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Finding it hard to come to terms with the limitations on my life ....

(96 Posts)
Luckygirl3 Fri 06-Jun-25 15:11:41

Not sure what I am expecting from this post, except perhaps to tell me to woman-up!

I am now 76, and I have faced some serious challenges over the past few years:

- many years of nursing my late husband through Parkinson's and dealing with all the complications of funding nursing home care at the end, which included the complex business of lodging an appeal - successfully, but massively stressful.

- bereavement

- loneliness

- moving house on my own and dealing with all that entailed. Initially I was selling to fund his care in a half-way decent home, but he died during the process. I did not know whether I was going to be able to continue paying his fees.

- all this was done during and shortly after covid which meant that the family support I needed was lessened.

- since his death (he was a doctor - so I miss his input!) I have been assailed by health problems.....complex heart problems - sinus node disease, heart attack, atrial fibrillation, and I have a stent and also recently a pacemaker; prolapsed disc leading to discectomy surgery, but I am still in pain and limited in what I can do; cataract surgery (with recent problems which will need further intervention); and it looks as though I might have some neurological problems as I have some numbness and weakness in my limbs.

- all this means that I am constantly out of breath, in pain, limited in mobility, unable to get exercise and facing the prospect that driving might become out of the question in the next few years - I live rurally and accept that I will need to bite the bullet and take taxis.

In general I do not think people are aware of how difficult things are for me and they are always telling me how young I looe - hereditary dark brown hair with no grey and an absence of wrinkles belies what is really going on! - I would settle for some grey hair and some wrinkles if it meant the rest of me worked properly!

The biggest downer is the fact singing has been my life and I am having to watch this fly out of the window. It is almost like losing my life, because this is who I am. The breathlessness is a huge factor in the singing problems. The pacemaker clinic showed me what happened to my heart on a day this May when I was conducting a choir and also singing and my heart rate went dangerously high. So I have just cancelled singing in a concert tomorrow evening and also in a concert in the Three Choirs Festival in July which I was so looking forward to.

I cannot go for a walk nor join in many of the village activities.

Right - that's the grumbling done! Here's the positives: I have loving family and kind friends, I use my computer to contribute to my community etc. (writing book reviews, designing publicity, being the village hall's booking person etc.) but the yawning gaps opening up in my life are seriously getting me down. Cancelling the concerts has brought it all home; and not knowing if I will be well enough to continue running the choir that I have run for 40 years is a blow.

I knew all this would some - but it seems too soon - I guess it always does!

I know that others are facing similar and would be interested to know how you keep your spirits up - a life soley sitting around and devoted to me is not a great prospect!

Over to you!

PamQS Mon 09-Jun-25 17:43:57

Sorry to hear about your trials and tribulations, @lucky girl. I've recently become chronically fatigued and in pain, I won't list out all my problems, but I seem to be seeing doctors every month to check me for something or other! My DH works very hard, but has taken me to a lot of appointments, and he's really the only person who's able to
Come to medical appointments and talk to medical staff about my medical condition. I've often thought I don't know who I'd talk to if he wasn't around!

Building up a new set of friends is not easy. I've recently joined a feminist discussion group, I'm not used to going into a new social setting, but it takes a bit of the pressure off my husband of being the only person I rely on.

I do have relatives and some very good friends who I can talk to, and it does help.

I'm also being treated for depression, which I think has helped me.

Milsa Mon 09-Jun-25 18:04:11

I would say try to create spiritual space in yourself in your own home, just like the opera singers create space when they practice. I learnt it from a friend and this helped me immensely when we first lived in a small flat and I did all my reading, sofa activities and tv watching from one spot, the bed smile

Franboleyn Mon 09-Jun-25 18:09:51

Just to add more hugs! I hope things get better somehow 🌺

Quaver22 Mon 09-Jun-25 19:37:29

I am so sorry to hear about all you have been through Luckygirl. I absolutely understand your sadness at having to give up choral singing. Singing is a huge part of my life too.
During Covid, when choirs were out of the question, I joined two online choirs, Stay at Home Choir and Choir of the Earth. They both hold online rehearsals which you can watch live or as a recording . You learn works for a few weeks and then record your voice singing your part and send it in. They very cleverly combine the voices to produce a concert!
Of course it isn’t the same as singing in a live choir but I found it very enjoyable and I learnt a lot from the musicians who conducted the sessions. I didn’t continue with them once I was able to return to my choirs but they are both still thriving and they might appeal to you.
Very best wishes 💐🎶

Polly7 Mon 09-Jun-25 20:50:54

So sorry you feel like that I can relate to some of that when I began to be in pain all the time and my operation was a failure and then I couldn't dance anymore, which was my passion, this has been the hardest thing. My spirits are very low because I can't do things nippily like I have always done.. I'm so glad that you can see some joys, we all get low sometimes, we are human. In Covid, I was very lonely. I learned the ukulele on a YouTube video very basic and now I go to a ukulele group with other beginners, it keeps your fingers a bit more nimble, there's only four strings, and we go to care homes and give them a little tune or two, I'm listening now to audiobooks and I've just got my first Kindle. I think it's to find things to look forward to., I'm taking all my kids on a special day in autumn. I can't think where it is at the moment ha ha but I know it'll be lovely seeing them all together and their little faces of the grandchildren
Keep asking in a little prayer, I hope things improve for you, talking is so important if there is a group locally you can go for a coffee or whatever. Or on the telephone.. take care

Luckygirl3 Mon 09-Jun-25 20:56:30

Such lovely kind posts - and so many brave women soldiering on however hard it gets - it is inspirational. Well done everyone!

