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My brain hurts!

(42 Posts)
Luckygirl Mon 26-Mar-18 14:02:01

After a second episode of epigastric pain followed by a plummet in blood pressure and losing consciousness (OH said I was grey and drenched in sweat and out of it for a ,long time) and a trip to A&E in an ambulance, GP referred me for an urgent CT.

I rang hospital and they said the referral had to be triaged and, if agreed as urgent, it would be about 4 weeks. Talked to GP and referral was sent to private hospital (I know, I know) for CT, which is booked for 6th April - they only do them on a Friday! Mega-bucks involved.

Heard from NHS hospital today - it has been agreed as urgent and that an MRI is more appropriate, and it has been booked for 8.30 am on Easter Day!!! - which just happens to also be April Fools' Day!!

Waiting to hear back from GP as to whether I should cancel CT - I assume so. That'll save me a bit of dosh from my savings!! Hoorah!

I am happy that they are cracking on with it, because I am having trouble sleeping - on both occasions the problem has occurred as I lay down in bed; as I lie down now I keep getting flashbacks to the last incident and it jolts me awake. I will be glad to know what is going on here.

OH (a doc) thinks I will die and there will be no-one to look after him - hmm.

willa45 Tue 27-Mar-18 22:39:52

Lucky, I know what you must be going through. There's nothing worse than worrying, not knowing what's going on and having to wait patiently for answers.

So, as we say in the US.... just 'hang in there' and this too shall pass. In the meantime, I'm sending you healing thoughts and prayers for your complete recovery.

Hugs Willa

phoenix Tue 27-Mar-18 22:55:29

Sending every good wish!

merlotgran Tue 27-Mar-18 23:07:02

Adding my good wishes as well, Luckygirl

icanhandthemback Wed 28-Mar-18 00:10:33

Luckygirl can you get one of those alarm gadgets that go round your neck so if you become too ill to actually make a phone call, you can just trigger it? If you don't answer the phone, then they will call your emergency contact and, failing that, call an ambulance. I might help put your husband's mind at rest. I know how worried he must be for you and it must be a source of anxiety for you too.

Luckygirl Wed 28-Mar-18 10:04:07

Thanks for kind wishes.

I do have a lifeline (installed for OH for when I am out of the house) and during the day I wear it so that if I am in another room and cannot raise him before I lose consciousness I can use that.

Believe it or not we also have a walkie talkie system by the beds - he is in a hospital bed and I am in a super king size one so there is a bit of a distance between us! In fact it was this system that alerted him when it happened last - thank goodness he heard it!

I will be happy when I know what is going on - I do not know what the wait is between scan and results being sent to GP. I must learn to be patient!

jura2 Wed 28-Mar-18 16:18:22

oh my Lucky, just seen this. Be patient, but persistent too - only a few days to wait for scan - but do make a fuss about getting early read and interpretation, so you can begin treatment.

hugs xxx

gmelon Wed 28-Mar-18 16:19:06

Luckygirl. How are you today? flowers I. hope youve received a letter confirming yourEaster appointment date?
Not long to wait now.

rosemary55 Wed 28-Mar-18 21:14:23

Being thick here, keep seeing references to PAW looked at the acronyms and can't see it there , what does it mean?

icanhandthemback Wed 28-Mar-18 21:54:33

I couldn't swear to it but believe that Paw is MawBroon's husband/partner.

ReadyMeals Wed 28-Mar-18 22:08:11

Maw and Paw Broon

MawBroon Wed 28-Mar-18 22:34:42

I am MawBroon and Paw was my darling DH whom I lost last November having just turned 70 .

durhamjen Wed 28-Mar-18 23:33:20

I had an aortic dissection on the Thursday before Easter. Five years ago tomorrow, in fact. It was the weekend that the NHS changed to NHSE and all that entailed. I had MRI and CT scans but nobody knew what it was until on the Tuesday when someone arrived who could read the scans properly.
So if you are having the MRI on the Sunday, you should not have long to wait for the scan to be read. Good luck.

willa45 Thu 29-Mar-18 02:22:07

Mawbroom.....
I did not realize that your DH Paw had passed such a short time ago. I admire your posts often with your ready wit and practical wisdom. Please accept my late condolences. I'm truly sorry for your loss.

Hugs Willa

willa45 Thu 29-Mar-18 02:25:25

PS. Acronyms intimidate me too. I use them sparingly to avoid embarrassement grin

Day6 Thu 29-Mar-18 07:01:10

Luckygirl, that sounds frightening. I hope all the tests and scans happen on time and the results aren't so frightening and treatment will help you. Best wishes flowers

Iam64 Thu 29-Mar-18 08:10:58

Sending best wishes Lucky x