But what I really want to say is that although the condition she had is very rare (Gitelman's Syndrome, if you want to look it up) that I have found there is a similar risk in people with heart conditions who are taking some diuretics.

We should have known that she was at risk. From what I find, this is only recently realised by the medical profession about GS patients - there may be only 1500 in Britain. I don't know if heart patients are warned.
I feel this should be better known.

Bellanonna Fri 12-Jun-15 09:00:04

Thinking of you. X

Agus Fri 12-Jun-15 09:13:06

Thinking of you Alie flowers

Ariadne Fri 12-Jun-15 09:24:43

xxxxx Alie

annodomini Fri 12-Jun-15 09:31:55

With you, Alie. xx

KatyK Fri 12-Jun-15 10:08:13

Thinking of you Alie flowers

dustyangel Fri 12-Jun-15 10:18:19

Thinking of you today Alie flowers

thatbags Fri 12-Jun-15 10:45:39

In my thoughts, alie.

grannyactivist Fri 12-Jun-15 11:06:37

alie flowers
I don't think you ever get over losing a child, but you will have your memories forever. Thinking of you today.

Mishap Fri 12-Jun-15 18:10:07

I hope that you have come through this difficult day Alie and that the funeral was a fitting tribute to your DD's life. flowers

Iam64 Fri 12-Jun-15 18:54:25

Sending love Allie flowers

shysal Fri 12-Jun-15 19:48:42

You were in my thoughts all day today Alie. I hope all went to plan.flowers

AlieOxon Fri 12-Jun-15 20:43:35

Thanks all, for your flowers and love and thoughts.....it went pretty well.
Exhausted though. Back tomorrow.

loopylou Fri 12-Jun-15 20:49:40

(((Hugs))) from us all xx

NfkDumpling Sat 13-Jun-15 06:11:17

I'm glad it all went well. Time to rest for a while now and look after yourself.

kittylester Sat 13-Jun-15 07:23:42

Morning Alie, how are you today? flowers

Sewsilver Sat 13-Jun-15 07:44:25

Alie, thinking of you today.

Lona Sat 13-Jun-15 08:01:14

Hope you aren't feeling too drained today Alie, take it easy flowers

AlieOxon Sat 13-Jun-15 14:38:27

Trying to relax and clean house at the same time...has got a bit out of hand and I will feel better when I have cleaned up.

Friend M rang this morning and I went over there for a cuppa. This was very helpful as I had an awful night, woke at 3 and couldn't sleep until 7.
(Usual with me when a lot of things have happened.) I got up and went on a downer, and then M rang. Feel better.

Yes things went ok. White hearse carriage with white horses - sounds over the top and not my idea, but seeing it, decided Jayne would have liked it.
My tribute and song went well, I think, I felt happy with it.
Too much God in the service, but the Christians liked that.

And at the burial, in Wolvercote, Jayne's sons filled in the grave. Apparently this is the West Indian way. Unexpected but I felt good with the hands-on approach, rather than leaving it to strangers with machines.

Thanks for the support on here. I haven't always answered right away but have been hearing it.

HildaW Sat 13-Jun-15 15:28:30

AlieOxon, I think its the personal bits that stay with you and they do help to sort of punctuate the misery and allows you to remember better in the long run.

Take it easy as best you can...but I can recommend going down the physically exhausted route just to get some sleep...just don't over do it too much.

X

petallus Sat 13-Jun-15 16:06:36

Sounds as though it was a lovely funeral and just what your DD would have appreciated. I like the idea of your grandchildren filling in the grave.

Still.....

Take care!

kittylester Sat 13-Jun-15 17:05:42

Thank you for telling us about it all Alie it sounds as though it was a lovely funeral. And keep talking to us won't you. flowers

Mishap Sat 13-Jun-15 17:13:25

I am pleased that it all went well and that you were able to read your tribute. It will help the grandchildren to have played an active role in the ceremony - and so much better than strangers doing it. I am glad that your friend was there for you today - just what was needed. I do hope that you sleep a little better tonight. flowers

AshTree Sat 13-Jun-15 19:11:30

Ah Alie it's done, no more anxiety about the day looming. It must be comforting for you to know that it went well - and what a lovely touch for the boys to fill in the grave, so much more personal than having strangers doing it after you've all left.

Now it's time for you to take care of yourself, Alie. Keep posting here, so we know you're all right flowers

AlieOxon Sat 13-Jun-15 20:06:51

M came here this evening and we had another chat, showed her the pictures on the Order of Service.....we commiserated with each other on other losses in our families....we both miss them still.

I am going to the U3A meeting on Tuesday with her.

loopylou Sat 13-Jun-15 20:10:02

It's good you have someone who's empathetic and to whom you can relate.

Take care, and love to you x