Black Dog 18

nadateturbe The hospital thought the falls were due to possible TIAs. I'm not sure - she had fallen a few times at home, but not with this frequency, and without injury. She's been used to sitting in a chair for every minute of the day, apart from going to the toilet (even then, she used to sit and wee, knowing that she was wearing incontinence pants). I told my brother several times over the past year that he should have been encouraging her to move about. He said he wanted her to sit there because he was worried that she'd fall if she got up. She has a delta (3 wheeler) frame at home - I persuaded him to buy it 3 years ago. *She's still in casualty, waiting for x-ray results. The centre isn't going to stay open, they've got enough money to open next week and then that's it.

I'm getting hotter by the hour, so I'm going to feed the foxes then have a shower and go to bed. Love to all x

Caught up with you all but very poorly , love all BS''s x

You are not alone Wyllow3 sending loving hugs and saying prayers.

Evening,
Not long got back from a lovely evening with old colleagues. So nice to catch up.
Whiff a lovely caring post. Nice gestures to the people who helped you too. Not many people do say thank you, a simple gesture but can mean a lot. You’ve obviously got a lot of knowledge to share but think about whether you’re comfortable doing it so you don’t put yourself under too much pressure. I’d be terrified but we’re all different.
Ellie Anne yes very hot to walk. I hope you like your haircut. Don’t engage if you don’t want to. They need to understand that not everyone wants chitchat.
HVDY such a shame about the day centre. I’m sure it’s a help to so many people and possibly a lifeline. Getting funding is so difficult these days. Hope your SiL recovers ok, bless her. She must wonder what on earth is happening to her.
Doodle I do have a park but it’s more of just a play park with not much going on. They are thinking of opening a community hub there where people can meet, serve coffee etc so if that goes ahead will be nice. Again, all down to funding. Enjoy the rest of your cruise.
Thinking of everyone else and sending much ❤️. Night all xx

Think of you every day Wyllow Hang on in there. We all want you to come through this terrible time. Hugs and love. X

That was a nice evening Candy.goodnight.
Goodnight everyone. Hope it's a peaceful one.x

Wyllow3 Wishing you well, and hoping that you soon feel a lot better.

Just rang the hospital, to ask what ward SIL is on - she's still in A&E! She's been there since 11am yesterday. Nobody answering either of the 2 numbers I've been given.

It's going to be a hot one again today. Looking forward to aqua aerobics this afternoon. Hope ALL BDers manage to have a decent day x

That is very bad HVDY. NHS is falling apart.
You have a good day too.

25 hours of being in A & E, SIL still waiting for a bed - she hasn't sustained any injuries, but they want to do assessments to find out why she's been falling so often - I'd think a lack of muscle, lack of exercise, no coordination, all attributed to sitting in a chair all day long. Aqua aerobics cancelled- the big screen isn't working. It's too hot to do any housework . Love to all x

Well being encouraged to just sit in a chair at home would definitely not have helped HVDY. Enjoy your lazy day.

Wyllow thinking of you. what are you doing today? xx

SIL was eventually admitted to an "older person's assessment" ward, after being in casualty, on a trolley, for 27 hours! I've changed the beds, done 2 lots of washing, cleaned the kitchen. That's enough.

Hope ALL BDers are coping with this heat x

Hi All.
Sorry I,ve missed a couple of days. Had a bit of a wobble due to the heat and HA. Also my Birthday is this weekend and it’s always a day of mixed emotions as my dear son who I lost was born on my Birthday - what a lovely present he was.
Also saw my friend who I feel very worried about - can’t post about that. My eldest Stepson and his wife visited too - so nice to see them but talking a lot wears me out sometimes- what a moaning Minnie I sound. But thanks to the ADs I can deal with stuff much better.
Nadaturbe- yes it was lovely to have my GD all to myself- her children had gone back to school so we took advantage.
We have 4 GGC as we have 5 children between us - so a good few GC too. Very lucky.
You sound like me when I was a young Mum- I,d never even held a baby until I had my first baby. I,m glad you had your family around you - always someone to confide in,
Doodle- you are right when you talk about how we always imagine that other people have their lives sorted. One of my friends had what I thought was a charmed life but now in her later years she has had much to worry about. Not many people skate through life without any worries.
Your DH has been so marvellous how he has coped with all his health problems - you too as your support for him is wonderful. So many brave people on this thread battling one thing or another.
Hope the sea is friendly today and you are enjoying every moment.
HVDY- oh that horrible sinking feeling that can come on in an instant if you hear an inflection in one of your children’s voices,if they look sad or if you hear awful news on TV and immediately catastrophise someone you love might have been there!! It arrives so quickly and takes so long to go.
What a shame about your day centre- so many people will miss it I,m sure. I know how much you enjoyed it.
Oh for goodness sake your poor SiL she must have felt so hot,tired and confused. Glad that at last she can relax in a bed. I agree with you that sitting down all day,everyday is not good for anyone. Use it or lose it I,m always telling myself especially when feeling lazy.
Aqua Aerobics would have been nice today in the water. You,ve done enough work for one day- rest in the shade and have an ice cream!!!
SweetPeaSue- I,m sorry your DH has shown no improvement- good that he is walking a bit though.
You are another lovely supportive couple. Are you getting out at all even if it’s just the garden. It would be nice if you could get to the sea for a little while.
Hope today is a better day for you both.
Whiff- another understanding and encouraging post. You write so full of hope too. Such an example of overcoming all the odds - thank you.
You would be great at giving a talk if you feel up to it- I would turn up!!
EllieAnne- I expect by now you have a nice new haircut- such a nice feeling of lightness afterwards. Mirrors aren’t great are they- I always take my glasses off - it does help.
Wyllow- missing you very much and so hoping things improve for you soon.Al though it probably doesn’t seem like it you are not alone- everyone here cares deeply for you. Love and hugs.
Candy- must have been good to see your old workmates- people we work with become such friends don’t they.
Fingers crossed you get your community hub - it would be very well used I,m sure.
Love to all

