Black Dog 15

I expect it will be the usual super food, HVDY, they do so well. How is MrHV doing? Good if he feels well enough to pick up some chores.

I am calling the lump The Alien as its a limpona (fatty tissue) non nasty as its sitting on top as it were, but has a blood supply which raises?? as Alien has links to body

... so have to wait for Docs To Talk, most likely outcome removal of Alien and biopsy tb sure as its rather big and where it is means blouses etc dont fit at shoulders.

Mostly feel relieved and bloke was so nice he tried to talk to Docs straight away but not possible but he said will send result to GP's end of play today and that's useful because by sheer co-incidence I have my annual MOT with practice nurse tomorrow so shall be on hand. So I went to the gym and had nice natters and bit of yoga. Manger wh knows back story with Ex asked after matters so I was able to joke and say that he told me he hopes that I will tell any man I find that I am cruel and mean with mental health.
We just laughed. Like, where exactly is this queue of men that are supposed to be snapping me up.

Hoping yogurt some F2F time Sweetpeasue.

got rather "high" and there will be a come down so will try to do the things that give a gentle landing.

Wyllow3 It was lamb hotpot - neither of us like lamb, so we had jacket spud and tuna, then fruit strudel and custard. My DH is ok, thanks. He didn't do the vacuuming, but he folded up a load of washing and put it away. Glad you got on ok today. You mean Lipoma. My friend has got a huge one on her upper arm. It's good that you had a laugh about what your ex said. Are there any good-looking blokes at your gym? The ones at mine (I have been on the odd occasion) were all young and muscular - and I realise I've got sons older than them .

Hope all BDers have been ok today x

Yes, I meant lipoma. Keep getting it wrong. I hope your friend has had an ultrasound if its massive??

NHS guidelines say
"All lipomas in the upper extremities measuring larger than 5 cm in a single dimension should be surgically removed due to malignant potential". Mine is 7cms like an 80's shoulder pad.

Men at the gym? 18 to over 80. Depends when you go. Muscular? I know what you mean, we have a small number who come to pose, but really most men and women come to this particular gym for health improvement/physio work/health maintaining/company and weight loss. There is only a small weight lifting area with mirror for posing which is fun to observe.

Wyllow glad you’ve found out what the lump is. Good thing you got it checked out and if they can remove it all the better. In the meantime I hope your alien keeps a low profile.
Your Ex can’t let go and move on can he. I hope you manage to maintain non contact with him and perhaps he’ll get the message. He’s seeking response so he’s trying to wind you up I think.
Scaredycat yes another night with no walking. So good,
Managed to speak to GP today who is referring DH to a specialist heart nurse on urgent referral. Hope we get an appointment soon as DHs legs are sore.
Well that’s a disappointment your urology visit. Not a good bedside manner at all.
Am so sorry. I feel bad for you. I can only imagine how you felt last night. Mind you if he did say chronic pelvic pain (even if that’s not exactly it) perhaps you could use that to push for faster referral to the pain clinic.
How did you get on with the GP? Any help?
HVDY do your legs hurt. DH’s are very sore and show not much in the way of reduction. He can’t wear shoes so we can’t go out. It’s a worry.
Lunch sounds good and at least you got your washing sorted.
I’m not good today. Considering we had a good night I should be ok but I’m not. I feel frazzled. I’ve been on the phone with doctors, insurers, sorting out orders all day. There are lots of things going on in my mind and I can’t settle to anything.
Going to try for an early night again and try and shut my worries up for the night.
Scaredycat Ellie Anne Candy hope you are all ok.
Sleep well all x

HVDY Dont think I'd be a lover of lamb hotpot either. Almost anything with custard though. Those Gyms youve been to sound terrifying to me. Expect there were lots of 'Jane Fondas' too. The CPP title seems to cover a lot of things and yes IC. I suppose I'm being touchy but I just dont like the term. Many organs in pelvis and Id prefer them to have separate diagnosis but I can see why the CPP label has been coined as there are a lot of nerves in the pelvic area that are connected.
Wyllow I'm glad you could laugh too. But, who knows? Never say never. 🤗 Oooh your lipoma is an alien that has your blood supply. Ive been looking at mine now with horror. Its definitely raised, I see it clearly when I straighten my arm and Drs told me its lipoma but Im not really worried as mine falls just within the 5cm range. Yours does sound quite large so I understand why you needed it checked.

