Daughter feels vindicated

I've only just seen your post Nina. How awful for your D to have been dismissed in such a patronising way and I do hope she receives an apology. It must make you all feel very angry especially as she has suffered depression as a result of this. At least, at long last, it's being addressed and his surgery has been arranged very quickly. Not too long to have to think about it, and all the best for whenever it is this week.

How awful for your daughter, Nina, to have her instincts disregarded like that. One of my grandchildren had a severe cleft palate, her parents found www.clapa.com very helpful, including information about a submucous cleft which in the light of the new baby's cleft they wondered if their first child had. In fact this was not the case for her but it was worth checking out, I wonder if this is what your little one has been diagnosed with.I do hope all goes well for your family from now on. It's always worrying when children have to undergo surgery, but they are amazing at taking it in their stride and often bounce back so quickly. X

It's frightening. I have been lucky when DD was about two we had been out for the day with my parents, I noticed she had plonked herself into her push chair which was unusual.
Next morning she was quiet and listless when she got up and was totally not herself.

We did have a GP who was a peaditrician and I took her straight up to the surgery, GP found a chest infection gave antibiotics and all was well.
Most parents know their children best and when they say they are worried GPs etc should take notice.

My DGS's are lucky to live near a good childrens hospital Both boys have been into A&A to have minor proceedure due to misadventure.

judypark that made me cry as it could so easily have been D. Your poor friend . To loose two babies is unimaginable.
The same GS as mentioned above was blue lighted at 4wks to the Evalina (sp) D thought there was a problem from birth. He had surgery for a hole in his heart and more surgery a week later. Thankfully his heart is doing well now but we were lucky.

My dear friend gave birth to a full term daughter in the 1970s, the baby failed to thrive and despite numerous trips to the GP was told that because she was a mature mother (35) she was being over-anxious. Baby was underweight and often blueish. At 7 months of this my friend refused to leave the practises surgery until her daughter was thoroughly examined. A brief examination revealed that the babes heart was back to front. 3 hours later they were blue-lighted 90 miles to Great Ormond Street. Sadly the baby died, the operation was successful but the little soul was too weak by then to survive the rigours of surgery.
Three years later my same friend safely delivered a healthy son, at three weeks old he developed a heavy cold, she called her Health Visitor who said again over-anxious mother and told her that "lightening never strikes twice". That night she found her beautiful little boy dead in his crib. The coroners report was "Unexplainable Cot Death"
As a retired health professional I would say to all parents and grandparents, always trust to your instincts and stick to your guns.

Hope it goes well - thank goodness you now have a proper diagnosis; but so sad that your DD had to go through all of that to get there. Munchausen by proxy is so rare - they should make sue they have had all investigations done before making such a diagnosis.

I had a similar problem when I broke my foot - they would not believe that I was still in a lot of pain after the plaster came off and just patted me on the head and dismissed it, however much I reiterated that I could not walk on it. They had missed a second fracture - I still limp and use a stick several years later. I am aware that we all make mistakes, but to ignore a grown adult when they are telling you that it hurts to put their foot to the ground is just negligent.

I'm so glad it's all sorted and I hope the op goes well and your GS recovers quickly. I also hope your daughter can let go of some of the horrible things the medical proffesionals have accused/said to her. It must have been a frightening experience for her. let us know how it goes.

Thanks annsixty

A friend of DD has just had an apology from her GP because he missed the 33cm (!!) ovarian cyst that she has just had removed. She is a doctor and knew something was wrong. She had to refer herself to hospital because he said she was fine.

Mother knows best imo and how awful that she was accused D of Munchhausen by proxy as they could find no cause
Thank goodness it has now been diagnosed and I hope that treatment is successful.
DGS suffered from sleep apnoea. They live overseas and he was found to have very enlarged tonsils and adenoids which have now been removed; however, it is not routine in this country as far as I am aware.

Your poor DD nina, she must have felt terrible at being falsely accused and also worried about your GS. She does deserve an apology. Best wishes from me too.

I remember you posting whenGS was tiny Nina and can't believe it has not been sorted before. My GD was born with a very bed cleft and while I realise yours is a slightly different problem the op went fine and her speech is excellent. Some times a tiny hole is left in the palate and a second procedure is needed but nothing major.

Glad that the problem has been found and that it can be sorted . It is out of order suggesting that someone has Munchhausen BP and she should ask for an apology . It may stop that arrogant Consultant from dismissing someone else in a similar position . Well wishes for your GC x

All good wishes from me too

That's how we feel. kitty
Thanks for the good wishes everyone.
D should find out today which day it will be.

That must be a huge relief for all of you Nina I hope his op goes well

Nina - all the best to DGSfor his op, I'm sorry DD had such a bad time earlier ?

I don't know whether to say 'phew' or 'flipping heck' nina but well done your daughter. I hope it gives her a big boost. Have a (((hug))) for yourself too.

I hope your GS's op goes well nina. Consultants obviously do not always get it right.

Well done your DD and good luck and a speedy recovery for your DGS.
Years ago when DS was just a toddler he decided to stand on one of his large tonka trucks.
The truck one way. but DS was still holding on to the side of his play pen.
It all happened very fast.
I knew right away there was something wrong with his arm. So I took him straight to A + E
He was checked over and I was told he was fine
I disagreed and said I was sure there was something wrong with arm. ( He had been given a pain killer so was not crying)
I refused to move and was still in the cubicle when DH arrived.
They tried to get him to 'reason with me'! But he requested a second opinion
Eventually another Dr arrived
I explained that I believed that there was a problem with my sons arm
The Dr put his hands on my shoulder and said 'A Mother's Instinct IS Always right! '
It turned out that they had checked his shoulder but not his elbow
The elbow was dislocated!

nina for supporting you DD. And DGS

Hope all goes well for little one next week ninathenana hope daughter got apology as well

Well I hope your DD is able to say a real big "I told you so", and that everyone concerned apologises Hope all goes well