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RLS 3rd really bad night of no/little sleep. I'm pacing in the garage in the wee hours.

(60 Posts)
glammanana Wed 21-Oct-15 07:11:01

Coolgran I hope you don't read this just yet I hope you are in bed sleeping I feel so sorry for you,my neighbour suffers from the same and she claims it is sheer torture she has tried all sorts of treatment and also has to rely on sleeping tablets as a last resort.

ninathenana Wed 21-Oct-15 07:01:47

Flipping Kindle, changed that ! RLS

ninathenana Wed 21-Oct-15 07:00:51

A dear friends OH suffers from LES causing them to have separate bedrooms.
I sympathise and hope tonight you have a peaceful sleep.

MariClaire Wed 21-Oct-15 06:51:46

Here's a link www.ninds.nih.gov/disorders/restless_legs/detail_restless_legs.htm
I suffer chronic debilitating pain from several sources myself. I can't imagine the terrible discomfort of RLS when medicine doesn't work. coolgran I hope you're sound asleep right now! brew flowers

absent Wed 21-Oct-15 06:41:58

mariClaire Thanks. I think I have that in a minor way. I just sit up and read in the middle of the night with my legs waving in the air, but perhaps I have only minor symptoms.

MariClaire Wed 21-Oct-15 06:32:03

Restless Legs Syndrome.

absent Wed 21-Oct-15 06:23:01

How horrible. What is RLS?

MariClaire Wed 21-Oct-15 06:12:35

Oh, what an awful night for you! I feel so sorry you are suffering. Hang in there, though, as soon this will ease up and you can rest. I'm sending lots of sympathy, and hope that last pill helped. P.S. I love gransnet but I don't post often because of the time difference.

Coolgran65 Wed 21-Oct-15 05:24:42

I'm back in the house now and my fatigue would barely let me get up the stairs.My legs and body are dead weight.
I lie down. And symptoms are back.
I'm silently screaming.
Got to get up again......

Coolgran65 Wed 21-Oct-15 05:03:11

I suffer from severe RLS 24/7 and medication helps most of the time. But not always. Meds include a sleeping pill.
Tonight is the third night in a row where meds have not done their job.
As soon as I went to bed I could feel it.....first a twitch or two creeping and crawling to let me know my 'friend' was here with me. Within one minute, it had built up so I had to get up and walk, the only solution for temporary relief. By 2.30am I'd walked for 90 minutes and it calmed enough for me to try going to bed again. So as not to disturb my DH I went to the guest bedroom, where I thrashed and shuffled, and eventually got to sleep about 3.30am.

It's now 4.30 am and RLS woke me again this time in left leg and left arm. I'm now in the garage, walking up and down and trying not to disturb DH as happens at some point every night ...or day..despite meds. il. Exhaustion is now rampant. I'm needing sleep and leaning on the garage wall with eyes shut and walking on the spot but I'm wasting my time. Must walk properly again. My eyes are shut from weariness and I'm staggering. Bouncing off the doorframe, another pill taken but it takes 90 minutes to take effect. I'd I'm lucky I'll eventually get a couple of hours at about 6am. That's if my fibro will also settle down.

Some folks would reckon that RLS is a mere irritation. Those folks don't have a clue what it's like.
Sheer torture.

I could tear my hair out. It's now been 30+ years of torture.