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Someone's come for my dad.

(161 Posts)
rubylady Tue 22-Mar-16 03:16:16

My dad's in hospital, cancer now spread to lungs and spine, he has fractures on his spine, broken collerbone from a fall and urine and chest infection. I hadn't seen him since he wanted me to back off a bit but he has got in a state since even though he was being looked after by carers. He looks skin and bone, probably not even 6 stone now, he was a nice size all his life but his legs are like pins. It has been a shock because it has happened all at once.

I have had to try to get him a place in a nursing home for end of life care although it doesn't seem like he will be here long now although he is still eating small amounts of like custard and rice pudding. I have provisionally managed to get him a place, it's up to the ward staff now to sort out his discharge and finances.

I had gone to bed but it all keeps going round in my head and I started to get upset so I got back up.

My mum was on the same ward too last week. She was determined to go and see my dad (they divorced 14 years ago), even though he had vomiting and diarrhoea and was being barrier nursed, she still got to see him. Then when she was leaving for home, she kissed him and said goodbye. Very sad but someone lovely. They were married for over 40 years.

Some might know that he has dementia too, so one thing is that the dementia hasn't got that bad that he didn't recognise me or be too forgetful, if you know what I mean. Both terrible diseases. Poor guy couldn't win.

What are nursing homes like? Are they good on end of life care? Saying that, I used to work in one and that one was nice.

A lot of tears, work, mixed emotions, wondering what to do for the best telling people etc., organizing a funeral. Is it ok to inject a little humour into a funeral or should I keep it straight laced? He was always up for a laugh but I wouldn't like to be seen as disrespectful although he would get it.

Gosh, it sucks. No matter what age you are, you still want your parents to be shouting you in for tea and giving you a clip round the ear for being late. X

jinglbellsfrocks Tue 22-Mar-16 09:07:32

Rubylady flowers sad

morethan2 Tue 22-Mar-16 09:10:54

My heart goes out to you and your dad ruby I will be thinking of you. I hope who ever it is that he is seeing brings him love and comfort. I also hope that these little messages sent with love from us bring you a little comfort too.

Cherrytree59 Tue 22-Mar-16 09:17:51

flowers
So sorry Ruby, this was my life last year with my dad in very similar situation.
I would just like to say that I have tried very hard too remember him as the man he was before his illness.
Hope that in time that is way you will also remember your father
At the funeral we spoke about his achievements in life
His sense of humour
And the love of his family, children grandchildren, great grandchildren and his friends
My sister and I wrote a short piece about our father that was read out.
We had a piper at the grave side.
All very personal to us
I'm sure Ruby that you will instinctively know how you want things to be regarding the funeral
[Hugs]

Bellanonna Tue 22-Mar-16 09:25:31

My thoughts are with you Ruby

harrigran Tue 22-Mar-16 10:11:30

Sending you strength to help you through the difficult time flowers
When my father was dying he could see people but they weren't family, he said he could see soldiers with guns.
Several family funerals have included humorous anecdotes and they were not out of place because they were part of who that person was.

Luckygirl Tue 22-Mar-16 10:13:15

So sorry to hear of this sad situation.

You can look up the report on the nursing home that you have in mind - google CQC report on [name of home].

Willow500 Tue 22-Mar-16 14:06:53

My thoughts are with you rubylady - it's such a distressing time for close family to see a parent who was originally a carer reduced to the patient in need of care themselves. I did get my dad moved from the hospital when they said there was nothing more they could do for him - he didn't have cancer but he had dementia and would no longer eat or drink. We moved him back to the care home where my mum was - they were in rooms next door to each other but neither knew sad As it was only a few minutes from home I was able to spend time sitting with him and would put music on an iPod of all the stuff they used to listen to. It was both a heartbreaking as well as a peaceful time and I'm so pleased and blessed I had that time with him. You must do what you think is best for your dad but as has been said please look after yourself as well. As for the funeral when the time finally comes it's such a personal thing that only you and your family can decide what is best. My youngest son who was very close to his granddad stood and gave the most wonderful eulogy with both humour and sadness - it was the first time I'd ever heard anyone applaud at a funeral. He went out to Bring me Sunshine which was such a fitting song for his happy life. Take care flowers

rubylady Tue 22-Mar-16 14:24:02

One of my dad's jokes:- There's only one thing better than one cup of tea - two cups!

Yesterday I repeated the joke, when it got to the "two cups" he held up two fingers. I like to think that he knew what I was talking about and not telling me where to go! He, momentarily, had the twinkle in his eyes though.

Thank you for all your lovely comments, I haven't stopped crying and being on the phone yet today. I will have to sort out his flat he has been living in, his belongings, his finances, pay his bills etc. I have made an appointment at the funeral directors where a wonderful woman has took me under her wing and we will be sitting down discussing things next week. Then, while my head is relatively straight, I can focus on what I want for him. I have been sorting out the music today, tears streaming, checking lyrics for anything inappropriate. He loved Ella Fitzgerald so I have chosen Dream a Little Dream of Me with Loius Armstrong. Along with ELO Mr. Blue Sky, which reminds me so much of him when I was a child.

It is hard because at times being my dad he could be quite hurtful and other times lovely so I have conflicting feelings sometimes although at the moment I would give anything just to be watching The Chase with him and having a brew.

I have phoned my mum and sister yesterday but received no call back. I text my brother, telling him but nothing, (he has never got on with my dad). I am left to do all this alone. My son has been very supportive, even though I do say on here he is awful sometimes, he has been fantastic over this. He likes my dad, gets on well with him. My daughter, I don't think, ever said two words to my dad, ever, so that relationship wasn't a goer nor with her two children. He's only ever seen photos of them. So, with a very disjointed family to deal with, it feels like a minefield to do the right thing informing/inviting people, newspaper announcement or who to include or not. I do want to do a newspaper announcement as he had a lot of workmates so I want them to have the opportunity to see it and to pay respects. He loved his work.

