Hello everyone. I hope you and your loved ones are all doing well.
I guess if you are reading this means you have this God forsaken disease. It's been a living hell for me for the last couple of months and because of lockdown I only got to speak to a specialist yesterday.
A little background about myself. I am a woman of 53 who started menopause 3-4 years ago. I have suffered with migraines all my adult life and have relied on pain relief medications for as many years. I might be addicted to them. I don't know. Anyway, I am pretty sure I have done some damage to my liver.
So, let's talk about BMS. It started just before lockdown when I admit, I was having a lot of anxiety attacks for a good 2-3 weeks after lockdown too. Some may say this could've been a contributory factor. Others might say it's my age and the menopause. Apparently mostly women over 50 suffer from this. Others might say it's nerve damage.
Others might say it's vitamin B12 deficiency or overload of iron etc etc...
Whatever it is let me tell you it's debilitating and depressing. Especially now that I know there is no cure.
Here is a LONG list of my symptoms:
1. Severe dry mouth
2. Scalding sensation or burning of my tongue and pallet.
3. Lack of saliva
4. Mucus/gluey like saliva
5. Sore gums as a result of the above.
6. Metallic and salty taste in the mouth
7. Altered taste
And here is a list of what helps:
1. Chewing sugarfree gum. Relief is temporary (RT)
2. Sipping water. RT
3. Sucking on lozenges. RT
4. Eating. RT
5. Breathing through the nose is my only alternative as breathing through the mouth is almost impossible as I get instant dryness.
6. Sleeping. I cannot feel the burn whilst asleep. So I guess when all my senses shut down for the night so does BMS.
What caused it apart from possibly anxiety? No clue whatsoever. I have also had some sinus issues in the past and have been using a nasal spray called DYMISTA. This has a dry throat side effect so I have stopped it for the last 5 days or so in the hope that this was the cause. No change so far.
I am also going to see this specialist on Monday. I shall keep you posted if anyone is interested.
As a last mote, if anyone is suffering with BMS let me tell you I completely understand what you are going through. Good luck to everyone and God bless!
MsChe Wed 27-May-20 10:40:04
tanith Wed 27-May-20 10:46:06
MsChe Wed 27-May-20 11:23:03
Oopsadaisy3 Wed 27-May-20 11:49:03
MsChe Wed 27-May-20 11:53:36
Toadinthehole Wed 27-May-20 12:03:18
MsChe Wed 27-May-20 12:43:47
Toadinthehole Wed 27-May-20 12:57:06
MsChe Wed 27-May-20 13:09:02
Toadinthehole Wed 27-May-20 13:12:17
Shrub Wed 27-May-20 13:30:27
MsChe Wed 27-May-20 14:22:58
Oopsadaisy3 Wed 27-May-20 14:24:37
MsChe Wed 27-May-20 14:54:20
Katyj Wed 27-May-20 17:39:28
MsChe Wed 27-May-20 18:49:50
Flutterby1 Wed 27-May-20 21:32:40
gillybob Wed 27-May-20 23:47:03
Sunlover Thu 28-May-20 00:19:06
Sheena Thu 28-May-20 07:19:02
MsChe Thu 28-May-20 09:51:14
Sheena Thu 28-May-20 10:47:23
MsChe Thu 28-May-20 11:57:19
Katyj Thu 28-May-20 12:03:23
MsChe Thu 28-May-20 12:39:01