So I got my F2F and it was a good long appt and I was well prepared (written bullet points/issues) Addressed needing to be informed (CT overruled and HRT taken off prescription). Although I should have been included in that, I see why now GP did it. There was error made by other GP but because I needed to be seen, I think the last bleed over 3mths ago was 'used' as a genuine need to get me seen and used in expedite letter. GP believes Gynaecologist would ask me to stop HRT, if I was still on it. If Ive already had a time off it, he can start it again. She said Ive waited so long that she didnt want me to be sent away to do the trial off it. She said it's up to me. She thinks he will be able to start me on it again after trial. Oh dear. Well it sounded feasible at the time. I was totally honest and I'm being referred to MH. I'm in 2 minds about it (no pun). It scares me. But Ive told her how v bad the pain is and the unpredictability is sending me into elation one day when I think pain has gone into despair the next when its back. With despair comes irrational thoughts.Expedite letter to pain management too. I'm just scared of the pain and I couldnt bear it if its for life. Not in a place to accept the terrible pain AT ALL. Especially when it neednt have been caused. I'm hoping for diagnosis that will cure. The alternative I cant face. Especially with no support. Sorry if Ive gone on.

Hoping everyone has had a decent day and you are coping.

Doodle Sorry I missed your post. I make such a meal about finding right words I take forever in mine. I hope your DH gets appt with heart nurse soon too. I can see why you must feel frazzled with so much going on with your DH having so many health problems to deal with. Sounds like you're sorting out a lot of stuff. Dont worry about replying. I think your mind just needs to rest. Hope you get a restful night tonight. Yes I was upset last night and with the pain but apart from anxiety about what to do at GP my pain has been only just noticable today. I managed to get BCard for son's birthday and took it round. First time ever thought Id not be able to do that.
ScaredycatWhiff**EllieAnne *Candy*Nadateturbe * Hope all have a peaceful night. and all who read. x

Wyllow Yes, my friend has had hers for years, so had an ultrasound ages ago. I've known her for 20-odd years and never noticed it until she pointed it out a few years ago. (Like me, she's overweight). Hers is probably larger than a golf ball (small orange maybe).

Doodle My legs sometimes feel as though they're burning, stinging and tight. They were very uncomfortable in bed last night but have been ok today. How about shoes from COSYFEET? Have a look. It's no wonder you feel so frazzled - you have had so many awful nights with your husband, so many appointments/prescriptions/doctors, etc. Even very strong people can only be strong for so long and then something has to give. Try to rest whenever you can, and please try to have some time to yourself - go for a coffee somewhere, have your hair done, see a friend, whatever you can to have a bit of a break from caring for your husband.

SweetpeaSue I hope you get the pain clinic referral letter very soon. You can't go on like that. I was on Mefenamic Acid for ages. HRT or something like that might very well help you with the bleeding. I had Tranexamic Acid, and then some Progesterone tablets. Anything is worth a try.

Hope all BDers have a restful night. Son2 is away tonight, so --Noise like a herd of Buffalos--DH will sleep in there tonight x

Hi all
Doodle- oh I,m sorry you don’t feel so good today but I,m not surprised. You have had so many broken nights with worry and concern for your dear DH. You,ve also had niggling family worries too.
It must be so difficult too that you can’t get out at the moment to have a change of scene.
I hope you manage to get some decent rest tonight to soothe your weary mind.
Wyllow- good name for your lump and glad it’s something that can be removed.
My DH goes to the gym with half a dozen friends he’s had for ages - think they enjoy the coffee and chat afterwards as much as the exercise.!! They are deffo not the posing gym types!
It’s good that you can laugh at the absurdness of your Ex and his attempts to wind you up- you are getting stronger.
Good luck with the MOT
HVDY- only one reason to have Lamb and that’s mint sauce!!
Hope you both enjoyed your day today- how is your SiL?
Glad your DH is doing ok and today he was the washing fairy- hope you sleep ok tonight away from the hippo noises.
SweetPeaSue- so sorry to hear you so distressed and I really hope that there will be a solution soon. Glad you got to see your son - it’s amazing how we can deal with stuff when there is even small respite. Hope he has a nice birthday x
Whiff,Candy,EllieAnne,and everyone in BD or just reading wishing you a peaceful nightx

Another who's not surprised you are frazzled an exhausted, Doodle. MrD has so many. health issues ongoing at the moment its a full time job never mind keeping general life going. I certainly hope you get more decent nights to support what is needful in the day. So many different avenues to pursue, and hoping the heart nurse can be helpful - and quickly.

