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OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

Nannylovesshopping Tue 28-Jan-20 22:13:52

Dear luckygirl, always in my prayers x

cornergran Tue 28-Jan-20 23:09:02

Love and strength to you all luckygirl, such a difficult time. Xx

Callistemon Tue 28-Jan-20 23:25:06

Have a peaceful night.

Kalu Tue 28-Jan-20 23:33:24

Sleep well Lucky. Night, night.

Marmight ?

Grammaretto Tue 28-Jan-20 23:44:53

Sending love and prayers xx

Ginny42 Wed 29-Jan-20 07:02:30

Words are so inadequate at times like these. You have been a pillar of strength and no one could have done more.

Take comfort from all the messages from people who have followed your journey and admire your resolve to give your DH the best possible care over the years.

Curlywhirly Wed 29-Jan-20 07:10:39

Take care thanks

kittylester Wed 29-Jan-20 07:28:15

Morning lucky. I think you are right to try to keep some normality in your life. Mum stayed with us for quite a while after she was put on end of life care.

Sending love and support.

Marydoll Wed 29-Jan-20 07:46:41

Good morning lucky, what Kitty has said.
Hoping and for praying for peace for your husband, you and your family.

Luckygirl Wed 29-Jan-20 09:17:44

Thank you - all your words are helping to prop me up and I am grateful for this.

lavenderzen Wed 29-Jan-20 09:43:06

Take care Lucky, thinking of you flowers

BBbevan Wed 29-Jan-20 09:43:35

Thinking of you all.Lucky ???

dragonfly46 Wed 29-Jan-20 09:50:20

Thinking of you Lucky today and every day flowers

SueDonim Wed 29-Jan-20 13:21:02

I’m glad you have someone to share the strain, Luckygirl. It was a bit like that with my dad, although it was only one day. My mum and brother and I sat round his hospital bed chatting and even laughing at times at fond memories. He rarely roused (pneumonia following cancer) but it was somehow homely to be there talking as though everything was normal.

Doodle Wed 29-Jan-20 13:27:03

Thinking of you lucky flowers

Caramac Wed 29-Jan-20 13:30:48

I’m glad you have your daughters with you at this difficult time flowers

Maggiemaybe Wed 29-Jan-20 14:34:47

Luckygirl, I am so sorry. Thinking of you. flowers

Scribbles Wed 29-Jan-20 15:49:43

Luckygirl, Daughter & I are thinking of you. xx

lovebeigecardigans1955 Wed 29-Jan-20 15:56:57

I'm so sorry, Luckygirl, I know this is heartbreaking for you as I've been there myself. Part of you wants DH to stay alive but you don't want him to suffer so you wish it was over too. It's a terrible state of limbo.
Please be assured that most deaths are peaceful and when he's gone you will feel sad that he's no longer around but relieved that he's no longer suffering. This is the only positive way to look at it. flowers My sympathies to you.

Antonia Wed 29-Jan-20 15:57:34

What a terrible time for you, I really hope that you can sleep tonight. Thinking of you both. flowers

grannypiper Wed 29-Jan-20 16:12:40

flowers

aggie Wed 29-Jan-20 16:15:33

Luckygirl Thinking of you , and hoping you get some rest xxx

Stansgran Wed 29-Jan-20 16:21:15

Thinking of you.death is a blessing at this time.

Iam64 Wed 29-Jan-20 16:36:13

Thinking of you Lucky, your daughters and your husband xx

Luckygirl Wed 29-Jan-20 17:54:02

Thank you.
He was a little more alert today, but miserable. I have started feeding him ice lollies - he likes the taste and it is only a tiny bit of liquid to swallow. Trying to take in liquid makes him choke and cough. Understood a bit more of the occasional things he tried to say today. He cannot really move at all.

What he needs is peace - he has no quality of life now, poor man. I really hope this does not drag on too long - there is no way back from this place.