Jess20
My son with cystic fibrosis has often been on more than 20 different prescription items a month. Some from the GP, some from the hospital and others delivered every 2-3 months by private companies. Surprisingly, given the comments on here, he rarely has any issues. He's very much on top of things though and has a great CF team who really get things done. The biggest problems arise when suppliers use companies like DHL to do the deliveries as they don't seem to be able to follow their own processes properly and hundreds of pounds worth of medical supplies has been dumped on our doorstep in the rain while we were out.
I have nothing but problems trying to manage my meds, which are similar.
It took me a year to be told that a private company would be handling one of my meds. Up until that time I would be told off by the consultant and the gp for not taking them, but I didn't know how to get them.
The gp receptionist would say they hadn't received emails, the consultant would be angry with me for attending an appointment when I wasn't taking the meds they'd described.
Then I saw a pharmacist who gave me a bit of paper with a company's name and number on, and said these people should be monitoring you and prescribing this medication.