Can I just mention too, that he received a bravery award from the town we live in for going up against drug dealers wielding a samari sword, causing him a heart attack. This was in 2007 and, as I have no copy of it, have been on the phone to the newspaper for a copy of this article reporting it so that it can be framed for the funeral. Something to be proud of, don't you think? smile

durhamjen Tue 22-Mar-16 14:39:07

Ruby, is there no hospice near you? A hospice would be better than a nursing home for end of life care.

MiniMouse Tue 22-Mar-16 15:21:00

A difficult time for you on so many levels ruby

My DM went into a care home for her last few weeks and they were absolutely amazing. We honestly could not have wished for kinder, more attentive staff. They knew she only had a few weeks to live when they accepted her.

It's the staff who matter, far more important than the surroundings (not if they place is really scruffy of course!!)

Hope you find the support you need flowers

Jalima Tue 22-Mar-16 16:58:29

rubylady I know how distressing it is seeing your strong father lying in a hospital bed, so sick and frail. flowers. It was so good that your mother was able to see him and kiss him.

They say that hearing is the last sense to go so it is an opportunity for you to talk to him and tell him how much he meant to you.

I think a hospice would be a good place, unless it is too difficult for you to get there.

Perhaps he has left some instructions for his funeral if he knew he was so ill? Don't think about it just yet, the vicar/minister and other people will be there to help and advise and see you through it when the time comes.

Jalima Tue 22-Mar-16 17:00:40

Yes, that is something to be very proud of rubylady - I hope that someone can tell that story in their eulogy. I am sure the minister/vicar will do that if you or your son feel unable to do it.

grannyqueenie Tue 22-Mar-16 17:06:13

Sounds like there's lots going on for you just now ruby, I hope you find peace of mind in the decisions you have to make about your father and get good support from those around you too.

rubylady Tue 22-Mar-16 17:30:10

Just to mix it up a bit, I have just heard that I have high grade colposcopy result too! I have to have the Lletz treatment to get rid of it.

Synonymous Tue 22-Mar-16 17:45:31

rubylady so sorry to hear that your results showed abnormal cells but hopefully they will have caught things really early and the treatment you mention will get rid of anything suspect. I hope that you get it sorted really quickly as it is best to have it done and dusted and out of the way.
You really don't need this on top of everything else! ((hugs))
Hope you will get some help for yourself too. flowers

newnana Tue 22-Mar-16 18:21:40

When my Mum died I found this poem among her things. I thought someone must have given it to her after Dad died and I read it for her at her funeral. I gave it to a friend when her Dad died and her Mum liked it so much she had it read at his funeral. Then it was read again recently at her Mum's funeral. Reading it now makes me smile. I hope you like it too.

On the road that all must tread

You travelled on ahead

Out into the morning light

Out of reach and out of sight

But never very far away

For every night and every day

On the wings of memory

Something brings you back to me.


Some simple and familiar thing

Will start my head remembering

The times we had

The good, the bad

The days, the years

Sweet things and sad

A tune, a joke, a cup of tea,

Something brings you back to me

WilmaKnickersfit Tue 22-Mar-16 18:34:09

Gentle {{{HUGS}}} ruby flowers

KatyK Tue 22-Mar-16 18:45:45

ruby flowers Maybe he has seen something/someone. When my nephew died (at 16 from leukaemia) the last thing he did before he died was lift his head from the pillow and give a thumbs up sign sad

Nelliemoser Tue 22-Mar-16 19:36:44

If your dad is going into a nursing home it sounds as if he should be eligible to get continuing health care from the NHS.

baubles Tue 22-Mar-16 20:02:17

Rubylady flowers

Deedaa Tue 22-Mar-16 21:43:38

We were very happy with the end of life care MiL had in her nursing home. The girls were mainly Nepalese and Fillipino and were very kinfd to her. We were kept well informed about what was happening.

jogginggirl Tue 22-Mar-16 22:21:20

So sad for you ruby - I do hope you can find time and energy to take care of yourself too...

Sending (((hugs))) and flowers xx

rubylady Wed 23-Mar-16 00:31:34

Thank you all so much, new tears. Although probably good to be getting it out. My head does hurt though. When my depression hits I take it minute by minute and I am worried that all this will either spark it off soon again or when the dust settles. Apart from the obvious of bubble baths, a drop of brandy, listening to some music, trying to read my book, what else could I try to get my head to relax a bit or will it be with me for a while yet?

On top of that,weI have to move stuff for an 8am start to have a new boiler fitted. And my doggie has to go to the vets too. hmm

newnana Thank you for your lovely poem, it made me cry. I will write it down and maybe use it at his funeral, very apt, thank you. smile

Judthepud2 Wed 23-Mar-16 01:52:07

Ruby I have been there too! So hard to see a loved one struggling through the end of life. The stretching out of arms is apparently very common towards the end. my mother did it a lot a few days before she died. I think she may have been reaching out for my dad who had died a year before. A nurse friend of mine said they call it 'reaching' and may be caused by the morphine causing hallucinations. It would be a comfort to think that your dad was seeing people he loved coming to help him pass.

Thinking of you at this difficult time flowers

rubylady Wed 23-Mar-16 02:11:13

Trouble was, his mum and dad never really parented him. He was an only child, his mum declared she wouldn't do it again after him and she didn't. He got brought up by his grandma, but it could be her that has come for him.

I am having the boiler done tomorrow but I will be visiting again very soon, but now I am shattered and am off to bed to be up again in less than 5 hours.

Night all and thanks. X