I forgot to say hello to Hairspray and other people who might be reading or who I,ve forgotten to mention.

ScaredyCat Bittersweet memories for you on your birthday, then . I'm glad the ADs are helping you.

Scaredycat Must be such conflicting emotions around your birthday. A lovely gift indeed to have your son on your birthday. I hope your weekend is as well as it can be and I wish you nice birthday and hopefully you will see some of the rest of your family. No beach walks for us at present as DH just couldn't do it, he's really struggling and in a bad way. Sorry the heat has set things off for you. Also that you have worries about friend. Hope that works out ok.
HVDY Just unbelievably bad for your SIL to have yet another fall but how bad to be in A&E so very long. She must have been v uncomfortable for that length of time and confused. I hope shes ok. A busy day for you. Hope you get that appt soon(October?) your poor legs. You've waited so long like this.
Candy Glad you had a nice evening. Hope today at work has been less busy for you.
Whiff That was such a thoughtful post to all. Your comments about worrying about loved ones having affect on health is so true and you have had a large share of that.

Nadateturbe Sorry didnt reply about your suggestion on Pernaton. Will see if can get some tomorrow. DH's joints so much pain-feet, shoulders, neck, thighs, hips and wrists/hands-you name it. Certainly not ADs which I didnt believe for a min. The extreme tiredness and depression is awful for him - he cant do his beloved painting. Calling Dr again Monday. Hope youve been ok today.
Wyllow Really hoping you are managing. Thinking of you everyday. X

Sorry cant reply to all. Hope youre enjoying your hol Doodle and DHs leg is no worse. Saw trainee Psychol today. Given more' techniques '.

A peaceful night to all and thise not mentioned.

How very sad for you Scaredycat, a very emotional time. I hope you have as nice a day as possible.And worrying about your friend too. Sorry I don't know what HA is.
I find talking extremely exhausting, even on the phone. I often end up having to lie down afterwards. Talking is actually more stressful than physical effort. It's really annoying that you can't enjoy company without knowing it will tire you. And I don't think people really understand.
Sweetpeasue sorry you're husband is suffering so much. I'm not sure Pernaton would do anything for that level of pain. It certainly sounds like inflammation possibly from fibromyalgia. I assume he's taking something like codeine. I hope you get to see the GP on Monday.
HVDY thankfully your SiL is in a ward now, and they'll find out what the problem is.
I thought you were having a lazy day!

Goodnight to everyone on BD, hoping and praying you all have a peaceful night.
Sending hugs to you Wyllow3.

Sorry all. Very tired tonight and I think I’ve eaten too much. Going to bed early. Will catch up with you all tomorrow. Take care and sleep well. x

Night night to all BD's. I have read but cant bring myself to speak expert to post like this.
Take care all xx

SweetpeaSue My appointment is mid-October. I've written down a lot of things I want to say. Your poor husband. I very much doubt that his symptoms have anything to do with ADs. There isn't any specific test for Fibromyalgia, but various blood tests can be done to rule out other things like Arthritis, MS, etc. My eldest son has it, and gets pains in all his joints.

ScaredyCat What is HA?

nadateturbe Getting so tired when talking must be rather frustrating for you.

