Grandson has rare leukemia. Not sure how much longer I can hold up.

This forum gives me a space to express feelings that I would never voice, even to family. Thank you all for your kind words. Hope is strong and we are grateful for wonderful nurses, especially.

Mebster, just a thought, could he use his feet to use a joy stick? He sounds a bright button and it might amuse him to try! for all of you.

Dear * Mebster*, as a newish member of the forum...probably two weeks, I just wanted to send you my thoughts, prayers and moral support. I will think of you and your family every day.

Some interesting suggestions about technology. I hope there is some support for the emotions and space for him to be a little boy who is struggling. Also I hope there is space for the 8 year old and what must be a mixture of emotions for him.

I hope that the very best treatment is available to your dear grandson, Mebster.
All you can do at the moment is support him and the rest of the family, perhaps spending time with your other grandson so that the parents can be with their older child.

Whenever you feel it would help you, in any way, please come on here Mebster to pour out your emotions. It might help and us lot will listen and our support and kindness might just help you a little. We are just here, whenever you need us.
x

* Mebster*sending love and hugs...and praying for all of you. x

I pray your DGS gains strength every day and know he is blessed with loving grandparents. Take care

Poor little boy, and sympathies to all of you. Just trying to think of things that would amuse him.

Could he give Alexa instructions? I understand you can have a bit of fun with that. Could he sing along with some favourite well known songs.

Is there a local brain injury organisation that might give you some guidance/support? Wishing you all the very best outcome.

Oh Mebster, I'm so very sorry, what a horrible thing for all of you. Poor little boy.

Keeping you all in my thoughts and prayers

mebster do you have an iPad for your DGS to use. I realise, from what you said, that he cannot play computer games without you doing the controls for him but there are lots of strategy type games you could play on an iPad which he could think about like Clash of the Clans or some maze type games like Free flow. I played these with my DGS I the past and he enjoyed them. Sorry not much help really. I can’t imagine how tough life is for you all at the moment. I do hope and pray he feels better soon.

Mebster so sorry to hear about your grandson. You are a wonderful support to him and all his family. It is so hard to see the suffering of those we love ...especially children. My thoughts are with you tonight and all of your family.

Just checking up on you Mebster and your little grandson.....how are things? Has he started treatment...thinking of you all xx

As crazyH says, we are all thinking of you and your dear family.

Strength and love to you.