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Burning Mouth Syndrome

(41 Posts)
MsChe Wed 27-May-20 10:40:04

Hello everyone. I hope you and your loved ones are all doing well.
I guess if you are reading this means you have this God forsaken disease. It's been a living hell for me for the last couple of months and because of lockdown I only got to speak to a specialist yesterday.
A little background about myself. I am a woman of 53 who started menopause 3-4 years ago. I have suffered with migraines all my adult life and have relied on pain relief medications for as many years. I might be addicted to them. I don't know. Anyway, I am pretty sure I have done some damage to my liver.
So, let's talk about BMS. It started just before lockdown when I admit, I was having a lot of anxiety attacks for a good 2-3 weeks after lockdown too. Some may say this could've been a contributory factor. Others might say it's my age and the menopause. Apparently mostly women over 50 suffer from this. Others might say it's nerve damage.
Others might say it's vitamin B12 deficiency or overload of iron etc etc...
Whatever it is let me tell you it's debilitating and depressing. Especially now that I know there is no cure.
Here is a LONG list of my symptoms:
1. Severe dry mouth
2. Scalding sensation or burning of my tongue and pallet.
3. Lack of saliva
4. Mucus/gluey like saliva
5. Sore gums as a result of the above.
6. Metallic and salty taste in the mouth
7. Altered taste
And here is a list of what helps:
1. Chewing sugarfree gum. Relief is temporary (RT)
2. Sipping water. RT
3. Sucking on lozenges. RT
4. Eating. RT
5. Breathing through the nose is my only alternative as breathing through the mouth is almost impossible as I get instant dryness.
6. Sleeping. I cannot feel the burn whilst asleep. So I guess when all my senses shut down for the night so does BMS.
What caused it apart from possibly anxiety? No clue whatsoever. I have also had some sinus issues in the past and have been using a nasal spray called DYMISTA. This has a dry throat side effect so I have stopped it for the last 5 days or so in the hope that this was the cause. No change so far.
I am also going to see this specialist on Monday. I shall keep you posted if anyone is interested.
As a last mote, if anyone is suffering with BMS let me tell you I completely understand what you are going through. Good luck to everyone and God bless!

tiffaney Thu 28-May-20 13:22:22

MsChe l have pm'd you re NMS Group x

Elizabeth1 Thu 28-May-20 13:45:42

Hi everyone thank you for sharing this type of mouth condition it’s been really very helpful to me many thanks you’re all a wonderful font of knowledge and comfort. In another post while I was trying to get in touch with my dentist. I spoke about my gum implants perhaps being the root (forgive the pun)of causing my gums to ache at night and having a terrible bad breath and being unable to get dental advice through no one answering my phone calls or even returning my calls. I’m very pleased to say I’ve had much support from the local pharmacist. She’s advised I may not have an infection but perhaps swollen gums and said I can take ibuprofen in between paracetamols. This should help reduce any swelling. I’ve also bought corsydol toothpaste and mouthwash fingers crossed ? I’ll review all this after one week and see how it goes she said meanwhile by rinsing my mouth with salt water I’ve been doing good.Heres hoping we can all begin to feel less anxious in alleviating our own individual conditions during this horrible time.flowersGod bless you all much love and remember we’re not in this on our own

tiffaney Thu 28-May-20 14:02:15

MisChe, sorry, BMS not NMS, (typo!!) I have approved your application to join our group. Anyone is welcome, just answer a few basic questions and agree to the group rules. We are a very friendly group and although not medically trained, we speak from experience.
Please follow the link posted by Sheena, thank you

Welshgirlbestie Mon 02-Nov-20 11:37:36

I suffer with this condition too , I have found a low dose of amytriptyline is giving me some relief . I believe mine was triggered by having a wisdom tooth removed 4 months ago . I'm really trying hard to accept this condition and learn to live with it , otherwise I'm going to slide in to depression . Sending lots of love to all sufferers of this.

martinabw Tue 03-Nov-20 08:20:07

I am new to BMS. I am 60 years old. I believe I got mine after 9 weeks of meds for oral thrush after a wisdom tooth extraction. Dentist is sending me to endodontist to see if I need a root canal on bottom back molar. Is it ok to have a root canal with BMS? I’m worried it may make it worse. Any advice welcome.

DianeAline Wed 27-Jan-21 23:36:42

Hello MsChe, I have been suffering with bms since Aug. 2020 was to scared to see Dr, due to the whole epidemic issue. Its been very difficult to function with this crazy thing we have. did some research only to find out there really is no known cure, very depressing to say the least. I am a very active 64 year old women and this is really having a toll on me.. So finally did a phone Dr appointment and she immediately ordered me Amitriptyline 10 mg I took one that nigh and had complete relief the next couple days, and sent me to an oral DR. He checked my mouth and sent me for blood work to rule out and underlying issues , they all cam back good. He did tell me that there is no way to know how or why it started and that it could last weeks or years. (ugh) But he told me to crush an ativan in a tble spoon of water and swish for 2 mins. it helped some but not enough..I really don't want to have to rely on these types of meds but feel I will go insane if I don't do something..I also use xylitol tablets which really help while they are in your mouth for some relief .

