Thank you ronib and Iam.
It started with the pain in my fingers over two years ago, but it wasn’t bad and I ignored it. By the time we were in New Zealand this time last year, it was bothering me a lot more, and I started wearing little splints on two of my fingers. I made an appointment online to speak to my GP for when I got home, whilst I was still in NZ, and when I spoke to her at home by telephone she first wanted me to go in to see her. I did, but of course had to wait for an appointment. She started me off straight away with the investigations, but each investigation was a wait of a few weeks. These were all relatively simple investigations, until we got to the MRI scan, but each one took several weeks of waiting. If I had gone privately I think it could all have been done in a month, instead it took a year. In the meantime my pain became worse and worse, sometimes unbearable and I have cried with the pain on occasion. I now take Pregabalin for the pain, but it has unpleasant side effects and so I can only tolerate a low dose. I can’t use anti inflammatory medications as they don’t suit me, although they would be first line normally. I also take paracetamol every four hours, every day. I use a lot of Voltarol and I wear a compression glove all the time, which seems to help. I also have steroids sometimes to help.
I have finally managed to get an appointment with the spinal team, and I see them next week, after I return. I’m told they will probably advise a steroid injection into my spine, and that the waiting list is only two months since I’m considered healthy enough to go on the NHS to the private hospital, otherwise it will be a four month wait to go to the main hospital. If the injection is helpful and eases the pain then the next step is spinal surgery, but I’ve no idea how long the wait for that will be.
My point is that if our health service operated as it should, all those preliminary tests could have been done in a matter of a few weeks, but because of all the waits, it’s taken a whole year just to get to this point. It’s simply unacceptable, as I wake up with pain, and go to sleep with pain, every day. I’ve never mentioned all this has been happening in my life on Gransnet before. I’ve tried to get on with my life and manage my pain as best I can.
But it’s worse if you have cancer and are waiting. It’s all just so unacceptable.
I hate moaning about the NHS as it has saved my life a few times, as a child, and more recently when I had Covid and when I had Clostridium Difficile. And two of my babies lives were saved in NICU when they were born. I have much to be grateful for with our NHS. But I wish I could get my pain sorted out.