Sweetpeasue you deserve a gold BD medal for what you covered with the GP today. I realise that the initial feeling better that you have covered getting referrals can pall as of course they all take time to work through - the pain, the MH one, the ??? but yes probably the HRT. Dont worry if you change your mind re the MH referral
- wait and see what happens and if its any help, or your concerns about physical things being taken less seriously because of that referral come to be the case,....
.... but it seems to me the GP took all on board as a sort of taking every opportunity for every avenue that might help and not pull out of other investigations..

HVDY "My legs sometimes feel as though they're burning, stinging and tight. " whats causing this? Re you friend - I guess a lump can hide in bits of the body that are a bit fleshy. . Just under the shoulder bone it's obvious is all?

How are you, Scaredycat any outings? Yes, your DH's gym sounds similar. The idea that men don't natter in fact Is A Myth

Wishing all BD's as good a night as possible. Maybe we might even get sun tomorrow....

Still here and reading all you ups and downs. Had a fall on the bus last Thursday going to craft group as it was so cold didn't realise I had hurt my back until I got home. So as I was first to arrive pulled tables and chairs out. Twit. Turns out I have sciatica and pain the the bum literally. Will check in again soon. Didn't want to think I had disappeared 😃.

Sorry so many of you are going through the mill but nice to hear some good news as well. 🌹

ScaredyCat My SIL is really deteriorating now - she doesn't ever instigate any conversation, so only speaks when spoken to. She can't follow any quizzes, Bingo etc. She takes tiny, very slow steps when moving. DH and I are meeting her and my brother for coffee in a cafe later (they will possibly cancel)

Wyllow I've apparently got Vasculitis (inflammation of the blood vessels), so am awaiting an appointment with a Neurologist, to have nerve conduction tests to see if I've got any Peripheral Neuropathy. Cause unknown. I hope you don't "come down" from the high you had recently.

Whiff Oh no . Sciatica is painful. Are you taking anything for it?

DH and I are meant to be meeting my brother & his wife for coffee & cake/snack later - they might cancel though. They never go out for coffee or lunch. We'll see. Hope all BDers manage to have a decent day. x

Whiff Oh no I'm so sorry to hear about yohr fall. It must have shook you up a bit too. Was it due to your illness? I expect trying to move tables and chairs could have made it worse. DH used to get Sciatica and it's horrible. You should see the Dr if it doesnt seem as if it's improving any. Hope you feel better soon and its not going to hang around too long.
HVDY
Its sad about your SIL's deterioration. I hope they didnt cancel and you all managed to get out somewhere. Are your legs still burning on a night? It must keep you awake. Hope the Neurologist appt wont be too long though.
Not too bad in night though woke at 5.. Bowel felt tight and swollen but tried to ignore and set off for garden centre at 11.. Drove 7mls had to turn back as pain much worse and nearly sick in car. Really bad but now its eased off quite a bit. Rang surgery to see why theyd asked me to ring them about test thinking it was swab test. They said Id to get appt with Dr as CT test was 'borderline'. Asked what that meant. She said just to discuss it with Dr. My GP on Monday so will have to join queue again.
Hope everyone's day is going OK. x

SweetpeaSue Met my brother and his wife. Sometimes, my legs/feet ache, burn and are swollen, other times they are not too bad. They're swollen and burning today. I wonder if foods/drinks/medications make any difference, so I'll start writing things down to see if there's any pattern (I doubt it but it's worth a try. I also have days, since the stroke, when I'm not very coordinated and actually seem quite disabled (today is one of them), then other days when I'm fine. I hope you get through to the GP ok on Monday. Things seem to take ages, don't they? All this chasing - up of results, trying to find things out, etc.

I hope everyone's ok today x

Hi all
Whiff- so sorry you fell it must have shaken you up a bit.
Sciatica is really painful I believe- hope it gets better soon. Chairs etc are really heavy.I know when we clear ourWI hall at the end of the meeting I only do one at a time instead of stacking like I used to!!
HVDY- Ah that’s sad about your SiL . When you have to watch someone who you,ve known since they were young and full of life gradually disappear it’s heartbreaking. Our oldest friend is the same but we visit when we can as we love him and his wife .
Hope you were able to meet up as I,m sure it helps your brother to do something nice sometimes.
Wyllow- hope the MOT went off well.
Just did M and S food shop today- a few treats. Haven’t walked as still feel so exhausted.
SweetPeaSue- what a shame you couldn’t make it to the Garden Centre- it must have been awful to feel so poorly in the car. Sod’s Law says it would ease off later eh!
Oh dear more Phone queueing on Monday- you,d think the GP would call you if they want to discuss something .
Doodle- how are things today? I do hope you had a decent nights sleep and feel a bit rested.
Take care allxx