DianeAline Wed 27-Jan-21 23:38:34

Welshgirlbestie
Don't it take you there, with so many of us suffering from this there has to be a solutions.. Hang in there you are not alone.

DianeAline Wed 27-Jan-21 23:40:35

I will also add that the oral Dr, did say it affects mostly women..Go figure right!

Wmichelle Thu 11-Aug-22 09:23:07

Hello everyone I was just wondering if someone could help me. I have a nasty burning taste in my mouth that goes around my teeth. It burns the front of my tongue and the front of the roof of my mouth. When I eat or drink I am ok to I have finished the food it comes back worse I have had to composite fillings where my tongue and roof of mouth burn. I have little cuts in the inside of my lips. I also have green phlegm with blood in it. I am on medication for acid reflux. Can this be a reaction to either the fillings or acid medication.

tanith Thu 11-Aug-22 11:48:36

Make a GP appointment and find out what’s causing it is your best course of action.

Mine Thu 11-Aug-22 12:24:00

I also had this horrid sensation in my mouth but along with that my saliva tasted of salt..It was horrid...GP gave me a longer course of antibiotics than normal and it cleared up completely...He thought it was a sinus infection..

Fernbergien Thu 11-Aug-22 15:01:48

Have this as I have rheumatoid arthritis. Immune condition. Possibly connected to all immune conditions. Needs to be checked out.

sharon103 Thu 11-Aug-22 15:34:05

Copied and posted:
Just as the name suggests, when you have this condition, a burning sensation affects all or parts of your mouth, including your tongue, gums, the inside of your cheeks, the roof of your mouth and even the back of your throat. According to the National Institute of Dental and Craniofacial Research, symptoms include a tingling or numbness on the tip of your tongue, a dry and sore mouth and a bitter or metallic taste in your mouth.

For me, the burning was mostly on my tongue, but it also traveled around different areas of my mouth. Carbonated sodas made my tongue feel prickly, and spicy foods sent me through the roof — especially the chili that I ordered in Santa Fe. What was I thinking? Even toothpaste and mouthwash irritated my mouth.

What Are the Causes?

There is no simple answer. There are numerous possible causes, according to the American Dental Association. Both men and women are affected, but the syndrome is more common in women during or after menopause. Other conditions associated with burning mouth syndrome are diabetes, nutritional deficiencies, oral fungal infections, tongue thrusting, cancer treatment and acid reflux. Damage to the nerves that serve the tongue and mouth, ill-fitting dentures, allergies to denture materials and an abnormal thyroid condition are other possible causes.

I attributed my fiery mouth to menopause. After about a year, routine blood work showed that I had a thyroid deficiency. After I took thyroid medicine for a time, the burning disappeared as mysteriously as it had arrived. My situation was probably due to the thyroid, but it also could have been caused by menopause.

What Is the Treatment?

The first step of treatment is to diagnose the cause of the symptoms. Start by consulting your dentist. He can determine whether your problem is oral, such as a fungal infection, irritation due to sharp or broken teeth or an improperly fitting denture or partial.

If your dentist cannot find any obvious reason for your symptoms, he may suggest that you try some simple steps to get relief. Changing to an alcohol-free mouthwash, such as Colgate Total* Mouthwash, or switching brands of toothpaste may help. You may also try eliminating gum, tobacco, soft drinks and coffee for 2 weeks. When you take medications, you should check the side effects in case any of them is known to cause a burning sensation in your mouth.

If nothing is helping your burning mouth syndrome, the next step is to visit your doctor. He may order blood tests to look for other disorders or nutritional deficiencies that could be the underlying cause.

Living every day feeling as though your mouth is on fire can cause anxiety. Some individuals become depressed. This is why I urge you not to wait to find answers or get relief. See your dentist or doctor right away.

tiffaney Sun 09-Oct-22 17:05:09

Hi, sorry l'm late to this thread but hopefully my post will bump this up to the top for anyone suffering from this debilitating condition known as BMS. Please see Sheena's post and link to the Facebook Support group of which I am an administrator.
You will need to answer a few questions and agree to the group rules to be accepted.
We the sufferers are the only ones who understand.

Trulys60 Sun 09-Oct-22 17:32:24

We have 3 grown up children and 5 grandchildren ranging from 5-16 years.2 from our eldest son and 3 from our daughter and we have just found out that our youngest son is going to be a daddy in March! We are so excited to be adding another little one to our gorgeous brood! X