Thank you to those who think that there are some of us who are 'deserving', and sorry that I am having a 'rant'!
I've had 24 mostly major surgeries since 1998, and I fear number 25 is upcoming. I am NOT fit to work, although I dearly wish I was, as I am socially isolated and hate this 'existence'!
For those who are deserving, (and I know of someone personally who definitely isn't and has been playing the system for decades, mending his own roof with a bad back! Apparently reported several times, but as far as I aware nothing has changed) it is VERY hard to get sickness benefits - we really do have to jump through hoops! Most people nowadays who claim PIP, are refused. Firstly you are assessed by someone who is a 'Health Professional' someone who is maybe a nurse, paramedic, doctors etc but they are actually trained to deny the benefit and have targets! Some have 'whistle blown' about it and it has been on the tv when someone went undercover on the training course. I could do that job with my eyes shut, I am a nurse, very knowledgeable about a lot of medical conditions, (as I have a lot of them!), and if it weren't biased, and I could work my own hours and do it from home, it would be perfect for me, but my conscience just wouldn't be able to cope with it. Their report is then sent to the DWP - they've been caught out lying many times on these reports, and asking stupid questions like "when will your arm/leg grow back, when did you start having Cerebral Palsy etc so must be failed 'Health Professionals!) and then a DWP Decision Maker decides on it, and it's usually refused. The form needs to be filled in correctly in the first place, and it's often not what you say but how you say it. You then have to go through what's called a Mandatory Reconsideration, where another 'Decision Maker' looks through the application, but only 29% of these are overturned. Your next step is going to tribunal, where 70% of claimants get a reward, (that says it all really ....) The DWP hope that because it is so (deliberately) stressful, that you will give up, which many people do - I know of 2 people who have recently, but am trying to help them with it. The tribunals are independent, and FAIR, which the DWP is not.
In some ways I was 'lucky'. It was DLA that I claimed, and still do, and because I've so much wrong with me, I sailed through the process, but it was easier in those days as well. I'm just crossing my fingers that I don't get migrated onto UC and PIP before I reach retirement age as that would make me worse off than I already am!
Scope, in 2019 published what they called the Disability Price Tag report - in 2019 they researched how much an 'average' disabled person needed in order to make their life equal to a non-disabled person - it was £583. Roll on to 2023 and they have recently published their updated version, and it now stands at £975 a month! We get about £12,000 a year on disability benefits - where are we going to get that EXTRA £12k that we need to have a full life? We can't! I looked into the Rent-a-Room Scheme, wondered if maybe I could help someone from Ukraine - but they will only let me keep £25 a week! That wouldn't even pay for the heating (which has been off all winter as I couldn't afford it) I would also have to pay Council Tax - my £25 a week wouldn't even cover that! Changing my rather odd lifestyle for £25? There is no way I can increase my income without going illegal, and then I don't think I'd be comfortable with that.
Then there is another thing you have to get through - the 'fit for work' assessment, also designed to confuse and refuse ... Here another Decision Maker does an assessment whereby they look to see if you can possibly work, by ....
1 - Using your upper body, or reaching to grab something; ie seeing if you can take a pencil out of a top pocket
2- Your physical ability to use your hands, can you lift a small cardboard box in front of you
3 -Being fully conscious and aware when awake;
4 -Being in control of your bladder and/or bowels;
4 -Understanding communication from others;
5 -Being able to move around and take care of your own safety;
6- The ability to communicate what you want said to others;
7 - Sitting and standing up by yourself.
Also mental activities.
1 - Having appropriate behaviour when being around others;
2 - Being able to engage with and maintain social interactions;
3 - Travelling around;
4 - Being able to withstand change;
4 - Awareness of unexpected hazards in everyday life;
5 - Learning new skills or activities or tasks.
They will award you a point if you are able to do them. If you get 15 points, you will be considered to have limited capability for work. They will then assess whether you are capable of ANY 'Work related Activity'!
The DWP says it takes into account your medical evidence, but you have to get it (things are a little easier now hospitals send you the copy of the letter they have sent to the GP) Some surgeries charge for letters to be written, and copies of medical records used too be about £50, which a lot of people not yet receiving these benefits just can't afford.
IF the Tories get in at the next election then they have devised another 'nasty' plan for us. Medical evidence won't really be that important then. They say they will be "taking the stress that some disabled people have by making it just the one assessment! One assessment, which will be decided upon by new well trained "Work Coaches", who will focus on what you can do, and not what you can't and sod what your GP/Consultant says ... I can't wait!
Anyone have any vacancies for a mattress tester (actually thinking of that one, I couldn't even do that, as I can't get in nor out of a bed, and I sleep in a chair!) or a doorstop maybe?
Just been up the garden to water again my newly planted plants. Am now in a lot of pain, sweating profusely because of it and feel very sick because I've had to stand, walk and bend. Will now be hours before I can manage to eat anything, and have Tesco coming in the next hour so will have that to put away. It's a wonderful life ....