Grade 4 rectal prolapse.

Attendance Allowance opens the door to other benefits though which is why I suggested soop asks for a benefits check.

I have a neighbour who is a hypochondriac and has brought her family up to be the same.
Two examples amongst many are ( one) her D went to A&E because she had poked herself in the eye whilst applying mascara and (two) her D went once again to A&E because her own D who she was treating with bitter aloes to stop her biting her nails applied a large dose to her M’s toothbrush and she thought it may have poisoned her, you couldn’t make it up.

Thank you SueDonim, and yes, it can be a case of he who shouts the loudest.

I was once blue-lighted to hospital with intestinal anaphylaxis. In the trolley queue, on the way in, a chap was shouting and screaming. 'Not you again!' said a nurse 'You won't get a bed for the night, you're just drunk again, that's all!'

My lovely ambulance people left, and I (quietly bearing the agony) was asked to leave my trolley and walk (stagger) into the adjoining room. (They were short of trolleys.) I couldn't stand, couldn't sit - so curled up on the hard floor on my side.

Yet - there he was, Mr Shouty Drunk, still lying on his trolley!

SueDonim every time I hear about cases like your daughter has described I’m utterly bewildered. I know it goes on, but it’s almost unbelievable. And then we have poor soop, and no doubt others, who simply can’t get the treatment they desperately need.
My daughter is a doctor too Sue, and as a GP she had patients come into the surgery, pre Covid this is, and demand sun cream for their children, because their child has sensitive skin and needs the expensive sensitive type sun cream. You couldn’t make it up! And she’s also had parents shouting at her because she wouldn’t prescribe nit lotion. Quite rightly she said that’s not what the NHS is for, sun cream or nit lotion. I agree with her, the NHS is for the treatment of sick people, like our own dear soop. It’s irritating knowing she can’t get treatment she desperately needs, whilst parents are asking for nit lotion. Surely it’s down to parents to provide sun lotion and nit lotion for their children.

Attendance Allowance is the pension age equivalent of PIP, and I think Soop already gets that.

You can't, but I think there is an equivalent, but not sure.

I'm not sure you can start a PIP application over pension age.

And, you have to be caring for 35 hours a week I think. It might be worth doing if you are still employed.

But a benefits check is worth doing at any stage!!

What about PIP or the equivalent for those over pension age?
That's not taxed or taken off one's pension.

I believe the Scottish Government are now responsible for new applications.

Hetty58

I say that because there is nothing to lose - and a possibility of having something done.

It seems to me that some people go to A & E for the slightest thing, and others hang on in excruciating pain, waiting for their 'turn' for treatment.

You wouldn’t believe some of the cases my young dd has seen as a junior doctor working in A&E. People coming in the middle of the night with a stye on their eye, emergency ambulances called for haemorrhoids, people wanting a packet of paracetamol for a headache or plasters for a cut. And they get nasty if they’re refused!

Then there are the ones who’ve left it so late that the staff need to move heaven and earth in order to give their patient a chance of life, when if they’d sought earlier treatment it wouldn’t necessarily have got to crisis point. It’s very sad.

kittylester

Carer's allowance is a replacement benefit so it is taken off one's pension so not worth claiming!

I didn't know that either, kittylester

Most unfair!

muse

I am just cross that soop (or anyone) should be suffering like this when we have a NHS!!

Yes, I have donated before to friends, neighbours, usually if they were running, walking etc. for charity. My lovely neighbours recently did a walk (they are much younger than me!).

Oh. I didn't know that kittylester. Thanks for the info. Seems they make things as difficult as possible for people.

Carer's allowance is a replacement benefit so it is taken off one's pension so not worth claiming!

Calistemon It was another kitchener that suggested crowdfunding and recommended a good website (gofundme). Others thought it a good idea. I then left a link for this site on the kitchen hoping someone would look into it for soop and MrS.

Who ever sets up a fund needs to know soop well enough to be able to give as much information as possible.

