How to stop pee-ing so often!

Were you having to go a lot throughout the day or ( like me) was it just at night when you’re lying down?

Earliest I can get to see a GP is two weeks time. I am fed up getting up 3 or 4 times every night to wee. It is exhausting. Fingers crossed they can give me something to zip me up.

MayBee70 I can go from 9am when I get to work, until after lunch without peeing. Last night I was up at 12:15, 01:20, 02:20, 03:20, 04:20. Then awake until 6am when my alarm went off to take my painkillers. Managed a couple of hours until my 8am alarm went off and I got up at that point.

I lie in bed trying to convince myself that I really don't need to go, but after about 10 mins I just have to.

So tired.

That's a very high frequency of peeing, ftm. Do you have much urine each time? Have you been tested for an infection?

The only time I've had to go very often is when I have an episode of atrial fibrillation (heart irregularity). This releases a hormone that makes the body get rid of fluid- I would have a full bladder every 20 minutes or so, going on for a few hours.
This is only occasionally but usually happens at night.

Been tested for infection too. Nothing. I have been told that my bladder only holds 150ml, after urology tests. Last night I woke a few times BUT when I woke at 0415 needing a wee, I picked up my kindle instead and read myself back to sleep. I then slept through until 0600. I'm going to work (again) on trying to hold on as long as possible at night to see I'd I can get that 150ml to expand! Apparently a bladder can hold up to 500ml so if I try hard enough...

Started on mirabegron tablets today. Betmiga 25mg.

They are going to ring me in two weeks to see how I am getting on.

Doctor was very thorough with questions, then did a vaginal exam but unfortunately nicked me with the speculum and I yelled out. I bled a bit and she apologised but I couldn’t let her continue so she did it by hand. She is arranging blood tests for kidneys.
She also offered for me to see the physio for pelvic floor exercises but I already do those. She said I could have oestrogen vaginally instead of the pills but I already have that as HRT.

Fingers crossed this works and My night time toilet trips lessen.

Maybee, I’ve had both hips done, have a commode near the bed, near enough to grab an arm of it to help you move. Helped no end for me.

I know it’s only been one night but I needed the loo countless times during the evening almost like I had a chill.

Last cold drink was at 6.30 and then I had a small hot chocolate about 9. I was out 3 times during the night as usual.
Maybe tonight will be better.

Update as I've not been on for a while.

Now 6 weeks post hip replacement. You'd think things would be settling down, but no.

Last couple of weeks I'm up every 1-2 hours every single bl££dy night.

I don't know how I manage to exist. This is so awful. I hate staying with friends, or going away to hotels for a 'romantic' break. I'm just up all the time. I pee every time & I always try to not get up, but just have to.

Still no news on when i'll be re-referred back to my consultant. Thanks NHS for screwing things for me. I feel like I'll never have a decent night's sleep ever again. This has been going on for years.

I'm otherwise fit & healthy but t his lack of sleep is just making me feel so old.

Sorry for the 4 a.m. rant but I'm so fed up. Been crying most of the night, which doesn't help.

I wish someone could tell me that also. I have just had to give in and order some Tena high waisted pants with inbuilt pads as I was fed up of not being able to go anywhere I did not know as I never knew if there would be a toilet so I stuck to shopping centres and supermarkets. I would have loved to have got on a bus and traveled an hour to the nearest town and had a look round but by the time I arrived I knew there was no public toilet so I would have had to go to Marks and Spencers and use theirs.

I have a prolapse which the specialists won't do anything about (I am 82), a hiatus hernia and an umbilical hernia. I have also had two operations for femral hernias buth sides. I think my insides are dropping out. I am fit and healthy apart from the toilet business.

I hope I can get some sort of stress free hours if I am wearing a pair of tenaform pants. I also am up three times during the night.

Sick of it.

I think it is absolutely disgusting that in this era there are no public toilets on the high street. I have to go into a cafe, buy a coffee, only take a sip so I can use their toilet. I sometimes sneaked into McDonalds to use theirs but it is so stressful not knowing where the toilets are if any.

TopGunner: I too don't understand why there isn't a cure for this. Surely there must be a way to switch off your bladder to make it less sensitive?

Topgunner. Several stores sell period pants and although I don’t have periods anymore I have bought several pairs to wear in bed just in case. They came from M and S and I chose the heavy flow ones. They have built in protection and really do work. My neighbour also bought some and she loves hers too.

The tablets from the GP have made no difference at all. I think I need a stringer dose. Still getting out to loo 3 times every night.

Stronger 🤣

I don't leak at night so not incontinent. I just wake up wanting to go all the time.

I've just had a response from the good old NHS who have informed me that I am now on the waiting list again, for the same specialist and the same issues that I was already having treatment for!

Now I have to wait until April 2025, when I was already in the system! The only change has been a change of name of the contract I was previously referred under! FFS sort yourself out NHS!

WHY? JUST WHY?