HVDY Glad you managed the meet up. Your day doesnt sound so good though, with legs being bad and having the co-ordination problems. I do hope you can get that neurology appt soon. You're right in that so many things take ages now. Hope your DH is managing too and that his cough isnt as bad.
Scaredycat Its awful that youre so exhausted. Sounds as if youve had a proper nasty time of it. Your spirits will be low too. Im sure you must be fed up with it all. Hope your sister is doing ok and is managing being at home.
Receptionist just told me that CT scan results back and I'd to make Drs appt..

Evening all. It’s been a full on day and I can hardly keep my eyes open.
Went to DS with cake card and presents for his birthday. Spoke to other DS for a long phone call. Had shopping delivery and been to Sainsbugs too.
Sweetpeasue I love custard too. Yummy 😋
I think the GPs explanation sounds good. I agree it does sound feasible and is probably a good way ofsaving you being sent away again to try something out.
I’m glad you are being referred to the MH team. There is nothing to be scared about. I have been before and was referred for CBT. I didn’t think it helped at the time but later realised it did and made a difference to my life.
Good the pain management referral is being chased. It sounds as though your GP has listened and is acting well on trying to get your help. That is good news.
I don’t think you will be in pain for life. I think some treatment will be found for you that helps. Don’t lose hope.
Waiting for test results is a worrying time. Try not to guess what they are going to tell you on Monday. Why do these things always come back at the weekend when you can’t see anyone. Hope you have a better night.
HVDY I’m feeling better tonight. thank you for being so kind. The chat with DS2 helped and seeing DS1 happy with his family helped too. DH’s legs weren’t so swollen this morning but they get bigger as the day goes on.
We have been notified we have a phone call appointment with the GP Monday morning.
You must find it sad and upsetting to see how your SIL is deteriorating. I remember the same with my brother,
Just try and chat as normal but don’t contradict anything she says which might not be true or correct her if she makes a mistake. We were advised just to go with whatever flow my brothers thoughts took him in.
That nerve conduction test is what DH had when they decided he had peripheral neuropathy.
Sorry your legs can be painful, it’s a good idea to keep a diary of how you are day to day. GPS often ask when you notices symptoms starting. Hope you have a good weekend.
Scaredycat like you our walking ability has decreased recently. Remember when we both used to go for long walks each day. Hope you and your DH are much better now. I do know others who are struggling with tiredness post Covid.
Hope you have a good weekend.
Wyllow I’m normally ok but I must admit I am concerned re DHs legs. We decided not to do anything till Monday., everyone knows going into hospital on a Friday is no good because you don’t get seen over the weekend,
I’m better tonight but very tired. Have you been to the gym today. Is it a quiet place or do they have back music all the time?
Oh Whiff I’m so sorry. When pain from an injury doesn’t happen straight away we think we’ll be ok. Then when it hits you you realise you’ve exacerbated it by carrying on going.
Take it easy this weekend and hopefully you'll feel better soon.
Have a good weekend all

SweetpeaSue Some days I'm aware of the effects of the stroke, but other days I'm quite ok. It's just how it is. My husband is still coughing, just the same. He's started the diuretics (but I still wee more often than he does) I hope you have a pain-free night. How's your husband's BP now?

Doodle Lovely that you saw your son for his birthday and chatted with your other son. Yes, I know about not contradicting anyone with Dementia. We just change the subject when she says something that's not correct. I had quite extensive training on Dementia when I worked for 6 years for a company that was then called Crossroads. I had 14 regular clients each week, all with some form of Dementia. I used to go to each one for 2 hours minimum, up to a whole weekend with one. (I used to work 40-50 hours a week then)
Do look at "CosyFeet" website, for shoes for your DH.

