OH now on end-of-life care.

Sleep well Lucky

Night night sleep tight

thinking of you and your family Luckygirl a sad time for you all to deal with.

Lucky have a good nights sleep x

and a ((hug)) thinking of you

Lucky I hope you manage to get some well earned rest tonight.
Night, night God bless to you and your DH.

for you and gentle love and hugs for your OH. God bless you both.

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Hope you both have a quiet night Lucky

You're both still in my thoughts and prayers Lucky. Hope you manage some decent sleep tonight

Thank you for kind words. I had a really good night's sleep this morning.
Yesterday he was able to mumble and you could hear some of what he said. He is taking in liquid.

Spoke to PD nurse this morning and she said that this can sometimes drag on for weeks - heaven forbid, poor man.

"Sleep last night" - my brain is addled!

Dreadful strain - would hospice care be appropriate at this point?

Having followed your sad and brave journey I was hoping for some sort of resolution for you all; I keep you in my prayers, Lucky and hope that it doesn’t last much longer.

Thinking of you “Lucky* ?

Lucky thinking of you as you go on this sad journey. Yesterday was the anniversary of DHs death. He died suddenly & quickly without a chance for us to say all the things which needed to be said. Sadly, there is no easy or right way for those of us left behind. Sending my love and hope that you find the strength to get through the coming days. GN was my salvation and I hope the support you have from us all helps in some way

Thank you for kind messages.

I have been with him till now today and there is a room at the NH where I can sleep over if I wish - but if this is going to continue (and who knows?) for a while then I have to inject some sort of normality. So I am back home to sleep - they will let me know if he is distressed in any way.

He has been asleep all day - and I try and converse with him for the 1% of the time when he opens his eyes. He can barely speak and I can hardly hear what he is trying to say. It is so hard as today he mumbled that he did not want to be on his own - but how can I be there every minute?

Now here is a bitter irony.....many of you will know that OH has been refused continuing health care funding twice and I have been embroiled in appeals and been treated appallingly by the health authority. The first appeal I made about 4 months ago has not been heard yet. Well.....the administrator at the NH came up to me today and said that the hospice nurse had put in a fast track application for funding for OH and it has been approved. So now we know for certain that you only qualify for funding if you are dying. It is pitiful really, but there it is.

Marmight - a sad anniversary.

What a dreadful journey, Luckygirl.

Is there anyone else who can hold the fort while you go home and sleep?

My DDs share it with me. And sometimes one will be there when I am and we were just saying today that one positive spin-off in this sad situation is that we get quiet time together when we are not rushing about and dealing with GC, but we can sit and talk while OH sleeps. Precious shared time.

If he knew, he would be pleased about that.

he may well be able to hear you even if he appears to be asleep.My sisiter and I sat with mum and chatted about silly things that we'd done in the past ,every now and then mum would open her eyes and add something to the conversation .I think she was glad we were remembering happier times .All she wanted was for us all to remain close when she had gone .
I'll keep a candle lit for you and your family and send my heartfelt best wishes to you all x

Thinking of you luckygirl as you watch and wait. I’m so glad you have your girls to share it all with. x

Thinking of you, Luckygirl

Luckygirl,
I put that, then don't know what to say. Thank you for finding the time to update us all here.

It is almost an insult to your hard work in trying to find funding for your DH's care, that now it is to be offered at the n'th hour.
You certainly put up a heroic fight, and it has taken a toll, so sleep tight. Night, night, God bless.