JPB123 Mon 09-Jun-25 21:09:02

Luckygirl3, I do admire you.You have always put in so much effort, enriched lives and been such a stalwart! Well done x

granbabies123 Mon 09-Jun-25 21:41:16

Could you still go along with the choir to support them , it could set a precedence for others in the future. I know it wouldn't be the same but the companionship would be.

Polly7 Mon 09-Jun-25 21:58:16

Yes it's to move forward any ways we can I saw Mel Robbins on This Morning she gave me motivation. Her book is out today I think it's Let Them or similar. She spoke about herself a few years ago when she was losing her house in debt and couldn't get out of bed, and then one day she just got fed up with herself so much and decided to do anything that she didn't want to do, to just put 1 foot in front of the other best she could, and just keep going. They ended up with it being very wealthy actually., but it really helped me because I could see there's no point in getting in my own way about it, just do the best I can. She had this trick instead of just keep thinking about it count from five down to one and do it. Sometimes you just need to hear the right thing that strikes the right cord for you.. sorry to rumble, but being able to relate to you, I found great solace today with her simple techniques. I think fear comes into a lot of things without realising it. I'm going to get her book hopefully on my new Kindle.😄

Wyllow3 Mon 09-Jun-25 22:03:03

Milsa

I would say try to create spiritual space in yourself in your own home, just like the opera singers create space when they practice. I learnt it from a friend and this helped me immensely when we first lived in a small flat and I did all my reading, sofa activities and tv watching from one spot, the bed smile

I agree with this so much. It is serving me well, although tough to get there, although I'm tackling it alone - perhaps even more needful.

Wyllow3 Mon 09-Jun-25 22:05:10

And a big 👍 for the retirement into bed with computer/music.chat as I have a small sunny bedroom over looking suburban (but not closed in) trees and gardens.

crazyH Mon 09-Jun-25 22:07:01

Thinking of you Luckygirl and all going through difficult times flowers

Wyllow3 Mon 09-Jun-25 22:30:19

Luckygirl has helped a lot of us by her honesty.

HiMay Mon 09-Jun-25 22:43:05

Hello Luckygirl3. I am very sorry to hear of the many difficulties and trials you have had to face. Like you I am much involved with music, both playing and singing in different groups. I also have sinus node dysfunction and a pacemaker, with breathlessness, as well as advanced facet joint degeneration and erosive osteoarthritis. Fortunately I can still enjoy the musical activities. I wonder if you could manage to continue singing, but drop the conducting and leadership aspects? That should reduce the pressure on you and possibly make it possible for your heart to beat more regularly during choir sessions, because you would only need to focus on sustaining your part rather than managing the whole choir. Just a thought. Wishing you well as you navigate the coming days

Fidelity2 Mon 09-Jun-25 23:34:01

Count your blessings. Some pensioners were worried about losing their Winter fuel allowance !

RosieandherMaw Tue 10-Jun-25 07:21:18

Not very perceptive OR helpful Fidelity.
Luckygirl has been very honest and open about her feelings and experiences which many of us share. It can take courage to open up especially when you are feeling so vulnerable.
No doubt we can all count our blessings - we could be living in a Third World country or a war zone, but it doesn’t really make for empathy or support to be told it so bluntly.

lafergar Tue 10-Jun-25 08:13:23

Fidelity2

Count your blessings. Some pensioners were worried about losing their Winter fuel allowance !

How silly. Have you read any of what OP posted?
She is a resilient and decent person who wanted to air her concerns.

M0nica Tue 10-Jun-25 14:15:44

Fidelity2

Count your blessings. Some pensioners were worried about losing their Winter fuel allowance !

Well they shouldn't be, thy are getting it back.

However I think you have posted on the wrong thread.

Actually given the choice between losing my fuel allowance and having all the problems that the OP has. Managing without the fuel allowance wins hands down.

Allira Tue 10-Jun-25 14:23:36

Fidelity2

Count your blessings. Some pensioners were worried about losing their Winter fuel allowance !

And, added to all of Luckygirl's trials and tribulations, she lost her WFA as well.

She's just gone through the top two most stressful life events, bereavement and moving house as well as her own ill health. That is after her DH's long illness, and the stress of fighting for funding for his care. All during Covid with the isolation that inflicted on us all.

Perhaps you were posting on the wrong thread?

Wyllow3 Tue 10-Jun-25 14:58:48

Just walk on by.