I hope all BDers have a restful night x

HVDY I was hoping your DH's cough wasnt as bad. Crikey we're all falling apart aren't we? DH got a call from a GP about BP and he said he was going to call the consultant he saw in hospital when he had brain scan after suspected TIA. Think it was to see if he should be referred to BP Specialist.
Doodle Im sure you must be very tired as its mentally draining when we worry about our loved ones, apart from all the back and forth to appts, waiting for calls, picking up meds and in your case the nightly walks. Hope you get a decent night's rest tonight. I got a text on Wed that Id to call Drs about result of test and assumed it was about a swab test. I asked GP yesterday if CT results back and she said they weren't. Perhaps it hadnt been put on her screen or something, I dont know why she didnt know. But she was great yesterday. Pain came back with bowel 'freezing' and feeling like its grossly distended. I'm thinking its nerve damage after op that causing bowel and bladder probs. Told her yesterday about the back pain that happened after the op and having to stand at Gynae appts. She typed extensively, and I will put this to her on Monday. Was sent to A&E with letter from GP at the time as I lost all feeling in 1 leg for hrs.
Pray you have a good night Doodle.
Wishing all a peaceful night and mind. x

Busy day, decent afternoon sleep, run out of any brain, will catch up tomorrow all BD's, best nights all.

No news here and it sounds like we're all waiting for appointments and not an easy time xxx

Thank you all for thinking about me when you all have so much going on in your own lives. Last night was the first night I managed to get comfortable straight away and fell straight sleep. I have been taking low dose of Amitriptyline since 1992 for nerve pain . I know in higher dose its an antidepressant. But it works on nerve pain. When I have a pain flare have to take extra one of a lunchtime until pain goes back to level I tolerate. Been taking extra Amitriptyline plus until 2 days ago extra co codamol. I have been using a electric heating pad which has helped. Even sitting on it to ease the pain in my buttocks. Been doing gentle leg exercises and making sure I squat bend to pick things up.

Will be very careful this weekend as I want to go to my exercise class but will only do what I can.

My fall was due to my HPX . I have a unsteady walking gait . Wide leg stance and my feet point outwards. I have used a walking stick since I was 29 and if I have nothing in my left hand my arm stiffens and sticks out like a stabiliser . Others with HPX are the same . Those without a stick both arms stick out. Have no spacious awareness and can't tell the speeds of traffic. My legs stiffen and feel numb at times. And my left leg doesn't always want to work so have to flick it forward to walk. I can walk slowly but can't keep in a straight line and veer into walls,fences even ended up in a privet hedge. Luckily it was very dense and had low wall so stayed upright. This is just a very few HPX syptoms. But having my diagnosis my life makes sense and my friends on the HPX page are a mind of information I know more about HPX than my neurologist. So teaching him. Doubling my dose of Clonazepam has made it easier to walk as my legs no longer feel like they have planks attached. I can bend my knees when walking now.

Having any long term condition can be very lonely until you find others going through the same thing. Many here must have felt that way . But being able to talk to others and exchange information means you are not alone anymore. I felt weird until last year but know I am normal for HPX. Only took 64 years but better late than never.

Can't remember who said what but I found the heart nurses brilliant and and full of helpful advice plus they have time to listen to all your worries and organised treatment ,tests and tablets as all the ones I have dealt with are nurse practitioners. Cardiologist are great to but they have so many patients to see . So the heart nurses see you as a whole person well that's my experience.

Wyllow your ex is a piece of work and what a horrible thing to say about you. Can't remember if it was you or someone else who mentioned Jane Fonda but when I got down to 15.7 st decided to go too sit fit classes to help with my weight loss and get fitter this was in 2018. My cheeky brother said he would by me a pink sparkly leotard and leg warmers . Because my confidence was low I felt I couldn't wear trousers so did them in a skirt. Which worked well. By then I was a size 26 down from 32. My daughter once I moved here got me to try on some trousers a size 16 wide leg been wearing them ever since.

I did got to the Brain Charity event on Wednesday. Finally saw the lady who has been helping my PIP tribunal and she got me the solicitor. It was wonderful to met her and she hugged me and we had a good chat . At least she had since the problems I have . Took my 90 mins on 2 buses but I got there. There where couple of 100 people and stalls from charities . Two good speeches by man who runs the place and the lady sheriff of Liverpool . Had a sing along with Holistic harmony a singing duo and was listening to a talk about Brain Fog. But had to leave before the end as I had been sitting for a couple of hours and was in lot if pain. But I know now exactly what Brain fog is and how it can effect your mental and physical health. Talked to a lot of people many like me who look normal until we move. Even had free tea and cake. Had to leave at 2 and have taxi home. Drivers here are great and don't mind putting my legs in and out for me and then having to pull me up . I give them a bit extra . No one has refused to help me . Where I used to live taxi drivers wouldn't have helped me . So glad I moved to the north west people here are so different . Plus without my move wouldn't have my diagnosis of HPX or know about the whole in my heart and I have PAF.

