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Care & carers

Mum refusing to let carers take her to bed

(39 Posts)
debs4409 Sat 18-Sep-21 15:56:36

Mum is 94 widow and had a serious stroke 3 years ago. Despite this we respected her wishes for her to stay in her home with carers 4 times a day. My sister and I see her most days for around 5 hours. Mums carers say she is refusing to go to bed at 9pm call (she doesn’t have to go to sleep as she has a TV in her bedroom). Care company now complaining to me about this and I’m worried we lose them as despite being stubborn my mum is very attached to her carers. My OH and I had our first night out last night in 18 months and carers rang me as Mum upset and refusing to go upstairs ….. despite agreeing with me earlier in the day that she understood . No carers available later in the evening. Help !

Nannan2 Sat 18-Sep-21 18:50:09

Maybe the carers are more used to dealing with elderly folk who are more amenable to being told what to do and when.

aggie Sat 18-Sep-21 18:50:38

OH was reluctant to go to bed , just some nights , but it was the carers last call so they couldn’t really wait any later
Some Holiday weekends my DD and I did the needful but it took us twice as long and wasn’t easy
We never found an answer

Barmeyoldbat Sat 18-Sep-21 21:53:07

My daughter has careers and they come at around 8.30 for medication and help her get ready for bed. Carter’s have a long day and nearly all do the 8,30 to 9 ish at night. I believe your mother is being stubborn, this is one thing she has control over and I get it all the time with my daughter. Hers is she won’t have the heating on. She can say no and there is very little you can do about it. What happens if she won’t go to bed in the 9 time frame?

Septimia Sat 18-Sep-21 21:57:56

I think it's not unusual for people to find 9pm early for going to bed. Equally, expecting carers to call later is unfair.

Would it be possible to ask your mother what she would like - offer some alternatives like bed downstairs, getting ready for bed but not being taken upstairs etc.

25Avalon Sat 18-Sep-21 22:04:45

Do you go to bed at 9pm? I can see where mum is coming from. The problem is carers have to finish at a reasonable time. Is there any way you could have a live in companion/carer which a lot of organisations supply? Or maybe compromise on this for a couple of days provided mum goes to bed at 9pm the rest of the week. It’s a very tricky problem and old folk can be very stubborn and hate having their independence taken away.

Callistemon Sat 18-Sep-21 22:33:19

Do you go to bed at 9pm? I can see where mum is coming from
I don't!

Carers used to come to put MIL to bed at 9pm and she used to wait until they'd gone then come downstairs again. She never went to bed before 11.30pm or midnight as far as I remember.
She worried us but was of sound mind and very determined.

Callistemon Sat 18-Sep-21 22:34:48

I don't
I meant I don't go to bed at 9pm and I do see where mum is coming from!

grannyactivist Sat 18-Sep-21 22:42:37

My 92 year old mother has a profile bed in the sitting room and often stays up very late to watch the sport on TV, but as she can watch it from her bed it’s not a problem.

Do you think something similar might meet your mum’s needs debs4409?

MissAdventure Sat 18-Sep-21 22:49:24

It could be all number of things.
Perhaps the carers rush her a bit as it's their last call?
Perhaps they arrive 10 mins early which would mean being put to bed before 9.
It could be a programme is interrupted.
She may like a hot chocolate or something to drink.
She may just be being awkward, or perhaps overtired by 9.
What time does she get up?

In an ideal world, the care should be tailored to your mums needs, but I realise things are rarely so.
I would try to address any reasonable issues she has before trying to make her do something she doesn't want to.

ElderlyPerson Sat 18-Sep-21 23:30:54

To me it seems that younger people, no matter how well trained, no matter how sympathetic and kindly they may genuinely be, they have never been old.

ElaineI Sat 18-Sep-21 23:35:14

I think the bed downstairs would be an idea unless as suggested you can record programmes and stop then continue upstairs. How about the sky thing that has multi rooms? For those who say why 9pm and change agencies - most have a finite finishing time, lack of carers who would do night shifts and no capacity to do this later. Alongside the same issues with Covid and Brexit that are affecting other services. No warnings with Covid, plenty ignored with Brexit. I was a nurse, my cousin just retired as a nurse. Her PiL both required agencies through NHS to care for them in the evenings as well as daily (often several times daily) help from my cousin and her DH. They had excellent carers but most of them were from EU. Most of them went home prior to Brexit. The wages are shite! The care they perform are heavy and personal and often unpleasant (personal care after incontinence). Carers who do this are in the same position as care home staff with Covid precautions and lack of PPE. My cousins PiL are now both deceased and finished their days in care homes with the same problems with lack of staff and lack of PPE. There is a HUGE problem with looking after people unable to care for themselves in the UK. I worked as a District nurse. The carers are not given adequate nursing training, not given nursing qualifications, not given professional accountability and not given a proper pay structure that follows NHS pay. The younger ones who show promise are sometimes guided into nursing by District Nurses who spot potential but older carers may be unable to do that because of family commitments etc. I have often thought we need to pay more NI to help the care system and the NHS but OMG it needs to be managed properly and I'm not sure it will be. Sorry debs4409 for going on in your thread but there are many people in your situation and people have suggested bed downstairs. So glad your Mum is able to watch her programmes and enjoy. She sounds a real character. But hey - it is hard!

Shelflife Sat 18-Sep-21 23:52:15

A difficult situation when the caring agency are unable to help your mum to bed at a later time. I fully understand how your Mum feels , why should she be taken to bed when she is not ready? However I fully understand what a difficult situation this is. It is so easy for people to think she is being difficult and needs a firm approach! She is not difficult she is a woman who knows what she wants !!!

Nanna58 Sun 19-Sep-21 00:04:20

I actually think Debs4409; and her sister have bent over backwards to keep their mother in her own home under very difficult circumstances, and that the least their mother could do is meet them half way and accept that if the help she needs is at 9pm it is what it is.