UPDATE:
Good news ❤️? the new steroid treatment has worked and our granddaughter is now breathing independently! I had a FaceTime call from her this morning and it was like talking to a different child, she was alert, smiling and able to chat.
I also had an operation this morning and that went well too, so today is a red letter day!
I cannot say ‘thank you’ enough for all your prayers, good wishes and overwhelming messages of support during the past week. This kind of situation is where Gransnet really excels at providing a safe space for worries to be shared and I have appreciated it enormously.