Gransnet forums

Menopause

fibroids after menopause

(36 Posts)
jami Mon 08-Jun-20 11:07:48

Hello. This is my first post and glad I found you. Here's my current menopause story! I am 66 today. I started menopause around 58. I had always had massive, disabling periods every 3 weeks, so was glad at the thought of being free from them. Bleeding over the menopause continued on and off. I had ultrasound 4 years ago due to bleeding and they found my womb was full of fibroids. The gynacologist said they often set up mini bleeding cycles for themselves. (relatively little seems to be known about them) Well they could not see the lining of the womb because of the fibroids, so - it was left at that.

Last week I went again (to a very empty hospital wearing mask) This was because I had had period type pains for a couple of weeks after fairly energetic sex. I have a retroverted uterus, so I thought it may be to do with that and the uncomfortable sexual intercourse position- maybe ligaments strained? Anyway doctor said I had to have ultrasound again, because of show of blood, to check for womb lining thickness re cancer. Hence the visit in covid 19 times. I pointed out they wouldnt see the lining due to fibroids. He said, after 4 years of the menopause they wouldve shrunk. Well they hadnt, and they could not see the lining of the womb.
I have been on HRT (Kliovance) for about 6 years because of mental symptoms- depressions, anxiety, rages, really saddening, as I have a lovely husband, now 11 years together.
I went to see a female GP re my ultrasound scan. She said they don't know what to do next as it is impossible to get into the womb after menopause die to it being closed- this was the same 4 years ago: no sample could be taken. She said di I want the fibroids removed! Did I want a hysterectomy? I do not knoe. I tend to feel leave well alone. Please share your thoughts and any insight into this that you may have. I would love to know if anyone has similar experiences. I have just restarted my Kliovance after two massive out of control rages , which began with simple discussions I cannot remember what. But my husband is an engineer and a bit 'on the spectrum'. He tries to help, but it usuall y goes wrong because nothing can help me. I stopped Kliovance cold turkey as I thought it was causing the fibroids to stay plump. But it is the lowest dose available and I only took it every other day. It seems even that low dose is very important vis a vis keeping sane.

NettieF Fri 21-Aug-20 15:13:01

JuliaM can you say who your consultant was?

JuliaM Fri 21-Aug-20 15:32:23

Mr Mike Cust, he was brilliant with me. First referral via the Nuffield hospital, Derby, worth every penny I spent with him.

He has his own Linkedin webpage on the net, if you want to take a look.

Good Luck.

Jaxjacky Fri 21-Aug-20 16:30:31

Jami I would make a private appointment with a Gynaecologist, explore your options with an expert, make a list of questions before you go. ??

NettieF Thu 27-Aug-20 09:35:43

Thanks!

NettieF Thu 27-Aug-20 10:21:18

JuliaM thanks for your reply

Kerenhappuch Wed 03-Feb-21 05:53:35

Hi Jami

I've been up to hospital with post-menopausal bleeding three times this year, when scans revealed thickening of the endometrium I had a hysteroscopy each time. The third time, a couple of polyps were found, which may have been responsible for the thickening and bleeding, and I was advised to have a Mirena coil which they believe will reduce the chances of future polyps or other conditions.

My gynaecologist seemed quite confident she could get the camera into my uterus after the menopause, but investigating post-menopausal bleeding seems to be a large part of her job! My cervix had certainly closed, because the last attempt at a cervical smear at the GP's surgery was a failure. Fortunately, they did this for me as well during the hospital appointment. So I think you need to ask your GP for another referral to hospital, they have the equipment and the expertise to work out what's going on. It may be that they simply recommend you to have a hysterectomy. Most women I know who have got to this point have been very happy with the relief from symptoms.

I must say, I have felt rather aggrieved at having gynaecological symptoms when I assumed my reproductive system had shut up shop and would cause no further problems!

GagaJo Wed 03-Feb-21 07:05:21

Not for the same reason, but I had a total hysterectomy at 45. I was back at work in a month. And the bliss of no periods! Sounds as if you could keep your ovaries. I would definitely recommend it.

grandmajet Wed 03-Feb-21 07:57:12

I just read this thread. In 2005 I had a total radical hysterectomy for endometrial cancer, and was apparently cured. However about two years ago I was having bowel/bladder symptoms and some abdominal discomfort which caused me to go to my g.p. To cut a long story short, after three g.p. visits I eventually ended up in a and e after a very painful night and it was discovered I now have a gynae cancer, probable ovarian in origin or primary peritoneal, maybe a recurrence of the old cancer - the biopsy was hard to work out they say. Please, please don’t assume that removing the ovaries means you can’t get a form of ovarian cancer. It is much less likely, but still possible. My g.p. surgery, where I saw three different doctors, admitted they were unaware of this until after my case, when they consulted a gynaecologist.
Gynaecological cancers are horrible, deadly, sneaky things and not fun to live with and can definitely happen after a radical hysterectomy I’m afraid. I repeat, please listen to your body and never assume it won’t happen to you, I don’t mean to frighten anyone but I wouldn’t want anyone to go through my experience if they could avoid it.

GagaJo Wed 03-Feb-21 08:05:08

Thank you grandmajet. I am so sorry for your suffering. Do they think they can manage your cancer with treatment?

I had my hsterectomy because my BRCA gene put me at risk. I am even more glad now, after what you have said, that I had it.

grandmajet Wed 03-Feb-21 08:14:59

Thanks Gagajo. I’ve been having chemo on and off for the past 15 months ago, I’m now on my third line. I’m doing ok, and because I was pretty much isolating because of the chemo, pandemic restrictions probably affected me less than most people. Where there’s life...........