A combination of LauraNorderr's suggestion and crowdfunding would really set soop up financially. The private surgeon she saw sounded excellent. Soop said he was the best.

www.gofundme.com/en-gb?utm_source=google&utm_medium=cpc&utm_campaign=UK_GoFundMe_EN_Exact_Desktop&utm_content=gofundme%20uk&utm_term=gofundme%20uk_e_c_&gclid=Cj0KCQiA-eeMBhCpARIsAAZfxZDeNq3IPTfYD2sDAiaQ3CncCz1v0SRpz-ppgom6jb71VBz_9bF1kpoaAnF6EALw_wcB

I am so sorry to read of your difficulties Soop. You mention that your husband has attendance allowance. I wonder if you have also considered Carers Allowance as your DH is your carer? I don't know how much it is but some extra allowance could go into the pot. It may may be possible to do a mixture of crowd funding and using this extra allowance to pay some of the hospital costs on their credit schemes. Not fair I know. In the meantime get yourself on the waiting list and see if you can bring pressure to hear on the NHS to sort you sooner. 10 years of severe pain is unconsciable. I would recommend also presenting your MP with clear evidence from your medical records and see if he/she and your own GP can get you treated urgently. All of this must play havoc with your mental health as well as the physical issues and I would also strongly emphasise this. ?

I have thought about this and am going to play Devil's Advocate here.
What concerns me is that after having to take at least a two hour journey in an ambulance, depending on where it is decided to take Soop, she is then sent back home from A&E, with having any surgery. Added to that, there is no visiting allowed here in acute wards, due to Covid.

I don't think your daughter queue-jumped kitty - it was obviously judged an emergency and she was operated on.

She could have quite easily have had a 4 hour wait in A&E and sent home with pain killers.

Dd3 was in excruciating pain from gall stones bit was told there was a huge wait. Being a big brave girl she was prepared to wait but one night when the pain was awful, her partner called an ambulance and she queue jumped. Not on purpose but because she was In dire straits and looking after 3 children!

I say that because there is nothing to lose - and a possibility of having something done.

It seems to me that some people go to A & E for the slightest thing, and others hang on in excruciating pain, waiting for their 'turn' for treatment.

I think calling an ambulance is a very good idea!

Pitching-up at A&E, even in an ambulance, will not get Soop a colostomy!

There is no guarantee that the ambulance will take her to a centre of excellence that can perform this type of surgery, and unfortunately now matter how dire her situation is, it would not necessarily be deemed an emergency.

Ten years is a long time to suffer - what a terrible situation to be in. If you can cobble-together the funds from family and friends/equity release then I would do that - grossly unfair I know.

We are researching 'Just Giving'. My husband does receive a modest attendance allowance. Thank you for mentioning the point.

The laxatives that I'm having to take because I am seriously constipated result in frequent dashes to the bathroom. The daily walks that we have enjoyed for years, cannot now be enjoyed.

I assure you that I am not a 'drama queen'. Far from it. However, this condition is taking its toll both physically and mentally. I cannot ask to be admitted to hospital as an emergency because, at the moment, it is no such thing. BUT, if that should be the case, I won't hesitate to get myself seen in A&E.

Please continue to share any thoughts or information with me. I am extremely grateful to be able for your kind responses.

The only experience I have of crowdfunding was a coastal trek I did some years ago to raise money for a disability charity. The Go Fund Me website is one of the main providers. Their website explains how it works.
tinyurl.com/nuzxv9a8

Soop
I have nothing to add only that I’m bloody furious at the un-fairness of it all.?

For those who want to know how to crowdfund.

www.crowdfunder.co.uk/how-crowdfunding-works?utm_source=google&utm_medium=cpc&utm_campaign=ex_crowdfunding&utm_term=ph_how_to_start_crowdfunding&gclid=Cj0KCQiA-eeMBhCpARIsAAZfxZBFuakEGtSUqyLwz1kaYncmYrVmOyUgaoT6aZg8nz-uP_yUjdUyTjUaAgUuEALw_wcB