Hope l can give a little advice from my own experience. sorry if its repeated though as cant read all the comments at moment as l l ave photo phobia so can only read a little on here.
nearly 50 yrs ago i had to give up my full time career as l became very ill with M.E. It took over 10 yrs to get a dx from a famous M.E Specialist but because l was told by dr to ' go back to work' l ended up bedbound.
Im still 95 % bedbound still but it is possible to cope.
The first thing l did was get as folder and started to write down all the agencys ie help the aged etc , charities etc that may help when get disabled. as my drs at the time gave no advise we had to do all the research myself.
We found a local charity that came out as support worker and they helped me get disabled facilities( as im also losing sight with glaucoma and almost deaf) the blind society sent a support worker for help for my computor and also offered aids on loan. all these support workers helped to put in for grants from our council. because the charity worked on my behave The council listened to them as the councils didnt listen when l phoned ! It did take a few years to get the aids l needed.
nk in my folder we listed all our our money out goings and we looked to see what we could live on bare min. it was a drastic time as my husband also lost his job at this time for afew months, luckily he found work again. the do free fire safty check as well. They were marvelous.
l phoned the local fire brigade office as they have grants to put in fire alarms for free if disabled. l phone the gar and elctric people as they put disabled people on to priority call outs of needed. l thnk the the telephone provider have special services too availbe but we havent do that yet.
We decdied the best thing to do was to pay off our mortgage completely from our saving we had at the time and it was the best decision we could have made. it was a struggle as 6 yrs ago we sold up and moved to be near my daughter into a down sized bungalow that we paid for mortgage free.
keeping a folder handy with all the info at hand was incredibly useful as l had to make my pwn calls to different people when we needed help ie banks, utilites, council etc.
council grants, benifits, charities etc are rapidly declining on being able to help but l encouge anyone to make sure you are getting the help you need, unfortunaly it means doing all the research yourself as their is no one who can do this for you. nowadays, even citizen adviser ( l used to work for them ) are limited..
l hope this info is a little help , dont disphare, get yourself a plan of action set up and take one day at a time, you will manage.
l did read at the begin reply comments about having seprate bank account. Many people do do this, My daughter and her husband do this, They both work and they both pay for diff things concerning the household budget.... it works out fine for them and they have done this for over 20 yrs.