Sorry not to name everyone but you are a chatty wonderful group and keep going no matter what life throws at you. 💐💐💐

Morning BD’s.
Very tired after an over busy yesterday but no choice there, no gym it was 2 appointments and an essential shop, then i felt good in the evening and blast and grumble my subconscious reared up and a very bad night, so its a dressing gown day. Probably gym tomorrow.

But I did arrange a ?? get together for us three remaining Sibs in July, my brother can collect me and drive down to Sis (Devon, not too far from the sea).

Whiff you' been having a very bad time! Good event: but how long to wait for PIP stuff? You are right about benefits of weight loss - over weight makes a difference to quite a lot of conditions. Because my meds (as others here have found I'm sure) make me put on weight I've been on a strict diet for some years now including bowel friendly diet, so the reality is eating a very small range of foods but being comfy with it. I also used to have an eating disorder which meant no weight gain on those meds.

HVDY its really clear to me now how badly your legs are affected. its sad to see SiL deteriorating...I'm just glad she still attends the day centre with your help.

Sweetpeasue re results coming back just last week - the strikes have delayed results coming through. (This could affect MrSP too in terms of triaging appointments and call backs.)
This is because there is the actual scan, but then the doctors have to write the report on same, and there is a backlog at this point. But I hope Monday can still move things forward a little now the results are back. I hate waiting over weekends tho!

You are right about waiting for Monday, Doodle. In fact, if it's not urgent (which I think yours is!) I try and wait for Tuesday. MrD and yourself need all the support you can get. At the gym certain areas have music but my work out/yoga bit doesn't and has natural light too. what a difference family can make, can't they? glad you had some good contact.

Scaredycat is so frustrating being able to do so little, isnt it? Hope the treats were nice and that you see gradual improvement.

Its a hard skill to learn - feeling life can be rewarding without "doing" much - work in progress as it will happen to all of us sooner or later, and developing those inner resources a very mixed bag.

(And thinking of Ellie Anne because its the dreaded weekend)

Love to all.

SweetPeaSue- yes I do feel a bit low at the moment- I have been very lucky to have stayed fit for so long so it’s hard to accept the present limitations. We had a walk this afternoon but because of the exhaustion and AF being persistant at the moment I felt really panicky when we started out- almost frightened to move. We stayed out though and it subsided eventually.
My Sis is improving very slowly and I know how hard it is for her. Was very pleased they have accepted help at home as she has such a long way to go and BiL can’t do everything. Thank you for asking .
Hope Mondays GP call goes well.
Doodle- What a busy but lovely day you had yesterday . So nice for you that both your boys are close enough for Birthday visits.
Ah yes - our lovely walks. I remember how you used to love all those chance encounters with people you met.
I can’t believe that it was only November when DH and I were walking all day in our beloved holiday city. You must be missing your cruise holidays too .
I expect you are too weary to use the treadmill at the moment.
Soon it will be warm enough for you both to sit outside and enjoy your lovely river.
HVDY- what a busy working life you had - so many people you have helped.
I think you are really brave how you deal with the after effects of your illness.
Sorry your DH is still coughing badly- it must make him very tired.
Whiff- your Charity event sounded really interesting and enjoyable for you. So sorry that the pain got too bad to stay longer.
I lived in the NW for a while and yes the people are lovely so friendly. Glad you are happy there.
Wyllow- July will be something lovely for you to look forward to- all together and near the sea- Heaven.
Hope you are enjoying your dressing gown day . You,ll be ready for the Gym tomorrow - it does sound a great place for you to go.

Love to allxx

Scaredycat understand the panics "I won't be able to move: and "I won't get better's" and the mood is bound to go with. so really glad you did make it out.

Baby steps. I keep overdoing it and its so counter productive; I'm still in dressing gown and have read quite a bit so maybe getting better at "accepting" as less panicked by "not achieving anything" than usually.

Evening all. I’ve not been on for a few days. We came to our caravan late on Thursday evening and have spent the last few days getting out and about a lot, eating out and sleeping! I know I’m luckier than a lot who can’t exercise much but it really is my therapy and don’t know what I’d do without it. It does exhaust me though and I’m finding I need to nap for a few hours afterwards whereas I never used to. It’s either the meds making me drowsy or just getting old!
I’ve caught up with all your messages and although I’m not replying personally to you all, I am thinking of you all especially those with worries or are in pain. I hope you’ve all managed a decent day today and will reply properly soon. Love and best wishes to all xxxx