A hormone called vasopressin is normally produced by the body so less urine is produced when sleeping. A synthetic form - desmopressin - is sometimes used to prevent bed-wetting in children. But some adults don't produce enough vasopressin - sounds like you may be one, ftm ,and continue to produce urine when sleeping. It's possible desmopressin might help, if your doctor would prescribe.

Farmor15: I'll mention it to them. It turns out that my referral is to the wrong place. Despite explicit instructions to refer me to my existing specialist, they've referred me to another. I called them & they will see if they can change it.

They deny receiving any instruction so I'll have to send it again. My specialist's secretary called me to explain what had happened & confirmed that she had sent them the letter in October.

I'll also have to make a separate appt to ask about desmopressin, I expect.

Frustrating isn't it?!

Primrose53

*Topgunner*. Several stores sell period pants and although I don’t have periods anymore I have bought several pairs to wear in bed just in case. They came from M and S and I chose the heavy flow ones. They have built in protection and really do work. My neighbour also bought some and she loves hers too.

Thank you to the people who replied to my post.

I have tried and bought everything going, pads, pants, you name it, I have bought it. My problem is, I don't leak, it comes out of me like a waterfall. I spoke to the people at the Tena company as the sample pads they sent me didn't work even though they were the ones that held the greatest amount of water. She discussed what was happening and when I told her about the gushing, she said that was my problem, if I was passing water slowly even with a full bladder, the pads would be able to soak up the urine without any problem at all but with the gushing, it comes out all at once and overflows the pad as it does not have time to soak in.

With having a prolapse, I cannot squeeze by bottom half together to slow down the flow. If I could slow it down I would be fine and the pads would work. I have tried the ring, or whatever it is called, in different sizes, fitted by the nurse but it kept falling out and caused ulcers inside my body.

What a mess to be in, this problem has more or less turned me into a recluse as I can only go somewhere where I know there are toilets and when my family invite me out for the day I cannot have a drink all the time I am out in order to try and stop wanting the toilet, which then sometimes leads to a uti infection.

For the first time in ages I only got out once in the night! The only different thing I did was have a hot lemon/paracetamol drink (Max Strength) about 9pm as I have a nasty cold.

I wonder if it just knocked me out?

After a night of being up four times to use the toilet I have decided, this morning, enough is eough so I have sent an online form to my GP, (no more ringing up for appointments, new rules), explaining the problem.

I have in the past seen the GP about it but because it wasn't very bad they said to do exercise, which didn't work, but now it is terrible, if I want to go out for the day I have to have my last drink at breakfast in the morning and then nothing else until I get home but this has caused uti infections.

I have had to curtail going out unless I go to the same places, shopping centres or supermarkets because if I want to go into town I have to sneak into McDonalds or buy a coffee somewhere else and don't drink it so I can use the toilet. I did send off for the card about using the toilets anywhere but never heard from them and I have forgotten the name of the company.

Next time I have a baby, I will have a C section, as both babies were massive and caused the problem. Natural birth my backside, no-one tells you what happens to your innards in later life.

I am now in my 80's but still don't want to be housebound because of the lack of public toilets on the high street.

TopGunner. It’s called a Radar Key.

PS Good luck at Doctors. 👍

Primrose53

*TopGunner*. It’s called a Radar Key.

I don't think that is the one, it is a card you carry from a bowel and incontinence firm. I have been online looking for it but I will keep trying.

I had a radar key for my husband but it was useless as many were out of order and a lot had closed down.

Primrose53

PS Good luck at Doctors. 👍

I am now waiting for a text telling me what to do, either an appointment or whatever they decide to do.

I have been reading all the posts and have decided to give the bladder retraining system a go. I have put on a pad and the last time I went to the toilet was 10-30 am, it is now 13-30 and I still haven't been even though I want to, I am hanging on as long as possible just as a trial. I have tried taking my mind off it while watching a film. I don't know if it is because I am wearing a pad that I have relaxed a bit and know if I need to go I can go using the pad but it is the longest I have not been to the toilet for a long time, I usually go every hour. Perhaps wearing a pad around the house will give me more confidence and not worry about having an accident.

TopGunner

Primrose53

PS Good luck at Doctors. 👍

I am now waiting for a text telling me what to do, either an appointment or whatever they decide to do.

I have been reading all the posts and have decided to give the bladder retraining system a go. I have put on a pad and the last time I went to the toilet was 10-30 am, it is now 13-30 and I still haven't been even though I want to, I am hanging on as long as possible just as a trial. I have tried taking my mind off it while watching a film. I don't know if it is because I am wearing a pad that I have relaxed a bit and know if I need to go I can go using the pad but it is the longest I have not been to the toilet for a long time, I usually go every hour. Perhaps wearing a pad around the house will give me more confidence and not worry about having an accident.

Got to 3.1/2 hours then it was a mad dash. Will keep trying and see if I can go longer the next time.