Wyllow3 Doodle Candy6 Whiff Allsorts Haircut100 EllieAnne and ALL BDers - hope you are all coping with this heat. Love to all x

Wyllow Hope you are able to get sleep at least. Glad you have this intensive care team. Not sure what it means but reassuring that you can get extra help. You are in all our thoughts.
HVDY I read that symptoms of Fibromyalgia can imitate other things. This is obviously not any side effect of meds. Hes been sat in cjair during night as only way could rdlieve some of neck pain. Hes fallen in garden (no serious hurt) and keeps tripping and walks v slowly as pain in ankles too, one foot swollen. Should have had blood tests when we saw Dr at the time. I knew it wasnt ADs but Dr wanted to make sure. Meanwhile my pain is still going on. Its all so frightening. We just have to keep going. Strangely I find I want to keep going for him when I didnt for myself iykwim. Hope you manage today in this heat with your legs. So hot this morning.

Hope all have a reasonable day. X

Sweetpeasue how awful for your husband, and you too. I would have been tempted to ring out of hours doctor. Isn't it strange though how we find strength when we need it. Would a cold pack help his neck perhaps. Although you've probably tried everything.
HVDY I hope your legs aren't too troublesome in the heat - GB is still very hot today. I can't remember what appointment you have in October.
Talking- when I visit husband texts me after an hour, so I can say that's my husband reminding me not to stay too long or I'll be exhausted. I'm sure folk think I'm weird. 😄

Good morning everyone, hope you've had a reasonable night. It was a hot one. I hope you got to sleep early Doodle
Thinking of you all.x

SweetpeaSue You and your husband are going through an awful time. Is he able to take Ibuprofen? Or the gel you can buy. I'm going to sit with my feet up as much as I can. I've got some cooling wrap things (from Amazon), so I'll try those. I hate this heat.

nadateturbe I'm seeing the Neurologist in October. I haven't seen him since April, when he prescribed steroids for 13 week, which actually made things much worse. My husband tells me to stop talking, frequently, but it's because I like to chat a lot.

I'm doing nothing today - washing is up to date, it's too hot to iron. No cleaning to do. DH and I just practised getting down onto the floor and getting up again - we do that every so often. We both struggled, and had to get up like toddlers do (both hands and feet on the floor, bum in the air. Glad nobody saw that c

Morning all. Feeling a bit more awake today.
HVDY so sorry about your dear SIL. She must be so confused about what’s happening to her. I Hope she gets assessed properly soon.
Yes we are coping fine with the heat thanks……is raining here 🤣
Can’t complain, had a lovely day yesterday. Sorry your day centre is closing. Seems such a lovely place for people to visit. Such a shame, no aerobics either so you just had housework, that’s not so much. You made me laugh about how you get up from the floor. I do the same I call it my giraffe move legs wide apart bum in the air then gradually bring feet closer together.
nadateturbe good idea to get your DH to text you. I can understand how you can be exhausted after talking for a while. It’s nice to chat but I often lose my voice for a while if I’ve been talking more than I’m used to. Not so hot here so we haven’t had a problem.
Sweetpeasue how lovely to read that you want to keep going for your DH. Perhaps with him being ill now it has changed your way of thinking. I know exactly what you mean. I know DH needs me to be with him as I’m sure yours needs you too.
So sorry you have the additional worry. I too find it strange your GP didn’t order him blood tests at the time. His symptoms don’t really sound like side effects from the ADs I agree. Have you tried a warm towel rolled and placed behind his neck to give support and warmth. When I’ve had a bad neck I wrap a towel round it like a surgical collar to support it.
So sorry your pain continues. I’m hoping that the pain management team can come up with something that helps.
Could you ask the Go for some cocodamol pain relief for your DH that’s what mine takes for his legs, Also that the ADs kick in soon to lift your spirits. Hope the new techniques help too. Sending you both a gentle hug,
Candy my SIL had a local garden with community hub and it was a lovely place to visit for a coffee and chat. They also exhibited local artists work. Do hope you get funding for yours. Nice to have a meet up with old workmates and have a catch up.
Scaredycat many happy returns for the weekend (or was it last weekend?) I can understand the mixed blessing. Thoughts of your son will be at the forefront I imagine. Nice to have a visit from your stepson and wife, You obviously get on well. I find company exhausting too. Small talk doesn’t come easy to me and I find it difficult to maintain conversation for any length of time so end up gabbling nonsense mainly.
Sorry you have worries about a friend, hope things are ok.
Yes it’s good to remember that everyone has problems of one kind or another, Life is not all roses even if it looks like it. You only need to look at the lives of the rich and famous to see that.
Ellie Anne hope you are pleased with your haircut. Are you looking after your DGDs again now they are back at school?
Wyllow so sorry you are feeling like this. It’s good of you to post even though just a little. It’s good to know you are here with us. I Hope you are getting some help to deal with this period. I’m sure you will come through but it takes time. x

HVDY Oh that's right, I remember now. Long wait!.
Would like to have been a fly on the wall at the floor exercise.
"I'm doing nothing today". Hmm.🙂